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Things you wish you'd known when you first got post-concussion syndrome.

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Old 04-22-2012, 03:20 PM #1
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Margarite Margarite is offline
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Originally Posted by Margarite View Post
This is an awesome idea!!!!!

1) Realize that your doc probably doesn't know anything about concussions.

2) There really is not much to do for your problems

3) DO NOT GET A 2ND CONCUSSION

4) Treat your symptoms
If you are dizzy walk slowly and wear good shoes
If you have trouble with light wear sun-glasses
If you have trouble with noise try having some white noise to help

5) Have a daily journal of your symptoms throughout the day

6) Realize that people don't know how you feel, even when you tell them

7) You may be lucky and heal quickly, but it may take years

8) Research online there is a plethora of info

9) Realize that it you can learn to live with this...You are OK

10) You may have to stop doing sports (dancing), go to the gym instead

11) Pray, pray, pray!

12) Stress kills! Keep your neck loose not tight--best advice I got from a doc!

Finally just realize that you will be fine!
Don't hit your head again or it will get worse for a lot longer, but even then it will go away or you will learn to cope and live with it.
It can make you either a better or a worse person...your choice.
Sure it stinks, but as long as you have had a CT and MRI to prove that there is no bleeding or breakage then you won't die and you can become stronger from it.
Offer your time to others. This condition can cause you to become very self-absorbed, giving your time to others or even better giving your time to others worse off than you helps with the selfishness.

Good luck....I know it is a daily struggle. I am on month 23...It is still constant headaches, light and sound sensitivity, dizziness sometimes, nausea daily, trouble with concentration, worsening with activity, and constant fatigue. I got this from falling off a horse my freshman year of college, got 6 minor concussions afterwards from silly things within a year of the first. But I am in my junior year of college and plan to go to graduate school.

This has helped me to realize others' pain when they are suffering, it has made me want to go into nursing, it has helped me to learn how to manage my time better, and how to rely more on myself.

It is your choice.

Good Luck,
Margarite
This is all still true a year latter when I now have 10 concussions and am about to graduate if I can make it through the next 3 weeks.
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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Old 07-02-2012, 10:45 AM #2
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Originally Posted by Margarite View Post
This is all still true a year latter when I now have 10 concussions and am about to graduate if I can make it through the next 3 weeks.
I fell face first and hit my forehead on the concrete last Friday at the local gas station! 12 stiches, bruises, scrapes, lots of swelling per my forehead, eyes, cheeks!! Black eyes for three days! However I was really thinking I would heal up and life would be fine. CT SCAN was clear. However I went back to the Dr of Friday let her know how dizzy I am. I am not sure but maybe mild confussion, heavy head, then light head. Noise is awful! Can bring myself to do my morning walk in the heat... just seems like I can barely walk around the house! She diagnosed me with Post Concussion Syndrome! UGH! What the heck is that?

Your post has given me some good insight! It may not go away in a couple weeks! Be positive! Thank YOU!
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Old 03-09-2014, 06:06 AM #3
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I probably wish I didn't listen to the first physician I saw at the ER.

This is what I was told

"Concussions are very common, and heal very fast, try to work your way up and if you get headaches stop, exercise is fine but do not hit your head hard again"

I went home and played soccer for a few hours, felt fine. Hung out with friends, wrestled a bit, fine.

Next day I wake up with a horrible headache, and that was it.

I will probably never be able to completely trust a physician again.
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Old 09-06-2014, 09:58 PM #4
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Actually REST!!! I didn't and It probably caused my recovery time to be longer
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Old 10-12-2014, 08:03 AM #5
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I I hit my head slightly on a wall almost exactly 7 months ago. I have had some improvement since the initial injury, but I am nowhere near what I thought I would be at this time. In the very beginning I was very sensitive to light and noise but the worst of the symptoms were the headaches. The noise and light sensitivity is still there and somewhat improving. My headaches though are still just terrible day to day, it is affecting me in a way I never thought possible. I was a very active 30-year-old running nearly 25 to 30 miles a week. I also played soccer twice a week. It's very frustrating not being able to do any of those things I enjoyed so much. Right now I would just like to be able to go a couple days without a pounding headache. trying to stay positive that things will get better soon, but not expecting it. For now just continue to work full-time and trying to take it easy as much as possible. For me right now the hardest part is the depression, some days aren't as bad as others, but those bad days I have, are really bad. For now just going day by day and hoping one morning I wake up and the headache is gone and doesn't come back. Hopefully soon I will be able to post my success story on here and give others some hope. To all those suffering out there, I wish you the best of luck in your recovery. Cheers for now.
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