Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-29-2012, 11:51 PM #1
rick92 rick92 is offline
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Default one year

today is my one year mark

i was hoping to be able to come on here this day and say its completely gone and to give people hope

all i really have to say is that post concussion syndrome has completely ruined my life

i think its slowly getting better but soooo slowly that its unreal and so frustrating. theres a possibility that im just getting used to it though. which is scary. i dont know what feeling normal feels like anymore

what a crappy year
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Old 01-30-2012, 12:01 AM #2
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Sorry to hear how it is for you.

The one-year mark was a big deal for me when it hit, but Mark will probably point out that you should not get caught up on time frames, as he did with me.

It has taken a long time for me. I guess the same can be said for some other people. Hope the healing goes well.
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Old 01-30-2012, 12:34 AM #3
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Yea, As Jeffrey said, Do not get hung up on time frames. They just cause anxiety.

Many get most of their recovery by learning to accommodate many of their symptoms and learning work-arounds, too.

Once you have a full tool chest of work-arounds, you can get back to much of your old life. Some things will never be the same. We can go on with life without some of our past.

What are you worst continuing symptoms?
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Old 01-30-2012, 12:41 PM #4
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thank yall for the replies

id have to say the worst symptoms are the continuous headache, slight constant dizziness, and the frustration of only one concussion screwing me up so bad
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Old 01-30-2012, 01:33 PM #5
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Quote:
Originally Posted by rick92 View Post
thank yall for the replies

id have to say the worst symptoms are the continuous headache, slight constant dizziness, and the frustration of only one concussion screwing me up so bad
Your lucky that's all you have to deal with. Many people here, including myself, struggle with cognitive problems and horrible memory. Those are the most debilitating symptoms.

I'm not saying headaches and dizziness aren't bad, I'm just saying be glad its just those couple physical symptoms (which can be dealt with by medicine and other pain management tactics) and not the whole onslaught of symptoms you see in my signature.

Your making good progress at a year with just those remaining symptoms. Keep it up.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 01-30-2012, 01:43 PM #6
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I hit my one year mark exactly one week ago, and most of my symptoms have gotten worse in the past year. The light sensitivity is so bad as to be almost completely disabling all by itself.

Hang in there.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 01-30-2012, 06:03 PM #7
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I have read articles, written by seemingly reputable sources, that try to state by this time or that time after the trauma we should be all better. But I think they're just trying to make things simple without knowing what's been damaged inside someone's head because without a microscope that can see inside someone's skull they really have no idea. And they really have no idea how long it will take either. And neither do we.

The accident I was in was about 18 months ago and I'm still making noticeable improvement. But I too, am awaiting the day I can come onto this forum and say - "Hey! I'm all better!" But I'm a lot better than I was just 6 weeks ago and much better than I was 6 months ago, etc..

I think the best thing for me is to continue to have hope that I'll get better and that hope takes me through every day to more healing. I think time is the best medicine for a brain injury.

I read an article about a woman who didn't even know to get cognitive therapy for years after the accident she was in and she made leaps and bounds worth of improvement well past the X time mark that is "typical". (She had a PHD in economics and couldn't balance her checkbook after the mild injury she sustained... http://www.washingtonian.com/articles/health/3937.html# )

We all just need to take this situation day by day, or hour by hour if need be and try not to focus on the "bad". (I'm writing this as a reminder for myself too!)

Just try to hang in there! A lot of us here have had a bad year or two (or more) recently too...
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Eowyn (01-30-2012), SpaceCadet (01-30-2012), xanadu00 (01-30-2012)
Old 01-30-2012, 07:52 PM #8
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I just passed my one-year mark, too, and have been discouraged. I'm definitely better than I was six months ago, but I'm far from as functional as I'd like to be.

Thanks so much for sharing the article. It gave me a lot of hope!
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

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Eowyn Rides Again: My Journey Back from Concussion

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