Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 06-05-2011, 01:29 PM #1
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
Default Temperature Sensitivity??

Hi Everyone- I am new to this forum, but unfortunately familiar with concussions and PCS.

I was in a bad car accident 3 months ago and experienced a bad concussion. (I was completely stopped, and the car behind me hit me doing 45 mph.) I also have experienced two other work related concussions in the past 2 years, (I work with highly aggressive special needs children.) Anyway, during my experiences with PCS after the accident, I would experience spikes in my perception of temperature. I had also experienced a back injury and was put on Prednisone for a month. My primary care Dr. attributed this issue with temperature as a side effect of the medication. It happened a few times off and on after I went off the Prednisone, but nothing too bad.

Against my neurologist's wishes, I returned to my job this week, so that they would not terminate my empolyment. The stress of my job has created a return of some symptoms, but they have not been too debilitating, so I'm trying to just push through.

However, I'm really struggling to adjust to the heat. It's been in the 80's and anytime I take the kids outside, within minutes I'm so hot I feel like I'm going to pass out... dizziness, ringing in ears, etc. (Both symptoms of my PCS). And it takes me FOREVER to get back to feeling normal, and requires ice packs on pressure points, sitting still, etc. (The same seems to be true when I'm in the air conditioning... I get really cold and can't get warm. Although I don't experience other symptoms.)

Is this normal as a symptom of PCS? I am talking with my neurologist on Monday due to the minor stuff resurfacing now that I'm back at work, so I plan on talking with him about this as well. If you experience this, how do you deal with it? How to you continue to try to lead a "normal" life?

Thanks in advance.... this whole experience has been very frustrating and I thought I was finally get back to my busy life, but this one setback is absolutely debilitating!
SmilinEyesMs305 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-05-2011, 09:35 PM #2
nightnurse30 nightnurse30 is offline
Member
 
Join Date: May 2011
Location: san diego
Posts: 303
10 yr Member
nightnurse30 nightnurse30 is offline
Member
 
Join Date: May 2011
Location: san diego
Posts: 303
10 yr Member
Default

So sorry you are joining us and have these issues. I also attempted to go back to work after 3 weeks off and felt pretty good when i was going back and it brought all my symptoms back full force and made it too difficult to return so now im back out till august 1. I know that its hard with the possibility of losing your job, but in our high stress, high energy, high sensory stimulation jobs, it may be too much for you too soon. I also have issues with temperature...mostly the heat bothers me. I was not on prednisone (although i have been on it before and had major temperature regulation issues) so it very well could be from your PCS. Definetly talk with your neurologist about options and ways to deal with these symptoms.
nightnurse30 is offline   Reply With QuoteReply With Quote
Old 06-05-2011, 11:11 PM #3
roadrunner63 roadrunner63 is offline
Member
 
Join Date: May 2010
Location: Central Kentucky
Posts: 241
10 yr Member
roadrunner63 roadrunner63 is offline
Member
 
Join Date: May 2010
Location: Central Kentucky
Posts: 241
10 yr Member
Default

I had temperature issues too. It was really bad the first few months. Still hits sometimes but it's tolerable now.
__________________
My life has been interrupted by PCS (Post Concussion Syndrome) aka TBI (Traumatic Brain Injury) due to a car wreck April 13, 2010. It can go back to normal any day now!
roadrunner63 is offline   Reply With QuoteReply With Quote
Old 06-08-2011, 12:38 PM #4
Margarite's Avatar
Margarite Margarite is offline
Member
 
Join Date: Jun 2010
Location: USA
Posts: 162
10 yr Member
Margarite Margarite is offline
Member
Margarite's Avatar
 
Join Date: Jun 2010
Location: USA
Posts: 162
10 yr Member
Default

my neurologist said it is normal
Margarite is offline   Reply With QuoteReply With Quote
Old 06-08-2011, 12:41 PM #5
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
Default

Thanks.. it's nice to know other people experience this. My neurologist said that this was not a symptom of PCS or even a neurological symptom. I basically felt like he was telling me it was all in my head.....
SmilinEyesMs305 is offline   Reply With QuoteReply With Quote
Old 06-12-2011, 10:22 AM #6
Concussed Scientist Concussed Scientist is offline
Member
 
Join Date: Jul 2009
Location: England
Posts: 150
10 yr Member
Concussed Scientist Concussed Scientist is offline
Member
 
Join Date: Jul 2009
Location: England
Posts: 150
10 yr Member
Default Hypothalamus

Hi Smiling Eyes,

The same thing happened to me as happened to you. I was completely stopped in a car and had another (larger) car shunt me from the back at speed.

I also experienced difficulties with temperature regulation, particularly in the first 48 hours after the collision - I was freezing one minute and boiling the next. This did settle down a lot, but I am sure that it could persist in some cases. The hypothalamus controls the body's core temperature and the hypothalamus is in the brain, so it could get damaged if your brain is injured. I, therefore, do not think that such symptoms are at all counterintuitive, and I am surprised that your neurologist seems to have given you the impression that such symptoms are imaginary. He is quite wrong there; they do have a cause.

Of course, there could be other causes so you would have to rule out things like an effect of medication, e.g. not letting you sweat adaquately; being overheated because you have put on weight. I do not know what sex or age you are, so I can suggest, hopefully without embarrassing you, that women of a certain age may experience hot flashes (or flushes, depending on where you come from).

Once other possible causes have been eliminated, then I would have thought that your neurologist should conclude that you temperature issues are due to damage caused by the collision. If he is not fulfilling your expectations of compentency in this regard, you may want to consider getting a second opinion. There is a lot of ignorance in this area.

Good luck.
Concussed Scientist

Quote:
Originally Posted by SmilinEyesMs305 View Post
Hi Everyone- I am new to this forum, but unfortunately familiar with concussions and PCS.

I was in a bad car accident 3 months ago and experienced a bad concussion. (I was completely stopped, and the car behind me hit me doing 45 mph.) I also have experienced two other work related concussions in the past 2 years, (I work with highly aggressive special needs children.) Anyway, during my experiences with PCS after the accident, I would experience spikes in my perception of temperature. I had also experienced a back injury and was put on Prednisone for a month. My primary care Dr. attributed this issue with temperature as a side effect of the medication. It happened a few times off and on after I went off the Prednisone, but nothing too bad.

Against my neurologist's wishes, I returned to my job this week, so that they would not terminate my empolyment. The stress of my job has created a return of some symptoms, but they have not been too debilitating, so I'm trying to just push through.

However, I'm really struggling to adjust to the heat. It's been in the 80's and anytime I take the kids outside, within minutes I'm so hot I feel like I'm going to pass out... dizziness, ringing in ears, etc. (Both symptoms of my PCS). And it takes me FOREVER to get back to feeling normal, and requires ice packs on pressure points, sitting still, etc. (The same seems to be true when I'm in the air conditioning... I get really cold and can't get warm. Although I don't experience other symptoms.)

Is this normal as a symptom of PCS? I am talking with my neurologist on Monday due to the minor stuff resurfacing now that I'm back at work, so I plan on talking with him about this as well. If you experience this, how do you deal with it? How to you continue to try to lead a "normal" life?

Thanks in advance.... this whole experience has been very frustrating and I thought I was finally get back to my busy life, but this one setback is absolutely debilitating!
Concussed Scientist is offline   Reply With QuoteReply With Quote
Old 06-12-2011, 11:20 AM #7
greenfrog greenfrog is offline
Member
 
Join Date: May 2011
Posts: 378
10 yr Member
greenfrog greenfrog is offline
Member
 
Join Date: May 2011
Posts: 378
10 yr Member
Default Temperature issues

I had some temperature issues early on, mainly during the first week. I remember saying to the friend who took me to the ER, "do you find it cold in here?" She said no. After I got home, I would alternate between being hot and cold, especially at night, either needing to bundle up or strip off layers of sweaty clothes. I also found that I was prone to feeling more wiped out when the indoors temperature got too high. Fortunately, we have A/C to keep things within range of room temp.

However, my temperature regulation seems to be back to normal. It probably took about two weeks or so for my brain + body to recalibrate.
greenfrog is offline   Reply With QuoteReply With Quote
Old 07-03-2018, 12:33 AM #8
Dking Dking is offline
Newly Joined
 
Join Date: Jul 2018
Posts: 1
5 yr Member
Dking Dking is offline
Newly Joined
 
Join Date: Jul 2018
Posts: 1
5 yr Member
Frown Post concussion syndrome

I too suffer from PCs was rear ended in a car accident , symptoms got worse after 3 months. Today it was 94degrees and became st dizzy






Quote:
Originally Posted by SmilinEyesMs305 View Post
Hi Everyone- I am new to this forum, but
unfortunately familiar with concussion

I was in a bad car accident 3 months ago and experienced a bad concussion. (I was completely stopped, and the car behind me hit me doing 45 mph.) I also have experienced two other work related concussions in the past 2 years, (I work with highly aggressive special needs children.) Anyway, during my experiences with PCS after the accident, I would experience spikes in my perception of temperature. I had also experienced a back injury and was put on Prednisone for a month. My primary care Dr. attributed this issue with temperature as a side effect of the medication. It happened a few times off and on after I went off the Prednisone, but nothing too bad.

Against my neurologist's wishes, I returned to my job this week, so that they would not terminate my empolyment. The stress of my job has created a return of some symptoms, but they have not been too debilitating, so I'm trying to just push through.

However, I'm really struggling to adjust to the heat. It's been in the 80's and anytime I take the kids outside, within minutes I'm so hot I feel like I'm going to pass out... dizziness, ringing in ears, etc. (Both symptoms of my PCS). And it takes me FOREVER to get back to feeling normal, and requires ice packs on pressure points, sitting still, etc. (The same seems to be true when I'm in the air conditioning... I get really cold and can't get warm. Although I don't experience other symptoms.)

Is this normal as a symptom of PCS? I am talking with my neurologist on Monday due to the minor stuff resurfacing now that I'm back at work, so I plan on talking with him about this as well. If you experience this, how do you deal with it? How to you continue to try to lead a "normal" life?

Thanks in advance.... this whole experience has been very frustrating and I thought I was finally get back to my busy life, but this one setback is absolutely debilitating!
Dking is offline   Reply With QuoteReply With Quote
Old 07-03-2018, 09:21 AM #9
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

Dking,

Welcome to NeuroTalk. Sorry to hear about your injury.

This thread has been inactive since 2011. SmilingEyes has not been on NT for almost as long.

People with PCS have not discussed temperature sensitivity much. Can you tell us more about what you experience? Are you well hydrated when you had this dizzy spell?
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 07-30-2018, 04:11 PM #10
bobbies81 bobbies81 is offline
Newly Joined
 
Join Date: Jul 2018
Posts: 1
5 yr Member
bobbies81 bobbies81 is offline
Newly Joined
 
Join Date: Jul 2018
Posts: 1
5 yr Member
Default I know how you feel

Like the OP I was hit from behind while sitting still and the other car was doing about 40. I was leaning forward at the time of impact because I had just completed an emergency stop and the Jeep I was driving hadn't settled yet.

I didn't notice anything out of the ordinary at first. I didn't realize that I had lost consciousness for a few seconds until later. I had a bloody nose even though I know I didn't hit the steering wheel. The pendulum effect of the timing of everything threw me back into the seat hard enough to break the seat.

It was a couple of days later that I was driving from church to the local WalMart. This is a trip I'm very familiar with since I've done it at least once a week for several years. I remember blinking and everything was gone. I had absolutely no memory. The lady in the seat next to me was a complete stranger and it took another 15 minutes for me to realize there were kids in the back. It turned out that she was my wife and those were our kids.

I lost the ability to speak clearly for a while and had a horrible stutter for a couple of months. I got treatment early and I've made it a long way back but I'm not sure I'll ever be 100% again.

The reason for this post, however, is that I have been getting both hot and cold flashes. It would be 100 degrees and I will get cold randomly. It is usually associated with getting a drink but it can take thirty minutes for me to warm up again. I will also randomly get extremely hot. I can be sitting in an air conditioned room with fans blowing directly on me and it feels like the fans are blowing hot air. I start to sweat profusely to the point of soaking a dry shirt in just a couple of minutes.

Because of the pills I take as part of my treatment I have to drink a regular amount of water each day so I know I'm not getting dehydrated. Yes, I am a bigger person but I've never had this issue before.

Speaking of being bigger, I have started gaining weight at an accelerated pace despite a drastically reduced diet and increased activity.

I'm also not sleeping very well (possible apnea) and despite getting several hours of extra sleep on some days I still feel exhausted all the time.

Thought someone would find this useful.


Quote:
Originally Posted by Mark in Idaho View Post
Dking,

Welcome to NeuroTalk. Sorry to hear about your injury.

This thread has been inactive since 2011. SmilingEyes has not been on NT for almost as long.

People with PCS have not discussed temperature sensitivity much. Can you tell us more about what you experience? Are you well hydrated when you had this dizzy spell?
bobbies81 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Temperature Changes craftyRCC Myasthenia Gravis 4 09-22-2010 07:09 PM
Temperature ynotretsevlys Reflex Sympathetic Dystrophy (RSD and CRPS) 16 03-09-2010 07:13 PM
Low body temperature garlic lover New Member Introductions 7 05-08-2009 02:01 AM
What's the temperature? doydie Multiple Sclerosis 31 08-16-2007 09:10 PM
Fall & Temperature Changes HopeLivesHere Reflex Sympathetic Dystrophy (RSD and CRPS) 17 10-26-2006 03:27 PM


All times are GMT -5. The time now is 03:44 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.