Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-12-2013, 12:30 PM #51
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From my own experience I feel that a lot of the physiological PCS symptoms such as noise and light sensitivity, insomnia, headaches and sensory overload are exacerbated by the psychological symptoms and vice versa. It was only when I was prescribed the antidepressant Cymbalta at the four month point of PCS that all of my symptoms reduced. The medication combined with quiet rest got me on the road to recovery.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 04-12-2013, 04:51 PM #52
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Default What I've Learned 1.5 months in PCS

1. I can't drive yet. I don't trust my perceptions. It is OK to ask for help.

2. Use Advil or its active ingredient for a headache -- not Tylenol or acetominophin

3. I will have good days (not so dizzy, not so light sensitive) and bad days or days where I OVERdid it and symptoms come back.

4. Vestibular therapy is helping me.

5. Take good vitamins. See the vitamin thread.

6. Eat good food. Not much junk food and limit or really try to quit caffeine

7. This message board is amazing the people are willing to help and share here. I am blessed to have found it.
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 04-12-2013, 07:35 PM #53
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Arrow I Wish I Had Known

I wish I had known that I had a concussion from the start!No M.D.'s or hospitals would tell me!They said soft tissue After a year and half of my own battle with PCS & M.D.'s I finally made it to the person I needed BOOM neurologist and a neurosyc test that gave me my DIAGNOSIS!!! YA I KNOW GREAT STORY HUH LOL
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 04-13-2013, 07:27 PM #54
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Default Things I wish I would of known...

I, like Mia went a long time (years) before getting the correct diagnosis of PCS also. I am amazed after telling lots of different doctors about my concussion history from passing out and hitting my head on concrete so many times that they did not send me to a neurologist long ago. Especially after the MVA.
I wish I would of known to see a qualified neurologist/movement disorder specialist. I wish I would of known to get neuropsychological testing done. I wish I would of known of this support group and that their are others out there who understand and are going through the same thing. I have gotten the best advice on here and so much support and help with feeling not all alone in the world or like I am just extremely weird or mental. I wish I would of known about earplugs and white noise. I discovered sunglasses and meditation for myself. I especially wish I would of known not to take Tylenol and Lortab or Lortab and extra strength excederin together because it will cause you to overdose on Tylenol and cause liver failure. I wish I would of known to see a back and neck specialist and had MRI's done of both as well as my brain while I still had insurance. I wish I would of known about pain specialist doctors before. I wish I would of known what was going on with me and how to explain it properly to my family so they could help me because I was unable to help myself.
I am very grateful for all I have learned and how far I have come.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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Old 06-07-2013, 02:56 AM #55
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Thought I would bring this thread back as it explains a lot for new members. Any chance the moderator could stick it up?
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-21-2013, 10:41 AM #56
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Default thank you

Thank you for this thread and this forum.
Today is a rough day but I'm finding hope in the things I'm reading here.
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Old 06-23-2013, 07:13 PM #57
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Quote:
Originally Posted by Concussed Scientist View Post
Please use this thread to post advice for new members along the lines of "if only I'd known that when I first got post-concussion syndrome".

Most of us are probably struggling with our symptoms trying to cope with our situation and find the best treatment. It is a learning process that unfortunately takes a while, but we do learn things along the way, things that would have helped us had we known them at the beginning.

Here is your chance to pass on what you have learned to any new people to this forum, who will doubtless be hoping that someone has some guidance for them in dealing with this horrible condition.

Perhaps this thread might help others not to waste time and energy before finding something that helps them.

Everyone is different and in different situations but, if enough people share their experiences of what they have learned, perhaps new readers will be able to pick out something that will work for them.

CS
My traumatic brain injury caused visual issues (midline shift syndrome and post trauma vision syndrome). I wore bifocals before the concussion and assumed I just needed new glasses to correct the blurriness and double vision. I went to eye doctor after eye doctor before I stumbled across an eye doctor who understood it was my brain not my eyes that was the problem. THE doctor to see is William Padula in Guilford, CT. He has patients who come from all over the globe and is the best in diagnosing and treating these conditions. The other suggestion for PTSD/TBI is Hyperbaric Oxygen Treatment. There is a national study taking place right now (I just completed the treatment). It is amazing the results - it is non-invasive and no drugs are involved. I saw improvement in everyone in the study and think this is where treatment for a head injury should start. It works on healing the brain. It's used all over the world for head injuries - we're slow to the party thanks to the drug companies
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Old 06-24-2013, 11:04 AM #58
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I am glad HBOT worked for you. Studies show it to be of minimal if any benefit for the vast majority with PCS who do it, even after 40 to 80 treatments. It is a very expensive treatment before any benefits are even recognized.

Personally, I had high hopes for HBOT.
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Old 06-24-2013, 01:06 PM #59
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Default I also wish I known

I wish I new I had a concussion first off.Second I wish I had direction and help instead of using alcohol for pain.Alcohol and cognitive impairments made my cognitive impairments severe
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 06-30-2013, 10:28 PM #60
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Default Multiple Impact Syndrome

I wish I had known that having more than one concussion can be a real game changer for brain recovery.

If you have had more than one concussion -- I had one when I was 9 or 10, then you're at risk for more problems.

I can't articulate it, but multiple impact syndrome is at stake for you, and then PCS too.

Take care of your brain and take care of yourself!!
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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