Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-26-2011, 08:25 PM #1
Kelley84 Kelley84 is offline
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Default Long term effects of PCS and disability

I need opinions because my lack of doctor support. Before my last concussion I was in college, working full time, and on the waiting list for a degree program to become an Occupational therapy assistant. I had finished all of my basic classes during the 2 year wait list period so I just have the main OTA classes left. I was supposed to start the program this fall but I deferred it a year due to the PCS. I spoke to the neuropsychologist and he said that based on my results he had major doubts that I would be able to learn and retain the information.

Now I have until early next month to commit for the program starting next year. I am currently in the application process for SSDI. And I know that as of right now I would not be able to do or handle school. This decision is really hard because I will not be allowed to defer again. So I feel like I am choosing to be disabled or choosing to go to school and have a career. One of my biggest problems in memory. I am 15 months almost 16 months post injury. What are the chances for memory improvement now and has anyone experienced any major improvement when over a year post injury.
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Old 10-26-2011, 09:07 PM #2
Mark in Idaho Mark in Idaho is offline
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First point, You should be allowed to defer for another year. This deferment would be considered a "Reasonable accommodation for your disability."

Go ahead and follow through with the SSDI process. SSDI will require that you be assessed in 3 to 5 years to see if you have improved. You can always become non-disabled. Until then, you will have some breathing room to work on the academic skills you will need for the OTA program.

You can also consider getting degreed in Social Work so you can become a case manager for people with TBI. It can be just as productive as the more hands on OTA. There are things a Social Worker can do that fill in the voids left between OT, PT, RecT, etc.

You experience with mTBI will be a great asset to your career.

If you get approved for SSDI, you can still work and make up to $1000 per month. This could be a way to take a slower path to the career you want.

My best to you.
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Old 10-26-2011, 09:40 PM #3
Kelley84 Kelley84 is offline
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Mark thanks for your input but you did not really answer my question. I am aware of my options if I could do social work than I could do the occupational therapy(which is what I wanted to do for the last 10 years). I really just want to know about improvement for people over a year post injury and how significant it is. Thanks for any input.
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Old 10-26-2011, 10:04 PM #4
Mark in Idaho Mark in Idaho is offline
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The statistics say the longer symptoms persist, the greater the likelihood they will be permanent. There is not an adequate methodical following of persistent PCS. Most patients fade away in frustration. The NFL has the best research and even that is very poor.

Some point to the idea that much of the improvement in the second year is not due to spontaneous recovery but rather a result of the subject learning coping mechanisms and work-arounds to make up for lost abilities.

Keep in mind that the brain takes 20 or more years to mature in its functions. Even if there was a magic neurogenesis pill, the brain would still need to relearn things that took 20 years to learn the first time. Some areas of the brain only develop in their specific function during specific times during the human growth/aging cycle.

It appears to are looking for the probability of getting better physiologically, hoping to make some educated decisions. When I was going through college, I ended up deciding things from a pragmatic point of view, basically, one day or year at a time.

I wish I had better information for you.

Did the NP tell you what the results were that led him to his prognosis? There are many ways to skin a cat. Developing the work-around skills needed for your limitations can restore you to a greater level of functioning that many believe possible. I function far better than my NP Assessment says I should.

Feel free to PM or email me if there are NP Assessment results you want to discuss in private. I've had 3 NPA's and have research the meaning of most of the tests so I could better understand what my brain is and isn't doing correctly. The academic explanation does not always correlate to the experience of the subject.
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Old 10-27-2011, 09:04 AM #5
Kelley84 Kelley84 is offline
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Mark,

Thank you again for the response. I have to say the my test results stated exactly what my problems were. With all of the headaches, anxiety, complete inability to handle stress and depression aside it is like I am searching for something for something in my head and there is nothing in there. My memories are just blank. I can however remember things from before the accident really well.

I just found out today my SSDI was approved on the first pass through so hopefully the more stress I get rid of the better I will be.
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Old 10-27-2011, 10:19 AM #6
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Unhappy Been there too

Hi Kelley84,

My TBI happened in August of 2009 and I was set to resume classes in September. That went on hold until the Spring term of 2010. I thought I could handle it after taking the first term off.

In the spring I paid my tutition (over $3000 out my own pocket) and started classes again. I struggled for eight weeks to keep up with the work, but it became impossible.

What came easy before, kept me stressed and frustrated. I would study for hours and I just couldn't retain the info.

I felt as if I had just thrown three grand away into the wind and felt like a total failure. In hindsight, I put too much pressure and expectations on myself too soon.

I wasn't ready and I'm still not. My neuros have also told me that it's likely that I will always have problems retaining any "stress" related info. They've signed off on permanent disability.

Just my opinion from my experience, take the maximum amount of time you can for recovery before returning to school...If your still having major issues after that, you may have to re-evaluate your goals...I know it sucks but wasting so much time and money only to end up back where you started is just so dis-heartening.

I wish you well.
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