Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-17-2010, 07:20 PM #1
Wanttobesurfing Wanttobesurfing is offline
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1. It may be a very long road to recovery, if ever - don't put a time limit on recovery. Really depends on the concussion. This is what I found most difficult. But with time, generally you will get better.

2. Reframe your situation and give yourself time to accept your circumstances. I'm 20 months, still not fully healed. I deal with it daily. I may never fully recover. Flipside is I could be dead or a parapalygic (sp?) or something a million times worse. Whatever you are going through it could be worse.

3. Limit risky activities. For me this is near impossible but I have reduced the risk of head injury. i.e. No Hockey.

4. Generally it will get better with time - just don't look at things day to day or even week to week. For a serious concussion month to month or every 6 months is more realistic. Then you'll probably see progress.

5. PCS can be a blessing. Trials and tribulations build character and can make you a better person. Relate your story to others - you can help out someone else.

6. This is just my opinion - doctors have no clue about concussions (hey my dad's a doctor so I don't say this lightly). They just don't. Time is what will make you better. I doubt you'll get answers through Neurologists.

7. For me doing things I love helps. Gotta stay positive.

My short story - head injury snowboarding. Knocked out cold for a minute or so. Memory loss. Probably was my 5th concussion since I was a kid.

I'm an exec and only missed 1 week of work (not saying that's for everyone but I think it saved me from potential for depression).

Month 1 to 3 - poor vision, couldn't walk around the block, always nauseated, headaches, dizziness, light headedness.

Month 4 to 12 - basically the same thing but gradually could get some excercise at the gym. Couldn't bend down to tee up a golf ball. Couldn't wash my car, mow my lawn or rough house with my kids.

Month 13 - eyesight finally corrected itself after seeing a zillion doctors. Yeah!

Month 20 - today. I Golf and do many things I've put off. Surfed in Maui last month (I know it is risky but very small waves...) Headaches still and most days, nausea sometimes but much better, dizziness sometimes. Can't pinpoint anything triggering how I feel. Although I do know stress doesn't help.

Tried Naturopath, accupuncture, seeing other specialists - nothing worked for me other than time. Never took any drugs and don't plan to.

One day maybe I'll be 100% better. Till then I'm coping with a different me - but long term I'll be better for it. No hockey though

Don't dwell in self pity.......your situation, whatever it is could be worse. As I write this I feel like crap.

Out.
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Old 12-10-2013, 09:48 PM #2
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kacee92 kacee92 is offline
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kacee92 kacee92 is offline
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Quote:
Originally Posted by Wanttobesurfing View Post
1. It may be a very long road to recovery, if ever - don't put a time limit on recovery. Really depends on the concussion. This is what I found most difficult. But with time, generally you will get better.

2. Reframe your situation and give yourself time to accept your circumstances. I'm 20 months, still not fully healed. I deal with it daily. I may never fully recover. Flipside is I could be dead or a parapalygic (sp?) or something a million times worse. Whatever you are going through it could be worse.

3. Limit risky activities. For me this is near impossible but I have reduced the risk of head injury. i.e. No Hockey.

4. Generally it will get better with time - just don't look at things day to day or even week to week. For a serious concussion month to month or every 6 months is more realistic. Then you'll probably see progress.

5. PCS can be a blessing. Trials and tribulations build character and can make you a better person. Relate your story to others - you can help out someone else.

6. This is just my opinion - doctors have no clue about concussions (hey my dad's a doctor so I don't say this lightly). They just don't. Time is what will make you better. I doubt you'll get answers through Neurologists.

7. For me doing things I love helps. Gotta stay positive.

My short story - head injury snowboarding. Knocked out cold for a minute or so. Memory loss. Probably was my 5th concussion since I was a kid.

I'm an exec and only missed 1 week of work (not saying that's for everyone but I think it saved me from potential for depression).

Month 1 to 3 - poor vision, couldn't walk around the block, always nauseated, headaches, dizziness, light headedness.

Month 4 to 12 - basically the same thing but gradually could get some excercise at the gym. Couldn't bend down to tee up a golf ball. Couldn't wash my car, mow my lawn or rough house with my kids.

Month 13 - eyesight finally corrected itself after seeing a zillion doctors. Yeah!

Month 20 - today. I Golf and do many things I've put off. Surfed in Maui last month (I know it is risky but very small waves...) Headaches still and most days, nausea sometimes but much better, dizziness sometimes. Can't pinpoint anything triggering how I feel. Although I do know stress doesn't help.

Tried Naturopath, accupuncture, seeing other specialists - nothing worked for me other than time. Never took any drugs and don't plan to.

One day maybe I'll be 100% better. Till then I'm coping with a different me - but long term I'll be better for it. No hockey though

Don't dwell in self pity.......your situation, whatever it is could be worse. As I write this I feel like crap.

Out.
Thank you for your words of inspiration. I am currently a senior in college trying to make it though my last semesters. All of my life I have been the girl who loves a challenge. MY passions include soccer, snowboarding, wakeboarding, surfing, horseback riding, hiking, and all of that fun stuff. Now, Ive had one too many concussions and am here dealing with PCS. I am only in month 3 and have given up sports for the time being and am trying to give up the gym for a little to see if it helps. I have nausea daly, fatigue, dizziness, and all that fun stuff. The anxiety and depression have taken a toll on me as I feel like my brain is precious and I am upset in myself for hurting it and pray that it will be better one day. If not, I mus learn to cope with this new me and I need to come to terms with that because like you said it could be way worse. I can still walk and smile and im alive on this earth. I know soccer and snowboarding and other activities may be done for me for good which is saddening. How long did you give yourself to heal before you started participating in simple active activities? I feel as if Im okay to handle the gym and outdoor activities, but I also do not want to rush the healing process. The gym helps with my anxiety though and that is why I am stuck at a cross road. I know the recovery road will be slow, and I may never be back to where I was, I just hope the people in my life accept me for that. Thank you for your encouragement and I hope your path continues to improve for you!

Kacee
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