Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-23-2012, 07:01 PM #1
Mark in Idaho Mark in Idaho is offline
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Default Suggestion for Newbies and those with persistent symptoms

As people post their recent issues, readers often forget the context of that poster's condition.

It would be very helpful if people would create a signature with a short list of the most problematic symptoms.

For example, xanadu (Pete) could list his need to work with his eyes closed due to extreme sensitivity to light.

One can change their signature in the User CP link at the upper left.

When that symptom is no longer the primary issue, the signature can be changed.
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"Be still and know that I am God" Psalm 46:10
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Old 01-23-2012, 09:07 PM #2
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Good idea.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 01-23-2012, 09:10 PM #3
themaidquit themaidquit is offline
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Quote:
Originally Posted by Mark in Idaho View Post
As people post their recent issues, readers often forget the context of that poster's condition.

It would be very helpful if people would create a signature with a short list of the most problematic symptoms.

For example, xanadu (Pete) could list his need to work with his eyes closed due to extreme sensitivity to light.

One can change their signature in the User CP link at the upper left.

When that symptom is no longer the primary issue, the signature can be changed.
Please tell me how to post a "signature" I am computer illiterate-even before the accident.
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Old 01-23-2012, 09:30 PM #4
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Quote:
Originally Posted by themaidquit View Post
Please tell me how to post a "signature" I am computer illiterate-even before the accident.
There is a bar towards the top of the screen. The first thing listed on the bar is "User CP". Click that and then look on the left hand side. There is a list of things...about halfway down there is an option to "Edit Signature". Click that and a window will pop-up with a text box for you to enter your signature. If you want an example of what to put for your signature, look at either mine or Mark's.

This will automatically be placed at the bottom of each of your messages.

If you need further instructions, PM me.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-24-2012, 11:08 AM #5
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Great idea...very helpful!!!

How did I do???
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July 21, 2010, one month after starting my new job I sustained a concussion after standing up quickly from a sqatting position and subsequently being impaled by the corner of a metal filing cabinet in to the left side of my skull. Dx. Post Concussive Syndrome.

Female, 45 years young
.
Mom of 3 boys (22,19,10)..Registered Nurse 16 years
.


Symptoms: Vertigo, difficulty concentrating, unable to multitask, fatigue, severe transient headaches..severity and location change frequently, anxiety, PTSD, tinnitus, "electrical like sensations" across the top of my head, "hot flashes", numbness and coolness to hands (worsens in A/C), very poor recall ability, processing and comprehension, difficulty finding words and completing thoughts, short term memory is awful.

~I will never give up on myself~

~I run because I can. When I get tired, I remember those who can't run, what they'd give to have this simple gift I take for granted, and I run harder for them...I know they would do the same for me <3
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Old 01-24-2012, 11:07 PM #6
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Great idea. But.... aaaah!... so difficult!

I can relate to symptoms when I hear them, but I still have a difficult time generating a list.

This could be a good exercise for me...
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Knocked heads with my brother (October 2010). Don't worry... he's fine!
.

Partial list of symptoms: (Physical - noise/light sensitivities, balance problems, headaches, sleeplessness) (Mental - brain fog, severe lack of awareness, difficulty expressing ideas - or thinking in the first place!, struggle with simple problems) (Emotional - anger, depression, inability to handle/control emotions) (Social - generally inept - thanks to everyone for allowing me to "practice" some social and communication skills on this forum)

"The person in the mirror wasn't me and I didn't like her either.
But, I looked beyond the mirror and slowly became the person I am." ~ Sandee Rager
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Old 01-24-2012, 11:20 PM #7
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Katie,

I have the same problem. When people ask me how I feel I usually just say "foggy", "I don't know" or "It's hard to explain". I have to bring a list of current symptoms with me when I go see my neurologist (or any doctor).

You can do what I did...look at a website that lists the symptoms of post-concussion syndrome and also look at other people's signatures. Write down the symptoms you see on there that you have.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-24-2012, 11:26 PM #8
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nwsmith,

What I want to know is, how did you get the cool font in your sig?
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
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Old 01-24-2012, 11:42 PM #9
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Eowyn,

Go to the "Edit Signature" screen and look on top of the text box. There's a bunch of different buttons and gadgets up there...one of them is a drop down box that says "Fonts". Just highlight whatever part of your signature you want to change the font of and choose a font. It will add the code for you.

You can do that with any of the gadgets up there...you can toy with it for awhile, changing things around and using the "Preview Signature" button at the bottom until you get it right.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-25-2012, 06:49 PM #10
AllAmericanAmy AllAmericanAmy is offline
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Fantastic idea Mark! Wonder if it would be possible to "Pin" something like this to the top of the board for New Visitors, etc?? Just a thought!
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Blessings to you...
AMY

Wife of 54 year old hubby who sustained TBI January 2011 downhill skiing.

Hubby is: Machinist, off work since injury. 70% of the time feels really, really rotten (better! Used to be 99% of the time) 30% of time he just feels bad but can push thru to do something.

Current Symptoms: Light & noise sensitivity, brain fog (lessened by Zoloft), extreme fatigue, balance issues (walks with cane), cognitive problems (slowed & more difficult thinking), overwhelmed easily. Difficulty falling asleep but then could stay asleep for 12 hours or more
.
(Uses CPAP machine while sleeping due to apnea NOT caused by TBI)

All symptoms increased by stress, fatigue & crowds. Jostling movements (walking briskly, bumpy rides) are VERY bad & cause severe set-back


Seems to help: Taking 150mg Zoloft at night for symptom control, especially helps with "brain flips / swishing when walking" and brain fog (helped). 300 mg Gabapentin (100 3xdaily) for headaches (works pretty well. Minor headaches are eased by combined Acetaminophen & aspirin). Xanax for anxiety, but also seems to slow the overstimulation feeling when out-and-about. Feels best while lying down (vertical position seems to bring on symptoms)

Misc: Clear EEG, clear MRI'S (2 of them). No cut, bump or bruise after accident - all damage internal
.
Oddly enough, he's not bothered at ALL by tv
.
Praise the Lord he has NO difficulty driving.
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