ok...so after a the first day recovering from the long visit to his office and home -- (neurologist -headache specialist in ny) ... I was put on total rest...I did that to the best I could taking care of 2 boys. I never left the house from Thur thur Sun. All that did was show me that I have no headache if I sit with no music, etc on the couch or deck. Sun afternoon my parents came over for a visit...after they left -- symptoms started...and I watched 20 mins of tv. I'm back in worse shape today.

I can't take the isolation. I have a visit with a therapist tomorrow. I can't leave this house without a slamming headache and suffering for 2 days.

what's going on here...I can't even be around people. I know the anxiety is high, but it wouldn't be there if the symptoms weren't there!!

It is normal for people with PCS to need TOTAL REST to heal. Your brain can not heal as well if you are experiencing symptoms brought on by noise, vision, movement, thinking. Maybe you need something (or something more) for anxiety so you can relax and allow healing to take place.

P.S. And it may take more than a few days or a few weeks.

i'm on meds at night for anxiety... and the anxiety is at its best because i can't even leave this house without being a mess!!

When you have people in the house, try setting firm standards of only one person interacting with you ate a time. That person also has to be calm and slow with their speaking. It will be difficult to get kids to obey this but it is worth a try. Send one outside and sit quietly with the other as you explain this.

Visitors can be a nightmare. They always want to know how you are doing and tell you how everybody else is doing. This can quickly become information overload. My MIL is a problem for me, She just chats away and in a high pitched voice.

My daughter visits and after a few minutes, I need to leave the room and put my head phones on. My wife understands this and explains it for me. I usually just quietly walk away.

Some families/visitors feel the need to keep the conversation going. I like to just sit and comment from time to time as a though comes up. Boring for the visitor but safe for my brain. My mom lets me visit her this way. She will pick up a book to read or crossword puzzle. We will occasionally make comments as the thoughts come to mind.

My sister thinks there needs to be constant chatter. Even my wife can get worn out by her.

Try to identify your chatter threshold and work hard at communicating it and enforcing that limit.

Some guidelines might be.
No talking over the TV. That is what mute buttons are for.
No talking over someone else. NO interrupting.
No talking on the (cell) phone in front of PCS subject if the PCS subject is trying to do something.
No clattering of dishes or rustling of papers when PCS subject is attempting a task or comment.

These may sound harsh but it is for our own survival.

You can put together your own list.

Do you have a set of noise reducing head phones? I sometimes need to duck and cover my ears with them. I notice my eyes glazing over and run for cover. It is sometimes like I just fade away.

Hope you have a good day.

omg mark...that's it...sometimes I feel like I just fade away...i can hear everyone I just need some time to just shut my eyes.

my mom is constant chatter....couldn't take it.

I just want to get out of this house...watch a baseball game..or part of it.

I know even the computer is offensive for me. I try just 5 mins at a time...and usually this is my only site.

I am trying so hard to deal with this....I feel like I'm in isolation...

And...I can't watch tv....same thing happens...feelings in head start ...tinglging..then i get dizzy...even 15 mins. and I feel awful...and that's not anxiety -- I want nothing more than to zone out in front of tv

help

i feel the same way exactly. Have to just rest without talking to anyone. No tv, etc. Just sleep. sleep is the best way to keep away the boredom too!! IT's the only thing that helps my symtpoms. I had the first day symptom free "at rest" about two days ago. Thank god. I have to take about 3 naps a day and be at home all day long for a few days for that to happen. I'm almost a month and a half into this.

I hope you can start to get better.

I have to state please try to work this out so you can get at
least some of this to work. I just started realizing I am having
relapses of my symptoms. I'm not trying to alarm you but
its really irritating me. I am not sure where to go with this.

Donna

ps. Try a wet heating pad. They really help. With a headache.

what are your symptoms that are coming back?

I have some facial tingling...and the heat packs that you warm in the microwave work wonderful....prob better if I used a wet cloth around it too.

Mine is technically just the pain and tension in the neck getting
worse. And the headaches get more severe.

And yes I love the wet heat packs.

donna