Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-19-2011, 09:26 PM #1
Kelley84 Kelley84 is offline
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Join Date: Oct 2011
Posts: 23
10 yr Member
Kelley84 Kelley84 is offline
Junior Member
 
Join Date: Oct 2011
Posts: 23
10 yr Member
Default PCS and Doctors

I am now 15 months post injury and am still learning to adjust to the new me.
My biggest issue is the doctors that I have been have not really diagnosed me with post concussion syndrome. Here is my story:

I was in a car accident in July 2010 in which I sustained a concussion. About 5-7 days after the accident all of the symptoms hit me hard. I would zone out, have daily migranes, anxiety, depression, a loopy/dizzy feeling, short term memory problems, and like most could not handle anything that would overstimulate. My family doctor sent me to a neurologist who did at ct csan and eeg both turned out normal.

My first visit with the nurologist he drilled me about having a lawyer and suing who hit me.( At this point I had not even considered any legal assistance I was just trying to find out what was wrong) The visit ended up with him telling me that I have a concussion with post concussion depression and migranes. But at this point I was breast feeding my 10 week old baby so I did not want to get on medication.

After my problems did not improve and I went back to my family doctor who then sent me to a psychologist. The psychologist did help but after a month or two I realized that I could no longer function with the anxiety and I had to get onto medication and stop breast feeding. So I went back to the neurologist. The neurologist just told me to take some vitimans b2 and magnisium and I would be better by the time I saw him the next time.

My psychologist then sent me to a psychiatrist from medication. I was on a variety of meications but ended up with zoloft. At this time I needed Short term disability paper work filled out and the Psychologist said his job is to write perscriptions and not fill out paper work. I was really upset so that was the last time I saw him.

I then could no longer handle the hastle of everything so I went back to work. I never made it more than 20 - 25 hours a week and that was miserable. My memory caused me to make so many mistakes and I could not remember much that they told me. I went back to the neurologist and he just told me that I was going to be fine by the time I saw him next but did perscribe me medication for migranes. No one would address why I could not remember anything. I cant remember everything I have been on but I finally found topamax that works for me.

Then I had enough I new more was wrong than what everyone was telling me so I found someone to give me a neuropsychological test. The results said that there was moderate problems in all of the areas that I knew I was having problems with. (memory) In the report he diagnosed me with complex post concussion syndrome. Complex because of multiple concussion in highschool sports.

Work had gotten so bad I could not take it anymore and I had a breakdown. My doctor wrote me off work again, but becuase it was my family doctor my STD kept getting denied. I then had another check up with the neurologist and gave him an update of everything and he after asking about a lawsuit and lawyer told me that there was nothing wrong with me and to go back to work.

So here I am now I found a new psychiatrist who through medication has improved my anxiety/depression. She diagnosed me with major depressive disorder recurrent type. Not sure that I agree with that but who knows. So now she says that she can not help me other than the anxiety depression issues. So she want me to go see an ENT doctor for my loopy feeling and headache after exercise. So I asked her if an inner ear problem would cause Short term memory problems and don't all of my symptoms fit more under the post concussion syndrom diagnosis. She then told me that the concussion should have been cleared up 3-4 months post injury and if that if I want to beleive it is from the concussion than I can but she does not think it is.

At this point I am so exhausted I wish I had a doctor that would just tell me what it is for sure so I can start accepting it and moving on with my life.
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