Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-08-2011, 09:36 AM #1
freezerdoor freezerdoor is offline
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The elavil took almost two weeks to kick in and really show me what it can do. With it, i'm about 75% well. I can run short errands, have short client meetings, work a full day, and care for things around the house just fine. I cannot run, swim, or bike yet... or simply go out for a walk.

I went to see a doctor who is one of the leading doctors in the nation for concussion. he's a prominent doctor for an NFL team.

He helped me to understand my next steps. He gave me a graduated exercise plan, meaning an exercise plan that starts small and provides for small increments over time.

I am symptom free at rest. I am to do something like swim or walk for 5 minutes at a target heart rate of under 100 beats per minute. I am to do that, for example, on a monday, then take tuesday without exercise to analyze how I feel and if the exercise brought on any symptoms. Then if okay, proceed to exercise on Wednesday, and take Thursday off to again analyze symptoms, etc. Exercise again on Friday and again, analyze symptoms the following day. Do this for a week and if no symptoms increase, increase my duration of exercise to 10 minutes. Increasing by 5 minutes each week. Continue with this until I reach 30 minutes at under 100 beats per minute.

Then at that point I can increase intensity little by little and keep the exercise duration at 30 minutes, until I get up to my max heart rate.

At that point I should have the hang of it and figure out how to keep progressing onto a regular exercise routine like I used to do which was up to 2 hours at a pretty nice heart rate and fluctuating heart rate as I go.

He thinks it should take a few months to get back to running a few miles. It may take some time (no idea) to get back to my 6 days per week for an hour or two schedule. But I don't care! As long as I can feel normal again.

No doctor could yet tell me if/or how long this headache issue will continue. HOwever, he seemed to think that by one year I should be back to 100%. He did comment that the headache could be the one symptom that persists for some time.
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Old 06-08-2011, 10:00 AM #2
Mark in Idaho Mark in Idaho is offline
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So... Who is this leading concussion expert?
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Old 06-08-2011, 10:37 AM #3
pcslife pcslife is offline
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freezerdoor : What is your Elavil dosage? What major symptoms did it help with? I have been on 10 mg on and off for 2 years and didn't help me with the major symptoms - dizziness, facial pain, low headaches and fatigue. Wondering I need to increase my dosage.

You concussion specialist exercise plan seems like a lot better than going on the medicines route.
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Old 06-08-2011, 10:48 AM #4
freezerdoor freezerdoor is offline
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I don't really want to say since I wasn't really supposed to be accepted as a patient. I just knew someone who knew someone. I don't want to cause any problems. This site is very well SEO ranked.

I'm taking 10mg a day and it's knocked out fatigue, headache, and low tolerance for mental stimulation. My headache is constant and sharp in one spot. Doesn't move, and never lessens.

I think everyone is different though. Just my story. Elavil may not help everyone of course.

My neurologist gave me 25mg prescription but I didn't need it and made a decision to start small (1/4 of a pill) and keep taking more until I felt better. 10mg was the sweet spot for me. 25 would make me incredibly drowsy to the point of ridiculous. But I weigh only 108 lbs.

Last edited by freezerdoor; 06-08-2011 at 11:19 AM.
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Old 06-08-2011, 11:35 AM #5
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Thanks freezerdoor. I do have all the symptoms you have but 10 mg didn't help. My headache is in between eyes, top of my head and around my eyes. Wondering I need more dosage? When I took 25 mg in the beginning it sure knocked me out and made me groggy and sluggish so I cut down to 10 mg. May be time to go up a little bit? I weigh 155 lbs.
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Old 06-08-2011, 11:57 AM #6
freezerdoor freezerdoor is offline
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Unfortunately, I don't know the answer but under a doctors supervision, it's worth a try. Also, there are other drugs to try. My doctor said if this didn't work, there were about 4 others to try, topomax, etc. I got lucky with the first one. May be try another. I am very anti-drugs but in this case I've come to believe it was the right thing for me.
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Old 06-08-2011, 01:15 PM #7
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I used to be anti-drug and not any more as long it helps. I may try Topomax next before going up on Elavil. In my case doctor's supervison seems to be a joke. I have to make my own decision in many cases. I will be seeing a new Neurologist in next few weeks. I expect nothing from him other than writing prescription for the meds I ask for.
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Old 06-08-2011, 03:15 PM #8
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Thanks for sharing this information freezerdoor, very helpful + an encouraging prognosis. Good for you for taking the initiative to meet with the specialist.
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Old 06-09-2011, 12:35 AM #9
Mark in Idaho Mark in Idaho is offline
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One of the benefits of Elavil is it can help with insomnia. Getting good sleep can greatly reduce all of the symptoms freezerdoor mentions. But, to get good sleep, the insomnia and other sleep disturbances must not be caused by sleep apnea. If the subject has sleep apnea, no amount of Elavil will help.

So, as others have said, your mileage can vary.
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Old 06-09-2011, 10:14 AM #10
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I believe that Mark! I never in my life have had sleep issues and do not now with PCS, but Man, I think I'm sleeping more soundly with Elavil than what is humanly normal. : ) It's definitely sleep like a baby.
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