Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-23-2011, 09:32 AM #1
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Eowyn Eowyn is offline
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Join Date: Jun 2011
Location: Sunset Coast, USA
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10 yr Member
Eowyn Eowyn is offline
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Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
10 yr Member
Angry Finding a specialist - super discouraged

Today it's been a week since I went off my pain meds. I've had a headache ever since. The lowest it goes is 2, and it's been up to 7 several times. I also have sciatica and between the pain from my head and my back, I'm not sleeping well which I'm sure is making things worse.

My family doctor's only other recommendation is acupuncture, which I have tried in the past without much success. My neurologist has no recommendations for pain management but would like to see me IN AUGUST "if you're still having problems." I question whether I can survive until August. Sometimes it is a struggle to get through an hour at a time.

I am trying so hard to get better and I am so frustrated. I am trying vision therapy and also spine rehab. I'm not sure if they're making things better or worse. I keep trying to find someone who specializes in post-concussion syndrome but can't find a directory or anything. Does no one exist, or do I just not know how to look?

Just feeling very down and discouraged and in pain this morning. Any positive thoughts welcome, and also suggestions on how you found a doctor who was actually helpful.
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