NeuroTalk Support Groups - 2yrs post fall and still having issues???

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)

- - 2yrs post fall and still having issues??? (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/158958-2yrs-post-fall-issues.html)

I appreciate all your responses Mark, I really do. I will look into what you have provided. I just looked into the visual clinics you spoke of, and like what I read. I am going to call a few of them and see what they say about my situation and if I can be helped.

I am just afraid that they will bring back all my symptoms and worsen my eye complications like this schmuck in Minnesota did! I did simple eye exercises such as follow a pen and pointing a pen and moving it towards your face and back out away from your body that sparked major nervous system complications. Heart rate and complete sensitivity to light, movement, Nausea, dizzyness, etc.

After educating my self on how the neck can cause many symptoms I can tell how extremely tense I am. When I drink alcohol(I can tolerate it now fine after 3 years of not drinking) I feel best when I drink. I feel energetic, more fluent and mobile, and less pain in my neck. More cognitively sharp, and motivated. I know I should not be drinking, just stating how it helps.

I smoked marijuana for 2 years as it helped all of my symptoms throughout my pcs before I went to the PT in MN, and literally feel it saved my life. Nausea, dizzyness, depression, stress of symptoms, etc were controlled. I cannot tolerate it now as it locks my neck up and gives me more pain, which I do not understand.

Visual problems are the main problem now, along with not being able to exert over a long period of time. I never had major problems with tracking or reading even during the beginning of PCS except for sensitivity to light and motion sickness in the car and what not, but after these eye exercises and upper cervical disasters it went to hell. Unbearable at times.

Eowynn, I went to the U of Iowa for a Neuro Opthamologist appointment last summer, which essentially was the same as a regular optometrist and that ****** me off. I had a .75 prescription given after. They said nothing was wrong, and had no idea what was going on when my eyes were absolutely painful and felt as if they were being pulled into my sockets.

I really feel that alot of my symptoms are muscle related, and this is why I going to try MMTR in canada as I feel I am runnning out of options. I am going to be 24 in april and only want to work and support my self. I was an athlete all my life and have great pride in work ethic and to still not being able to work is the most frustrating thing.

I really appreciate you guys taking the time to read my saga and provide information and suggestions.

Quote:

Originally Posted by Mark in Idaho (Post 950169)

If the prolo is going to work, it should have been showing good improvements long ago. The PRP should show improvement in about 6 weeks since 6 weeks is the normal heal time for tendons and ligaments.

There are plenty of deep tissue laser light therapies that should help with tendon/ligament healing. Check with local Chiros and some PT's. There are even at home systems that use a lower intensity light therapy to encourage healing.

There is a researcher who specializes in whiplash trauma at Oregon Health and Science. His name is Michael Freeman He may have a recommendation for you.

I can understand how a PT could mess you up. Many PT's get too focused on range of motion exercises. I am surprised a PT was doing eye exercises. Have you had a vision assessment? Eowynn has experience with vision work.

I have to be very disciplined with how I turn my head and neck. I have had to be careful for 10 years or more. My left occipital condyle pops and sticks. If I let inflammation set in, I can be a mess.

I learned that doctors and PT's only help but can not cause improvement alone. I need to be 75% of the process.

Have you been assessed by a physiatrist? The right one can be a lifesaver.

My best to you.

Quote:

Originally Posted by muddyriverrugby11 (Post 950111)

I agree 100% with companies taking advantage of people, as this world revolves around money! It's BS that many do this, with slim chances of relief for the individual, but continue to tell them they will see results when alls they want is another check.

Your right when you say upper neck cervical/brainstem Mark, damn your good, haha. I was actually ok for awhile, after the initial year or two of chronic PCS symtpoms, and then did U at Buffalo's gradual exercise program. Which, I could run twice a day eventually again.

After I saw a upper cervical chiropractor, which after a few treatments I felt much better, and headaches went mostly away and energy levels came back. However, this guy ended up correcting me wrong after I noticed my neck keep going out, and keep locking up/stiffness and became very painful.

I then went to a PT in Minnesota, who had helped a major league baseball player with post concussion by doing a variety of eye exercises along with some neck exercises if you will. I went there, he said he could help me and the result was a complete return of alot of my symptoms, and my eyes could not take TV, computer, or pretty much anything. 6 weeks I sat in a dark room again, and you know how frustrating this is, especially when I thought I had gone through the worst.

I have currently been going to Cherry Hill, NJ with Dr. Greenberg for over a year now.... receiving prolotherapy/PRP injections in the base of my skull and cervical spine. The problem is I cannot afford to keep flying and receiving expensive treatment that insurance does not cover, but what choice do we have ya know? I have seen improvement....Slow but improvement none the less. I can say Im quite a bit better now, but still know I could improve quite a bit more.

My eyes still bother me, but have gradually gotten a bit better over around 1 1/2 years....Fatigue always, not dead tired, but no spark of life. Heart rate fluctuates sometimes still, breathing difficulties(especially laying down or on my side), and of course exertion is still a problem with your head feeling like it is going to explode, haha.

Hi... I am wondering if you saw Jon Groves in MN? I am seeing a colleague of his now at HCMC in Minneapolis praying for a miracle. I am 6 months in but constantly feel off balance, light sensitive, dizzy, and nausea that is unbearable. This is honestly a living hell. I am afraind I will never get my life back.

Sara...you will get your life back! Mine is SLOWLY coming back (16 months and counting.) Living hell is how I have described it too. Would not wish it on anyone....(maybe my boss for a day so he can stop thinking I am a slacker:)
Hang in there!

After 4 months at mmtr in guelph ontario, and with headaches gone and nausea disappearing, but neck and shoulder pain still an issue, my daughter decided to get a deep tissue massage locally over the Christmas break, and not at mmtr. Symptoms came back with a vengeance. Nausea and extreme neck and shoulder pain, dizziness all came back. The setback was very regrettable. Mmtr getting us back on track again but it takes time. To manage pain in between sessions, we bought a body back buddy to release trigger points. Mmtr is not a miracle cure, but if you are desperate for relief from your symptoms, then their methods truly work. Also started using purica recovery and pain is getting better. It is very expensive and only used it for a month now but it seems to be working.