Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 06-20-2011, 01:57 PM #1
freezerdoor freezerdoor is offline
Member
 
Join Date: Apr 2011
Posts: 185
10 yr Member
freezerdoor freezerdoor is offline
Member
 
Join Date: Apr 2011
Posts: 185
10 yr Member
Default headache from PCS

I hear a lot of you talking about headaches from PCS. The way you describe them, they come and go. Mine has been there since the moment I hit my head and has not lessened or gotten worse. Does anyone have this?

I have to admit, it did change a bit in the beginning. It moved around and my head tingled, etc... but this one pain that has lasted, has been there since the beginning and has not changed. It's a constant grating feeling on the very top of my head. Right around the area of the corpus collasum (or however you spell it!) I sometimes feel pressure in the back of my skull but not as much as the pain at the top which is constant. Constantly there for 3 months now.

Thanks.
freezerdoor is offline   Reply With QuoteReply With Quote

advertisement
Old 06-20-2011, 02:48 PM #2
pcslife pcslife is offline
Member
 
Join Date: Sep 2009
Location: Washington D.C. metro area
Posts: 300
15 yr Member
pcslife pcslife is offline
Member
 
Join Date: Sep 2009
Location: Washington D.C. metro area
Posts: 300
15 yr Member
Default

I have it constant for 2 years mostly on forehead, above and around the eyes. Sometimes the whole face. Only the intensity varies from dull to severe. Also my head always weighs like I am carrying a cinderblock on my head. Elavil doesn't do anything for it and tried different anti-depressants, tylenol, ibuprofen, migraine meds etc.,
pcslife is offline   Reply With QuoteReply With Quote
Old 06-20-2011, 03:04 PM #3
freezerdoor freezerdoor is offline
Member
 
Join Date: Apr 2011
Posts: 185
10 yr Member
freezerdoor freezerdoor is offline
Member
 
Join Date: Apr 2011
Posts: 185
10 yr Member
Default

Thanks, helps to know it's possibly NORMAL! Thankfully elavil gets rid of it, but I lessened my dose to see if it's still there.... YEP! It sure is.
freezerdoor is offline   Reply With QuoteReply With Quote
Old 06-20-2011, 06:26 PM #4
res5562965 res5562965 is offline
Junior Member
 
Join Date: Jun 2011
Location: Georgia
Posts: 44
10 yr Member
res5562965 res5562965 is offline
Junior Member
 
Join Date: Jun 2011
Location: Georgia
Posts: 44
10 yr Member
Default

Quote:
Originally Posted by freezerdoor View Post
I hear a lot of you talking about headaches from PCS. The way you describe them, they come and go. Mine has been there since the moment I hit my head and has not lessened or gotten worse. Does anyone have this?

I have to admit, it did change a bit in the beginning. It moved around and my head tingled, etc... but this one pain that has lasted, has been there since the beginning and has not changed. It's a constant grating feeling on the very top of my head. Right around the area of the corpus collasum (or however you spell it!) I sometimes feel pressure in the back of my skull but not as much as the pain at the top which is constant. Constantly there for 3 months now.

Thanks.
I have never had headaches until Jan 2010 and it started with the clicking noise in my head. Then, It was a continuous pain in a specific place in my head, a pressure pain like someone had their fist inside my head pushing to the top of my head, mine on the left top.I also experienced numbness in the left side of my face. I was diagnosed with Chiari I Malformation 11/2010. I then had a MRI with a study of the flow of Spinal Fluid and that is when I was also diagnosed with Arnold's Chiari 11/2010. My Chiari was causing my spinal fluid not to flow and causing the pressure in my head (Arnold's Chiari) Immediately 11/2010 they put a shunt in my head to let the fluid flow instead of being trapped in my head (immediate relief). It took almost a year to get the correct diagnosis and a different doctor to diagnosis it correctly. The shunt relieved the pressure pain but did not relieve all my symptons. Pain when I sneezed, coughed, or gagged. That was from the Chiari where my "brain tonsils" were pushed through the opening in the base of my skull due to my skull being too small for my brain. I then had Chiari decompression surgery 2/2011 where they make the opening @ base of skull larger and removed a part of my vertebrae to give my brain more room. This surgery helped with the remaining pain I was experiencing. I still have to have the shunt because the aquaducts that allow flow are small and have evidently gotten smaller with age. I was 48 when all this began. It usually effects people earlier since it's a congenital condition (born with it). The doctors have o idea why it affected me at such late age since I don't remember any injury to my head.
res5562965 is offline   Reply With QuoteReply With Quote
Old 06-20-2011, 08:35 PM #5
postconcussion postconcussion is offline
Member
 
Join Date: Jan 2011
Posts: 216
10 yr Member
postconcussion postconcussion is offline
Member
 
Join Date: Jan 2011
Posts: 216
10 yr Member
Default constant headache

I have had a constant headache for 1.5 years.

Yes, it did improve initially the first few months but it has improved only so slightly after that. I would say now that I don't have 9/10's or 10/10's on the pain scale but I can still reach a 7 or 8.

It is very debilitating and similar to PCSlife's description. Increases throughout the day, with activity, stimulation, but always there.

I understand your question because I felt the same way reading these posts. People would mention having headaches intermittently and few would mention the severe constant headache that i have.

The other symptoms of my PCS pale in comparison to the pain.

Best wishes for your headache to get better.
postconcussion is offline   Reply With QuoteReply With Quote
Old 06-26-2011, 07:18 PM #6
greenfrog greenfrog is offline
Member
 
Join Date: May 2011
Posts: 378
10 yr Member
greenfrog greenfrog is offline
Member
 
Join Date: May 2011
Posts: 378
10 yr Member
Default

My headache is intermittent and more mild-to-moderate (although it typically gets worse during setbacks). But it is pesky and doesn't seem to want to go away completely. Sometimes it almost disappears for a couple of hours or more, but thus far it has always cropped up again, most often at or near the crown of my head. Sometimes it's worse in the morning, but is usually more noticeable in the afternoon and/or evening.

It also seems to be a kind of barometer for my recovery as a whole. When I'm doing better, it lessens. And vice versa.

It makes me curious about what's currently going on in my brain and nervous system. I wish I could lend them a helping hand (brain, heal thyself!), but I'm not sure if there is anything to be done, apart from the usual stuff - rest, good nutrition, low stress, etc. plus time.
greenfrog is offline   Reply With QuoteReply With Quote
Old 06-29-2011, 07:38 AM #7
Eowyn's Avatar
Eowyn Eowyn is offline
Member
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Eowyn Eowyn is offline
Member
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Default

I just got a VERY helpful article about Post-Traumatic Headache from my local Brain Injury Association. Here's the link: http://www.braininjurymn.org/library...icHeadache.pdf

Last edited by Eowyn; 06-29-2011 at 09:05 AM. Reason: Found the link!
Eowyn is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CSF headache blaba Headache 1 06-14-2010 06:10 PM
Headache 24/7 Colours Headache 18 07-31-2009 01:44 PM
What can I do for an awful headache (MCS headache). momXseven Allergies & Multiple Chemical Sensitivity 8 08-02-2008 10:58 PM
LP Headache when to go to ER alastria Multiple Sclerosis 7 02-10-2008 07:02 PM


All times are GMT -5. The time now is 06:10 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.