Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-01-2012, 10:50 AM #11
GilbertLiddell GilbertLiddell is offline
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Quote:
Originally Posted by pamelarae View Post
I have had PCS for over three months now. This is my first concussion and at the time of the injury I thought it was pretty minor. Little did I know that I was to have dizziness, headache, eye pain and fatigue for sooo long. I actually thought I was getting better a few weeks ago, but recently have felt worse and was getting nervous that something else was wrong with me. It does help just knowing others are going through the same thing and that it is a normal course of recovery. I guess trying to handle the anxiety and frustration that go along with a 'relapse' seems a good idea. (I have trouble doing that!) But reading this blog does help me to try to stay positive and do what I need to do to rest and recover. Good luck to you in your own recovery.
Just thought i'd give an updated and share some stuff thats been going on for me.

Almost three months in now and i'm still experiencing dizzy spells, slight head aches and general wobbliness.

I've had a CT scan, MRI and MRA and thankfully, all came back clear.

I had thought everything had cleared up about a week ago but i've seen things get a little worse this week.

I suppose I just want to reiterate to people coming to this fourm for the first time that it seems normal for signs to come and go from anywhere from a couple of weeks to several months.

I'm positive i'll make a full recovery in time. I'm back at work full time, not doing much socialising yet but even managed a 1 hour snowboarding session last weekend as I really felt ready to exercise.

I wish everyone a speedy recovery :-)
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Old 03-01-2012, 11:55 AM #12
Ziggo Ziggo is offline
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Kinda weird, im on 3rd month since the injury, but not doing as bad as some other people even though my MRI results are terrible, though its my 1st concussion aswell. Hope it wont get worse.
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Old 03-01-2012, 01:18 PM #13
GillianGillian GillianGillian is offline
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Is it possible to have swelling several months after the accident? I had a recurrence of symptoms that correlates with being taken off of prednisone. I don't know if it is the change in meds or stress related or something else. Three weeks ago I was better than I am now...I hit my head three months ago an have been diagnosed with PCS.
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Old 03-01-2012, 02:31 PM #14
Mark in Idaho Mark in Idaho is offline
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EyeofNewt,

Welcome to NeuroTalk.

Any time there is a change such as a change in medications, symptoms can return or get worse. Prednisone effects many systems so it could be any number of effects.

Did you stop taking it abruptly or did you taper off? It is best to taper off slowly to let the body get back to normal steroid production. There can be a sort of rebound effect it stopped abruptly.

Tell us more about yourself and your injury. There are lots of good people here with lots of differing experiences.

My best to you.
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Old 03-01-2012, 02:41 PM #15
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Quote:
Originally Posted by Mark in Idaho View Post
EyeofNewt,

Welcome to NeuroTalk.

Any time there is a change such as a change in medications, symptoms can return or get worse. Prednisone effects many systems so it could be any number of effects.

Did you stop taking it abruptly or did you taper off? It is best to taper off slowly to let the body get back to normal steroid production. There can be a sort of rebound effect it stopped abruptly.

Tell us more about yourself and your injury. There are lots of good people here with lots of differing experiences.

My best to you.
Thank you, Mark.
I went from 10mg to 5 to 2.5 to nothing.
I have been off of it for a week now. I know about two weeks ago I would tell people that I didn't feel bad, I just had a lot of problems with my cognitive issues, focus, concentration, short-term memory.

Over the last week, I have had dizzy spells almost every day and pounding headaches. They have never just gone away since the accident where I hit my head, but they have not been daily in a long time.

I have also been stuttering a lot more over the last week than I had been, more like the first month after the accident. I had gotten to where I would stutter mostly when I was tired. Now I can't complete a sentence without stuttering.

Thanks,
EON (seems like my previous life was eons ago...)
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Old 03-01-2012, 04:13 PM #16
Mark in Idaho Mark in Idaho is offline
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Sounds like you need to get started on nutritional improvements so your brain can continue to heal.

There are plenty of discussions about nutritional supplements. The basics are B-12 (500 to 1000 mcgs) Omega 3's, a B-50 or B-100 complex, a multi vitamin with good potency such as GNC Mega Men or an equivalent, calcium and magnesium.

No caffeine or alcohol, artificial sweeteners, artificial preservatives, MSG, or excessive High fructose Corn Sweetener.

A single serving per day of caffeine and/or alcohol can be OK if you don't notice symptoms from it.

Get good rest and sleep and avoid stressors and excessive visual and auditory stimulation.
\
Hope you start getting back to good function.

My best to you.
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Old 03-01-2012, 04:29 PM #17
GillianGillian GillianGillian is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Sounds like you need to get started on nutritional improvements so your brain can continue to heal.

There are plenty of discussions about nutritional supplements. The basics are B-12 (500 to 1000 mcgs) Omega 3's, a B-50 or B-100 complex, a multi vitamin with good potency such as GNC Mega Men or an equivalent, calcium and magnesium.

No caffeine or alcohol, artificial sweeteners, artificial preservatives, MSG, or excessive High fructose Corn Sweetener.

A single serving per day of caffeine and/or alcohol can be OK if you don't notice symptoms from it.

Get good rest and sleep and avoid stressors and excessive visual and auditory stimulation.
\
Hope you start getting back to good function.

My best to you.
Thanks, Mark,
But what is your take on the change in condition? I am on supplements (B100s and multi-vitamin) and my nutrition is good thanks to a fresh food delivery service. I don't drink alcohol or caffine (including sodas).

Would getting off the prednisone do this? Could it be stress? The timing also coinsides with losing any source of income. I am now living off of savings which I know won't last long.

The last thing I want is for the doctor to see my condition is worse and have him say that I am exaggerating, making things up, or something along those lines. I'd be interested in your opinion or anyone else with experience in this as to what might be going on.
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Old 03-01-2012, 04:47 PM #18
Mark in Idaho Mark in Idaho is offline
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Anxiety is the worst enemy of PCS.

Did you have a change in daily schedule with the loss of income? Sleep patterns can make a big difference.

There are many of us who have the roller coaster ride of PCS with dips lasting a week or two.

I think you should try to relax, stay disciplined and try to wait this out. Day to day differences can be confusing. Week to week or even month to month trends are a better way to gauge condition.

Find something simple to do to keep busy. Then, see if you feel the same in a week or two.

My best to you.
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"Thanks for this!" says:
EyeOfNewt (03-01-2012)
Old 03-02-2012, 06:33 AM #19
GilbertLiddell GilbertLiddell is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Anxiety is the worst enemy of PCS.

Did you have a change in daily schedule with the loss of income? Sleep patterns can make a big difference.

There are many of us who have the roller coaster ride of PCS with dips lasting a week or two.

I think you should try to relax, stay disciplined and try to wait this out. Day to day differences can be confusing. Week to week or even month to month trends are a better way to gauge condition.

Find something simple to do to keep busy. Then, see if you feel the same in a week or two.

My best to you.
As always, Marks advice is very sound...!!!

I started to drink more Tea and found that it seemed to really set me back. I think one of the biggest and most important things to overcome is acceptance that these symptoms are going to come and go for an undetermined period of time, i'm trying to accept that I may be up and down for 6 to 12 months, anything less for me will be a bonus.

One more thing that concerns me, is that i've been spitting blood every morning for the past three months. Not every morning, but most. My doc says this is nothing to worry about as my blood pressure is normal but that can't be normal, i'd never done that before the accident. Any ideas?
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