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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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06-23-2013, 07:13 PM | #1 | ||
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"Thanks for this!" says: | Concussed Scientist (06-28-2013), concussedlawyer (07-25-2013) |
06-24-2013, 11:04 AM | #2 | ||
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Legendary
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I am glad HBOT worked for you. Studies show it to be of minimal if any benefit for the vast majority with PCS who do it, even after 40 to 80 treatments. It is a very expensive treatment before any benefits are even recognized.
Personally, I had high hopes for HBOT.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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06-24-2013, 01:06 PM | #3 | |||
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I wish I new I had a concussion first off.Second I wish I had direction and help instead of using alcohol for pain.Alcohol and cognitive impairments made my cognitive impairments severe
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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"Thanks for this!" says: | Concussed Scientist (07-04-2013) |
06-30-2013, 10:28 PM | #4 | |||
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I wish I had known that having more than one concussion can be a real game changer for brain recovery.
If you have had more than one concussion -- I had one when I was 9 or 10, then you're at risk for more problems. I can't articulate it, but multiple impact syndrome is at stake for you, and then PCS too. Take care of your brain and take care of yourself!!
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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"Thanks for this!" says: | Concussed Scientist (07-04-2013), concussedlawyer (09-07-2013) |
07-01-2013, 06:36 AM | #5 | |||
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Shop for great doctors! Neurologist, neuropsychologist, vestibular specialist, Neuro ophthalmologist.
Get an advocate if you are alone. Listen to your body. Write down all your symptoms even if you think it may not be anything important. Find a support group or a neuropsychologist to talk to that will understand what you are going through. |
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"Thanks for this!" says: | Concussed Scientist (07-04-2013), concussedlawyer (07-25-2013), Mokey (08-28-2013), mouse1 (07-01-2013), poetrymom (08-23-2013) |
07-09-2013, 12:15 AM | #6 | |||
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I wish I would have known that there are some people, even professionals and loved ones, who just won't get it. And even more importantly, that stressing about them "not getting it" and feeling all defensive and indignant, was NOT worth the energy. It took away my sense of peace, which affected my healing.
I wish I would have gone easier on myself because although it seemed like an eternity off work, it now seems like it was a blink of an eye. Shorter than a maternity leave. And stressing about it did me no good. I wish I would have known how to disengage from the anxiety caused by this injury. But overall I wish I'd learned sooner how to live in the moment, and be grateful. I'm thankful for some suffering to teach me these things, and I pray to never forget. I'm indebted to this place, the advice found here, particularly from the committed members who never give up on us newbies (that's you Mark... Thank you!) and I praise the invention of the ICE PACK!
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About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime. NEW: Completed 12 weeks of physical therapy and returned to work full time. About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me! |
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"Thanks for this!" says: | adougall70 (12-11-2013), Concussed Scientist (07-09-2013), concussedlawyer (07-25-2013), MiaVita2012 (09-02-2013), music-in-me (09-23-2013), poetrymom (08-23-2013), Su seb (09-15-2013), Superstition (12-09-2013) |
08-13-2013, 01:51 PM | #7 | ||
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10 Things I wish I knew when I first got Post-Concussion Syndrome (PCS) "Everything will be all right in the end. So if it is not all right, it is not yet the end." ~ Indian expression from The Best Exotic Marigold Hotel I wish as a former professional writer I knew it could take me a week to come up with this list. 1) Get an Advocate - Find a good advocate to take with you to all doctor appointments: friend, spouse, parent, older child, co-worker - anyone that is willing to be your voice when you can't find your own AND will fight for you. This person should: 2) Find specialists in TBI/PCS - Do your research to find specialists in tbi/pcs. NOT all doctors are educated, experienced or specialize in the nuances of brain injury or PCS. 3) Contact your local Brain Injury Association - if in America here is the link where you can find local resources - http://www.biausa.org/ 4) It's Okay to ask for HELP! 5) 10 steps forward, 11 steps back - My neighbor discovered and made me aware of this process at work watching me over the first 2 years post-injury. 6) Humpty Dumpty Syndrome - All of the king's horses and his men actually can miss some pieces when putting you back together again. 7) Laughter IS the best medicine! Find humor in the small things, big things and ordinary things - laughter can pull you through. My humor can border on inappropriate, dark and twisty. I own it. It's mine. If other's don't understand, it's their problem. (My son nicknamed me "Brain Damage", my mom was outraged, but I laughed until I cried. It felt great!)
8) Silver Linings - Call it a playbook or embracing your inner Pollyanna, but find your silver linings. 9) Coping tools! Sensory overload and beyond... 10) Acceptance While long, I hope my experiences can help another. Best wishes on your recovery. ~Kristy |
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"Thanks for this!" says: | Concussed Scientist (08-16-2013), concussedlawyer (09-07-2013), Laura G (08-15-2013), Margarite (09-26-2013), MiaVita2012 (09-02-2013), Mokey (08-21-2013), music-in-me (09-15-2013), NormaW (08-15-2013), poetrymom (08-15-2013), SarahSmile0205 (03-20-2014), Superstition (12-09-2013), Wndswptlady (09-09-2013) |
08-23-2013, 02:07 AM | #8 | |||
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Just because a doctor has never seen a symptom before means just that. HE has never seen it. It doesn't mean it can't or doesn't exist for you and others.
Shop for the best doctor for YOU. Make a binder with calendar pages to keep track of appts. Make a section for each doctor, therapy, medications, and a daily life section to take notes about your day. Take with you to every appt.
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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"Thanks for this!" says: | Concussed Scientist (04-16-2014), CowgirlCat (04-22-2015) |
08-23-2013, 07:45 PM | #9 | ||
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Since it is so difficult to find a good doctor, it helps to take charge of your own recovery. If a vestibular specialist is helpful, great. Just don't expect every specialty to be able to help.
Concussion and mTBI symptoms are not treated as a group. They should be addressed individually. Some, if not most need time.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: |
08-29-2013, 01:59 PM | #10 | ||
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Don't rush! Everything takes a LOT longer to do than before. Rushing will only exacerbate your symptoms, so take a chill pill and relax.
Be honest about how you feel to anyone you trust. They might be able to spot a problem before you even realize it is one. If you feel like you need to take a day off, do it. Listen to your body and your mind. If you don't feel right then don't push yourself. You won't do yourself any favors. |
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"Thanks for this!" says: |
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