Hi, i'm new here, but not new to mTBI/PCS.

I fell hard on left side of head while playing baseball 2yrs ago, had mTBI and lucky me... PCS for past 2yrs. Classic symptoms for long time, but now vertigo/nausea have stuck around with daily 'kicks', and headaches few times/wk. Grocery stores are hell, immediate trigger.

Neurologist/optometrist/fam doc says, everything looks normal, just have to wait it out, bruising takes time to heal. But seriously, 2yrs?? Its been getting worse lately too.

Not sure if anyone can suggest next steps? I saw a thread on behavioral optometrist? what else?

Thanks for your help!

Hi I see that you are from the Toronto area. There is a specialized clinic located in Guelph that has had great success treating PCS. The clinic is called MMTR Health Inc. I encourage you to check out their website and some of their youtube videos dealing with Post Concussion Syndrome!

thx! I will check it out

I completely understand your pain about grocery stores! As much as they trigger me, it's one of my few times during the week to "get out of the house" without seeing a dr. or physical therapy, vestibular therapy, etc.

For me, the whole environment of the grocery store is overwhelming. So I've found some ways to "tone down" the environment.

1) I always wear ear plugs. They filter out most of the background noise, (especially the squeaking and grinding of the cart wheels), while still allowing me to have a conversation with my boyfriend as we shop, or with various workers at the store. The ones I have are sportsmen's ear plugs that fit inside the ear, (not the big bulky headphone looking ones).

2) I wear my sunglasses, at all times. And yes, people look at me oddly, but it really turns down the flourescent light overload. Knowing that I can go to the store and go home relatively unscathed, is worth all the weird looks!

My daughter is currently receiving treatments at MMTR in Guelph for post-concussion syndrome. First 3 treatments she felt worse, not better, but by the 5th treatment, her nausea was almost completely gone. What a relief that was for her. She continues to get better but it may take some time depending on the symptoms. Her headaches are better, she has more energy, but we are still working on the noise and light sensitivity, and concentration problems. We see lots of progress. MMTR really works!

After my TBI, I found that I had torn an eye muscle that the eye needs for positioning sight. I have now been fitted with a prism in my lenses that helps my eyes work together, a lifesaver! Before the change to my lenses, I was wearing an eye patch to occlude the vision in the affected eye. Also, you might have vertigo from a positional problem dealing with the calcium crystals inside the ear canal. Might be a help to see the ENT Doctor.

Frogrdoo, Tim and Paola,

Welcome to NeuroTalk. What a concentration of both needs and treatment experiences in one short thread.

I am very interested in the treatments done at MMTR.

Please introduce yourselves and tell us how we can help you. There are plenty of experienced people here.

My best to you all.

I don't mean to be overly wary but I'm noticed that a poster comes on every so often with a "testimonial" to plug for the Guelph MMTR clinic (usually he or she has a minimal history on NT). I would like to see some clear evidence that whatever they have on offer works (frankly, after checking out their website, I'm skeptical).

Frogrdoo, two of the best concussion specialists (medical doctors) in Toronto are Dr. Charles Tator and Dr. Karen Johnston. Both are highly reputable. Checking in with one of them might be a good starting point, although I'm not sure they will recommend much more than the standard treatment of physical and cognitive rest. There is an osteopath in Dr. Johnston's clinic named Tanya Dei Tigli whom you could consult. She has a particular interest/background in treating concussion patients.

I found this about MMTR. Sounds like they can cure just about everything. ??? MS? They show no research supporting their claim to treating PCS.

"MMTR Health Inc. is a specialized clinic, which is redefining physiotherapy treatment through innovative technology and compassionate care. We provide enhanced rehabilitation and performance outcomes using our unique and proprietary treatment model –MyoWorxR.

The MyoWorxR treatment model is a comprehensive approach focusing on the causes of your chronic or recurring pains, symptoms, injuries, diseases or neurological conditions. The multi-level approach is guided by our team of health professionals: Registered Physiotherapists, a Cardiovascular and Neuromuscular Physiologist, a Registered Massage Therapist, Certified Kinesiologists and a Physiotherapy Assistant.

MyoWorxR has been developed by Cardiovascular and Neuromuscular Physiologist, Terry Moore B.Sc., M.Sc., PhD (abd) through more than 20 years of evidence-based clinical practice and research. We have demonstrated excellent clinical outcomes for many referred patients with various conditions that have not responded well to conventional therapies.

At MMTR Health Inc. we strive to educate our patients on the reasons for their symptoms and to teach you how to relieve pain, increase function or enhance performance. When you come to MMTR Health Inc. for treatment, you will come to get better, not come back for ever!
Specialties

physiotherapy, massage therapy, chronic pain relief, mutliple sclerosis, concussion treatment, fibromyalgia, low back pain, neurological conditions, repetitive strain injuries, Sciatica, health and wellness, musculoskeletal conditions "

Buyer beware.

I live north of you in Barrie. I see a physiologist at the toronto rehab center, but to be honest, he hasn't been much help other than to offer me meds which doesn't work for me since we are also actively trying to conceive. What HAS worked for me is massage therapy... I've discovered that the muscles in my neck are quite sore, and injured. My RMT is also a cranial sacral therapist... I don't know if what she is doing in regards to cranial sacral treatment is working, but I can tell you, within a few days of massage/treatment, I feel MUCH improved! during the c/s treatment, I find myself drifting off, which is very unusual for me, as it usually takes me a VERY long time to fall asleep during the day....

I would highly recommend an RMT that specializes in PCS.... at the very least it couldn't hurt, and hopefully it would help you as much as it has helped me!