Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-24-2011, 02:25 PM #11
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Quote:
Originally Posted by Mark in Idaho View Post
I am with you on the damage caused by alcohol. The sugar studies are anecdotal and have not been scientifically studied. I believe there is value to moderating sugar intake but not to the level some suggest. The sugar in an apple or carrot is very concentrated, too. The young growing brain is more susceptible to the BDNF effects of sugar since the brain is still growing and maturing.

Please tell us more about your son's concussions and recovering. As I said, adolescence is a tough time for a concussion injury.
Hi Mark:
Yes, an apple, carrot and many fruits contain natural fructose, but the fiber eaten from the fruit allows your body to take up the sugar at a slower pace.

My son sustained his first concussion in May, 2010 while away at a retreat - falling full force backwards onto his head. We were never called. Six weeks later while playing badminton, he fell to the ground returning a shot and thus began full blown post concussive symptoms. Two months later, he fell onto his forearms playing and he was almost back to the beginning with symptoms. In Feb 2011, he had a door opened into the occipital part of his head and his symptoms were incredible. His visual processing and auditory symptoms were exponential. He missed a month of school and also suffers from occipital neuralgia as well. Without going into additional detail, he still suffers from extreme visual and auditory processing difficulties, word finding, etc. He is very brave and courageous to be living with with adult pain and symptoms at an age where he should be living large.
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Old 12-27-2011, 10:05 PM #12
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I continue to rack what's left of my brain, but it was so long ago (35 years ago). The chronic fatigue, headaches, muscle pain. The symptoms may have started immediately after the accident, or may have not manifested for a year post. I really don't remember. What makes it tough, besides the memory defect, is I sort of grew up with that "real men don't discuss their health problems" attitude. So I myself was in denial of PCS symptoms for many years.

I do know it was not longer than a year, since shortly post-trama I started on a pre-med degree. I held straight As for two semesters, then eveything went to hell.
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Passenger in auto wreck, mTBI:
  • CHRONIC FATIGUE SYNDROME
  • MYALGIA (generalized muscle pain)
  • MIGRAINE HEADACHES
  • INSOMNIA
  • ANGER & SELF-CONTROL (going "Frontal")
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Old 12-28-2011, 03:30 PM #13
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My symptoms started to show up about 3 weeks after the accident. Of course, by that time, I was off meds and I could tell I felt different. I was constantly fatigued. I also forced myself a little too much. All this time passed and me without a neurologist. Only recently did I get one. August 17th was the day of the accident.
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Old 12-30-2011, 11:06 PM #14
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Originally Posted by HeadStrong View Post
Aside from an immediate headache, blurred vision and nausia, the rest of my symptoms gradually started the next evening. For the first week I felt as if I was on some really strong cold medicine (very spaced out). I didn't actually know I had a concussion for 4 days after the accident. The Emergency Department said contusion, the work doc (4 days later) diagnosed concussion. The hard part was that no one prepared me for the cascade of symptoms that I could expect to come. I thought I was going crazy with each new issue. Strange how you can feel so unlike yourself. Glad I found this place!
This sounds so much like me in the first couple of weeks...

One of my main symptoms was a lack of awareness, so in the months that followed, I lived in a horribly confusing, frustrating, and distressing world; but I couldn't process what was going on - or even that it was abnormal. I was only aware of each moment as it was happening. "Waking up" began to dawn about 3 months in.
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Knocked heads with my brother (October 2010). Don't worry... he's fine!
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Partial list of symptoms: (Physical - noise/light sensitivities, balance problems, headaches, sleeplessness) (Mental - brain fog, severe lack of awareness, difficulty expressing ideas - or thinking in the first place!, struggle with simple problems) (Emotional - anger, depression, inability to handle/control emotions) (Social - generally inept - thanks to everyone for allowing me to "practice" some social and communication skills on this forum)

"The person in the mirror wasn't me and I didn't like her either.
But, I looked beyond the mirror and slowly became the person I am." ~ Sandee Rager
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Old 01-24-2012, 01:42 AM #15
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Thumbs down Alcohol...

It's amazing how little the doctors and nurses at the hospital tell you before they discharge you. The discharge nurse didn't even give me a checklist when leaving making sure I didn't do the things which can prolong recovery. Especially alcohol. It's crazy.
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Old 01-24-2012, 10:44 AM #16
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The doctor that discharged me from the hospital told me not to drink for 4-6 weeks. I started drinking regularly after 6 weeks, because I thought I was all better. Then in September I got smacked in the face with symptom after symptom.

I believe that drinking so much after that 6th week is what brought on my symptoms and prolonged my recovery. Wish I would have never started drinking...
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-24-2012, 11:03 AM #17
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My symptoms appeared within an hour of my injury...which was very, very frightening for me. Of all I can recall about that day, this is what I would like to forget about the most....
I began to feel dizzy, then I was speaking...but it was if I was listening to someone else because the words didn't make sense..."word salad"...
When I realized it was me, I began to cry...
That lasted for months...one day, I felt like I had just "woken up"...that was 2months after my injury...this has been very rollercoaster like for me...when I feel good, it's good (not great, my deficits are still present though somewhat manageable with rest)...when I'm bad...well, it's awful...nothing seems to alleviate the symptoms...not even rest...
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July 21, 2010, one month after starting my new job I sustained a concussion after standing up quickly from a sqatting position and subsequently being impaled by the corner of a metal filing cabinet in to the left side of my skull. Dx. Post Concussive Syndrome.

Female, 45 years young
.
Mom of 3 boys (22,19,10)..Registered Nurse 16 years
.


Symptoms: Vertigo, difficulty concentrating, unable to multitask, fatigue, severe transient headaches..severity and location change frequently, anxiety, PTSD, tinnitus, "electrical like sensations" across the top of my head, "hot flashes", numbness and coolness to hands (worsens in A/C), very poor recall ability, processing and comprehension, difficulty finding words and completing thoughts, short term memory is awful.

~I will never give up on myself~

~I run because I can. When I get tired, I remember those who can't run, what they'd give to have this simple gift I take for granted, and I run harder for them...I know they would do the same for me <3
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Old 01-24-2012, 11:08 AM #18
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I have a similar story regarding alcohol. I think Mark said that there is actually not much formal evidence that alcohol is harmful - sure enough a big, expensive and up to date neuro rehab book I am currently reading does not even have alcohol in the index, despite going into great detail about the effects of all sorts of different substances, foods, hormones etc.

If it is really the case that people like us aren't being told about this because of a lack of research then some needs to be done pronto, since alcohol seems to have had such an obvious and hugely detrimental effect on so many of us, which we have had to work out by trial and error and to our own great cost.
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mTBI March 2011, spent around a year recovering.

Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy
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Old 01-24-2012, 11:14 AM #19
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Quote:
Originally Posted by JulieRN View Post
~I will never give up on myself~
Like it! Sorry to hear about your troubles, hang in there...
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mTBI March 2011, spent around a year recovering.

Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy
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