Sounds like he could be suffering from OCD. It does not sound very different than perseveration. It could be an OCD loop of the feeling of needing to have a bowel movement.

I have OCD. I get stuck on mundane thoughts and actions. They rarely make any sense. I can see how his perseveration could be such an OCD symptom.

Did the doctor give any ideas about how to treat perseveration or such behaviors?

Not much good to give it a name but nothing more.

There are many meds that are effective with OCD. Maybe a neuropsychiatrist would be worth a consult.

I have recently read about something called Neurofeedback. Does anyone have an opinion or experience with this as it relates to helping in TBI's? I am looking for anything I can find to help my son recover from his TBI he experienced in 8/2010.

There are two different types of therapies called neurofeedback. There is volitional neurofeedback and non-volitional neurotherapy.

Non-volitional neurotherapy includes things like LENS, ROSHI and pROSHI, EMDR, and some other light oriented 'therapies.'

Volitional neurofeedback is a subset of biofeedback. The patient is making conscious efforts to influence the brain waveforms. There is far more research supporting volitional neurofeedback than non-volitional.

Most non-volitional forms are limited by FDA regs to only help with relaxation. They are not approved for treatment of any medical/neurological disorder.

There are some who have benefited from therapy provided by Dr Walker in Dallas, Texas. It can be expensive and time consuming. His web site is at http://www.neurotherapydallas.com/index.php

The non-volitional neurotherapies have caused problems for some who have tried it and posted their experiences here. Be very careful if you are considering non-volitional neurotherapy. It should be under an MD's supervision.

What symptoms are persisting with your son? 14 months is not uncommon for persistent PCS symptoms. I would not consider the bowel and eating as directly PCS. I would be more concerned about a brain stem/neck or even upper back/spinal injury.

Have you looked into the hormone/thyroid and such with blood work?

The primary issues my son has are short term memory, speech, and and OCD/perseveration as it relates to the bathroom and eating all the time.

He is 16. His injury is 14 months out. His name is Mark. When he started rehab he could not move anything but his left arm. He could not talk or walk and could barely respond to my voice.

He now walks, talks, eats, and goes to school. We feel very lucky but want to help him continue to recover and improve. A video of his progress can been seen on Youtube by searching Mark's Journey TBI.

We feel he is still going to get better just, of course, do not know how much. He was a college level recruited Lacrosse player. WE know that won't happen but we want him back as much as possible. Physcially he is very strong and he is able to run a little bit now.

I have 4 other kids (18 year old quadruplets) who want their brother back as much as I do.

Reading some of the posts on this forum - I can tell how lucky we are so I feel badly for others. I just desparely want to help my son.

Thank you.

I had a TBI and tried Neurofeedback in the beginning (in 2 months after my TBI I think). I was treated by Dr. Mary Lee Esty in Bethesda, Maryland very close to NIH.

She has plenty of experience treating TBI patients including soldiers returning from war.

It did help me but the effect didn't last longer. Immediately after the treatment I always felt my symptoms went down including dizziness, headache etc., and even got some energy.

Anyways I did it too soon when my brain was still struggling. I am thinking about going back now after my vision therapy (2.5 years now).

They alter your brain waves so it is intrusive in some ways. Some in this forum reported seizures but people with uncontrollable seizures also benefited from it.

It is expensive and insurance doesn't cover it.

Following is the link:
http://www.brainwellnessandbiofeedback.com/

Beware the adverse events seldom mentioned with passive or non-volitional neurotherapy. Here is one such event http://www.accessdata.fda.gov/script...FOI__ID=722529

Mary Lee Esty, Ph.D. is only researching using the Flexyx system for mTBI.

It is not approved for treating mTBI. In fact, it is not even listed with the FDA. Likely, it has an exempt status like the more recent LENS and ROSHI systems meaning the manufacturers convinced the FDA that there is very little likelihood if injury or adverse events. Essentially, the FDA says that since these devices claim to do no harm, there is no reason to regulate them

Unfortunately, the clinics that use these systems often fail to report adverse events due to their patients stopping the treatment.

They are not to be promoted as a treatment for mTBI. Only to be used as a relaxation enhancing method.

There is a cadre of therapists in the New York to Washington corridor trying to sneak passive neurotherapy past the FDA. They do not want to be subject to scrutiny by the FDA. This is why they try to call it biofeedback or neurofeedback to piggyback on the exempt biofeedback systems of the 1960's and 1970's. They used to publish their newsletters online and explicitly mentioned this agenda.

What meds do you believe are the best to treat OCD/Perseveration? Mark is on Zoloft but is on the max dose. He also takes concerta. Would there be a more effective med to take as a combination? Mark's doc keeps insisting the zoloft is the best for his situation.