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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-23-2011, 03:54 PM | #1 | ||
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Member
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My dr suggested this -- and I will be seeing him again this week. We didn't try it as I had an allergic reaction to dilantin and figured we would try the antidepressant route before another seizure med first.
Anyone have any improvements with Topomax? |
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05-23-2011, 07:29 PM | #2 | ||
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Junior Member
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I just finished getting off of Topomax. It messed with my mind in weird ways. I would have the sensation that my hands and jaw were 50 times bigger. It was a strange mind trip that I could feel coming on but couldn't stop. I also had tingling/pins and needles in my hands and feet.
All of this I reported to my neurologist who said that it was normal with this med. I put up with it for over a year and half but while trying to get my mind to work normal again the "trips" were messing me up more than I could stand anymore. Hope this helps. Good luck. |
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05-23-2011, 08:01 PM | #3 | ||
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Legendary
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Are you having seizures?
What is your doctor hoping to treat with Topomax or the previous Dilantin?
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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05-23-2011, 08:11 PM | #4 | ||
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I think his thought was to "calm" the brain with seizure meds.
No,..not having seizures -- but I have this constant vibration in my head. |
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05-25-2011, 04:20 PM | #5 | ||
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I tried it once before and had no luck with it.
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05-29-2011, 01:24 PM | #6 | ||
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Junior Member
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Be careful with Topomax! This is one of the drugs that is potentially causing "chemo brain" or "chemo fog" in cancer survivors. The drug is linked to decreased attention and memory- something people with PCS don't need any more trouble with!
Jena |
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