 |
|
| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
| Closed Thread |
|
|
Thread Tools | Display Modes |
01-08-2012, 04:23 AM
|
#31 | ||
|
|||
|
New Member
|
1) Not listen to my doctor and think I could go back to work earlier
2) Lifting weights at the gym after a few days from being released at the hospital! |
||
|
| "Thanks for this!" says: | poetrymom (04-12-2013), twohandles (07-27-2017) |
|
01-08-2012, 10:30 PM
|
#32 | ||
|
|||
|
Junior Member
|
I was injured at work at the end of November, 2011. I have found this thread very useful – especially the points on getting the right kind of doctors to begin with. I would have never thought of that on my own.
I want to add two points. 1. A friend had me start a daily journal right from the beginning. I write down what symptoms are notable for the day, especially with glitches in memory and with speech. I write down the highlights of each doctor’s visit including what medication I am taking at what dosage and what they say is next. I have a treating physician and a neurologist and they both get copies at each visit. They both genuinely appreciate it because hey have something they can point to concretely to show what progress there is and what progress there is to be made. In the absence of a positive CT or MRI, a journal helps them explain why I still need to be under their care and why am not yet cleared to drive or go to work. They have in writing and in front of them during the visit what the other doctor is doing. I thank my friend for getting me started this way. 2. I take a friend with me to every doctor’s visit. (Not necessarily the same friend each time) I may think I am fine when I am with the doctor. By the time I have gotten to the car, I have forgotten the important facts from the visit. I find that my judgment of what is important isn’t necessarily the same as the judgment of a friend without a brain injury. My friend also can help express to the doctor some of the challenges I face, especially when I am not communicating clearly in the visit. |
||
|
|
| "Thanks for this!" says: | mollymum (06-27-2012) |
|
01-10-2012, 08:44 AM
|
#33 | ||
|
|||
|
Junior Member
|
* I really wish that I would have discovered something like this forum from the beginning, but then again, I didn't have the short term memory for it.
* That my parents had somehow known to take away my phone and computer to an extent, or at least monitor what I was doing better. I had short-term memory loss for months. I had a phone scam occur, and did a lot that I do not remember at all. * That I had had the right doctor from the beginning, but that's not always the easiest thing to figure out. * To know that it could possibly take years to recover and that it could be permanent. The many false promises of "only 3 more months" killed me, and I feel like I wasted time. I could have been coping instead of being in waiting all the time for it to just disappear. * Talk to your loved ones or people you are close with about how you're really feeling. Get it out. If not verbally, than email them or something. I felt like I was talking about it all these years, but recently my father said something on the phone that hit a nerve with me. I emailed him a very long email about everything I was feeling and going through and it has helped. He thanked me for really explaining, and it took me over 3 years to do that. |
||
|
|
| "Thanks for this!" says: | Concussed Scientist (06-23-2013), easeinbeing (09-24-2013), kayley (02-07-2012), Klaus (01-14-2012), twohandles (07-27-2017) |
|
04-22-2012, 03:16 PM
|
#34 | |||
|
||||
|
Member
|
I wish that I had worn a marshmallow helmet every day and had realized that when I was starting to feel better was not the time to start doing stuff again.
 I wish that I had known that it was OK for me to feel awful. 
__________________
Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused constant migraines, nausea, and dizziness/lack of balance. Migraine triggers are: light sensitivity (especially to florescent or bright lights) sound sensitivity (especially to high pitched or loud sounds) temperature sensitivity (especially to cold or extreme heat) activity (especially if breathing increases or head is jostled) pressure on head (sinuses, hats, headbands, sunglasses, pony-tails) lacks or quality (food, sleep, water) tension (stress, tight muscles, tired eyes, sickness) |
|||
|
|
| "Thanks for this!" says: |
|
04-22-2012, 03:20 PM
|
#35 | |||
|
||||
|
Member
|
Quote:
__________________
Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused constant migraines, nausea, and dizziness/lack of balance. Migraine triggers are: light sensitivity (especially to florescent or bright lights) sound sensitivity (especially to high pitched or loud sounds) temperature sensitivity (especially to cold or extreme heat) activity (especially if breathing increases or head is jostled) pressure on head (sinuses, hats, headbands, sunglasses, pony-tails) lacks or quality (food, sleep, water) tension (stress, tight muscles, tired eyes, sickness) |
|||
|
|
|
04-23-2012, 11:00 AM
|
#36 | |||
|
||||
|
Member
|
If you wear glasses , ask your optometrist about Velvatint (please correct me if I am wrong in the exact name, memory issues as we know!) Basically they are a lightly rosy tinted lens which actually reduces the glare of flourescent lights! Granted, this does nothing for the sun, nor for those who do not need spectacles, but they have helped me immensely andi no longer have to wear my sunglasses indoors! (and the tint itself is not obvious at all to those looking at you)
|
|||
|
|
| "Thanks for this!" says: | EsthersDoll (04-23-2012), Margarite (04-24-2012) |
|
06-26-2012, 10:51 PM
|
#37 | ||
|
|||
|
New Member
|
What does a neuropsychologist do? I'm being sent to see one if the workman's comp will pay for it.
QUOTE=NourishYourNoggin;834992]HI: I'm the mom of a 14yr old teenage boy who has been recovering from PCS for 1 1/2 yrs. As a MTBI Literate Integrative Health & Nutrition Coach as well - I can share with you that what you choose to eat can profoundly impact your brain and body's ability to heal. We are fortunate to have Dr. Diane Stoler as our Neuropsychologist (she wrote the great book "Coping with Mild Traumatic Brain Injury") and she puts all of her TBI clients on a particular diet. Yes, the body uses an amazing amount of energy keeping it together as you are trying to heal. Good quality protein is very important for your brain and - you might not want to hear it - but eating sugar can reduce your immune system's ability to fight infection by up to 75%. Vitamin C and glucose are chemically constructed the same and will compete to get into a cell in your body. (google sugar and the immune system and you may be very surprised) The sugar in the juice that you are taking could be counteracting the good that you are trying to achieve. Better to take a vitamin C supplement. Also, my son takes 3mg of Melatonin and magnesium to help naturally with sleep at night. Hope this info helps. Warmly, Tina S Nourish Your Noggin[/QUOTE] |
||
|
|
| "Thanks for this!" says: | Concussed Scientist (07-03-2012), Laura G (08-29-2012) |
|
06-27-2012, 03:26 AM
|
#38 | ||
|
|||
|
Legendary
|
Villagecrest,
A Neuro Psychologist will often conduct a Neuro Psychological Assessment (NPA). An NPA is a battery of tests used to measure cognitive, memory, motor and processing skills. They can be very good if done by a good NP. Some NP's are biased against prolonged concussion symptoms. You should talk with a WC attorney who understands concussion/mTBI to get some help with the issues of an NPA. I hope you have acces to a good WC attorney. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
||
|
|
|
07-02-2012, 01:47 AM
|
#39 | ||
|
|||
|
New Member
|
It is very scary- your not alone. Your not a hypochondriac.
|
||
|
|
| "Thanks for this!" says: | Concussed Scientist (06-23-2013), easeinbeing (09-24-2013), jac3sr (06-07-2013), twohandles (07-27-2017) |
|
07-02-2012, 10:45 AM
|
#40 | ||
|
|||
|
New Member
|
Quote:
Your post has given me some good insight! It may not go away in a couple weeks! Be positive! Thank YOU! |
||
|
|
| Closed Thread |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Tomorrow will be 5 months post concussion..can I expect things to turn around still? | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Help! Post Concussion Syndrome advice/vestibular concussion? | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Post concussion syndrome help | New Member Introductions | |||
| post concussion scary things happening! | Traumatic Brain Injury and Post Concussion Syndrome | |||
| Post Concussion Syndrome 19 yr old | Traumatic Brain Injury and Post Concussion Syndrome | |||
I wish I didn't...
Linear Mode
