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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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09-06-2014, 09:58 PM | #91 | ||
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Junior Member
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Actually REST!!! I didn't and It probably caused my recovery time to be longer
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"Thanks for this!" says: | SuperElectric (10-06-2014), twohandles (08-10-2017) |
09-15-2014, 12:34 AM | #92 | ||
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Junior Member
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Thank you so much for this.
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09-15-2014, 04:00 PM | #93 | ||
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Junior Member
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1)Start treating it ASAP.
I read about some recent research done on the mechanism of concussions, and basically it suggests that loads of antioxidants and anti-inflammatory chemicals (including fish oil) can significantly reduce damage if given very early on. I only started treating (supplements, rest) it after 3-4 days . 2) The symptoms might seem relatively mild at the beginning, but that doesn't mean they'll be over soon. You may be lucky and make an early recovery, but if you're not doing so bad right after the injury (I wasn't--I was basically feeling like I was hungover and that's about it) that doesn't mean you'll be out of it soon. I wasn't even unconscious and I'm still battling symptoms 2 months later. A friend of mine was knocked unconscious once, and became symptom-free within a week. |
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09-15-2014, 10:09 PM | #94 | ||
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New Member
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Here is a detailed on-going account of what has worked for me. I am sharing it in the hopes that it may be helpful for some: *edit*
Last edited by Jomar; 09-15-2014 at 10:33 PM. Reason: sorry- no linking or link attempts for new members |
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09-20-2014, 02:04 PM | #95 | ||
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Newly Joined
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Quote:
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10-02-2014, 10:30 AM | #96 | ||
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Newly Joined
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10-12-2014, 08:03 AM | #97 | ||
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Newly Joined
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I I hit my head slightly on a wall almost exactly 7 months ago. I have had some improvement since the initial injury, but I am nowhere near what I thought I would be at this time. In the very beginning I was very sensitive to light and noise but the worst of the symptoms were the headaches. The noise and light sensitivity is still there and somewhat improving. My headaches though are still just terrible day to day, it is affecting me in a way I never thought possible. I was a very active 30-year-old running nearly 25 to 30 miles a week. I also played soccer twice a week. It's very frustrating not being able to do any of those things I enjoyed so much. Right now I would just like to be able to go a couple days without a pounding headache. trying to stay positive that things will get better soon, but not expecting it. For now just continue to work full-time and trying to take it easy as much as possible. For me right now the hardest part is the depression, some days aren't as bad as others, but those bad days I have, are really bad. For now just going day by day and hoping one morning I wake up and the headache is gone and doesn't come back. Hopefully soon I will be able to post my success story on here and give others some hope. To all those suffering out there, I wish you the best of luck in your recovery. Cheers for now.
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10-21-2014, 01:54 PM | #98 | ||
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Junior Member
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5) No offense to anyone here, but one big rule of thumb is not to completely trust the brain injured person for information about themselves. Sometimes my daughter would say, "I had a great day, I feel good." Then the next day she would say, "Oh yeah, I went to the nurse's office with a headache twice yesterday it was awful." Or when she told the neuro, "I'm having two or three headaches a day," only to say at the next appointment, "I'm down to having two or three headaches a day, before I had a constant headache most days." She was seeing double for most of the year but didn't really realize it.
It takes a lot of energy for the injured person to describe how they are feeling in a way that the caregiver can understand. They simply don’t have the energy, or feel so bad, that they don’t provide the information you might need to help them make decisions. You must learn to observe. Those scary, glassy-eyed stares should be read as neon signs saying, “closed for business…temporarily shut down”. It’s tempting to try to get the person to re-engage, talk, whatever when that happens but that’s when they really need to rest. This is a good reminder for me. My husband's brain injury as a child progressed, we believe, into the periodic nighttime seizures he has now, and until i read this part of your post, it simply did not occur to me that his persistent lack of decision-making and constant changes in response to any conversational stimulus could be attributed to this. not once. 6) You MUST advocate for your person. Research any symptoms that might respond to some kind of treatment (i.e. ambient vision, hormone/adrenal/thyroid issues, vestibular problems). It's up to you to research and find the right docs to help. You must also help them navigate through school or work or household responsibilities and especially help with personal relationships to reduce stress. Help them make decisions so that they don’t hurt themselves again (i.e. sledding is a bad idea right now, wear shoes with traction, eat your protein, etc.). [COLOR="rgb(139, 0, 0)"]I would second and third this statement: my hub was not put on antidepressants until i did some research and found that most people coping with seizures from a head injury are on anti depressants.i was rather appalled that the doc didn't seem to be aware of this or perhaps simply didn't care. it may be time to find another doc now after reading all of these comments though. i've been worried about leaving the doc he's been seeing for years, but in hindsight, it is time. he's never liked the doc anyway.[/COLOR] i am still searching. my hub's mood swings after each seizure are roller coaster worthy. i never know who will emerge from the seizure: jekyll or hyde. i do hope it gets better. the seizures may never go away. we are searching for alternatives to the medication he takes for them however. |
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"Thanks for this!" says: | Concussed Scientist (11-27-2014), Hockey (10-21-2014) |
10-27-2014, 12:43 AM | #99 | |||
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Junior Member
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@MarkinIdaho-
I just joined and thank you for your post. I'd like to PM you but don't know how as I have some questions that are specific and are specific to the Treasure Valley. I've had PCS for 2 years now and am having a horrible time here in the TV to find doctors who know what to do with me. I was a bike racer prior to my accident and cannot ride for more than 20 minutes before getting awful facial pains. I want to return to my life and you seem to be the guru! Any more suggestions would be greatly appreciated. |
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11-21-2014, 10:49 AM | #100 | ||
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Newly Joined
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I am using Siri to dictate as typing is a challenge. September 2014 I was crossing the street at a controlled intersection after I confirmed it was safe. I see the walk sign, I am almost halfway across the street and then I feel this incredible pain. I couldn't wrap my head around the fact that transit bus just hit me. I was lucky,The police said if I was 3 feet prior it would've been a different story because it would around me over. It was turning left and connected with my body, through me 10 feet and I landed on my head on the roadway. I could not Get up and when I managed to feel the back of my head I had was covered in blood. I received nine staples. I have been made to feel stupid because people don't understand how I could get hit by such a large object and not see it. I believe the comfort of crossing out a controlled intersection and checking both ways made me feel secure that it was safe to cross though I did see the bus 30 to 40 feet down the road which gave me time to cross and most importantly I had the right away.
I have not received one sent to help with the treatments I have been able to attend from the insurance company for the bus. My doctor told me that the referrals he made have been questioned by the insurance company and to date no specialist have been seen . The insurance company says I should be better because it's two weeks to heal. My doctor try to send me to PCS specialist and told me that insurance has stopped the referral. How can that be? He also referred me to speech therapy because I stutter really bad and he referred me to a psychologist. Not one of these appointments have been okayed by the insurance company for the bus. I have received over 50 pages of paperwork to fill out in the past two months which was a real challenge when all I could do was sleep because my head hurts so much. Light hurts noise hurts and if I go out I get really anxious around buses and now I cross the streets anywhere but at a satellites because then you're more alert and aware that you can get hit. Is it normal for the call to hurt my head so much now that it's winter. Is it normal to be so angry and have fits of rage that are uncontrollable and instant. Then there are fits of crying it seems for no reason but I realize I'm so frustrated because it takes me so long to get anything done because my short-term memory is nonexistent. I have a book that I write everything down when I eat when I sleep because I can't remember and I have no hunger pangs. Is this normal? I am so frustrated and yesterday I just thought why do I bother living like this with no treatments. I know I had an MRI scheduled to weeks after the injury and the insurance company canceled it! How can insurance companies go against a doctor that's been seeing you for years and knows you and knows you don't stutter and have anger issues and feel frustrated and anxious and now depressed? I am no longer dealing with the insurance company as I told them all you have given me is a lot of work which I had to get people to help me with in the little bit of time that I'm awake when I need to focus on taking care of me and eating. I was totally broke in September and I'm not doing that again. I need to know how to get better on my own because my doctor can't seem to push to get me to the specialist that I need to see and I can't handle it anymore I just want to live. |
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