Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-01-2012, 04:41 PM #11
EsthersDoll EsthersDoll is offline
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Several Dr.'s I saw wanted me to see a psychiatrist. I think that's normal. Yes, it bothered me a little, but they didn't know me before the accident; they didn't know how I spoke or how I behaved or what my level of cognitive functioning was before the accident. If they had, they might have been more alarmed about the status in which I had met them.

If you do, make sure you see a good one, one who also knows about brain injuries.

The one I saw told me that most Dr.'s don't realize how sensitive tbi patients are to medication. He would not recommend any medication for me without neuropsychological testing.

I don't think he thought what I was going through was abnormal.
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Old 02-01-2012, 06:21 PM #12
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Thnaks EstersDoll,

I did hav ethe Neuro testing - I supose I am more concerned how others perceive it than myself - I know I am not a mental case but since al of this happened from a MVA - I of course will be dealing with the insurance company who would like to spin that in the opposite direction. Maybe I should for my sanity. Have you or any others know why I would be prescribed meds for alzheimers? The doc said it was for off label usage but again the ins company will spin this into something else
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Old 02-01-2012, 06:35 PM #13
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Yeah that's tough.

My compact car was TOTALED between two large SUV's while we all at a dead stop by a truck that was speeding and rammed into the SUV behind me which pushed that SUV into my car and my car into the SUV in front of me. I guess the estimate for repairing frame damage was halted once it reached the value of my car, which was $8000, but the estimator said it would have cost a lot more than that to repair everything. And the guy's lawyer (probably provided by his insurance company) told my attorney that the accident wasn't bad enough to cause any physical harm.

Insurance companies and attorneys are just going to say whatever they can to pay as little as possible. I guess that's their job.

But it's your job to get better. So, really, try not to worry about that stuff.

Just focus on getting better or not.

I don't know about you, but I'd much rather be ALL better then win some lawsuit or settlement.

My dad is the one who got me to hire an attorney. It was about a month since the accident I was in and I did NOT want to hire an attorney at all. I did NOT want to deal with that stuff. I couldn't. I hired an attorney and I think that just made me more anxious, just the whole idea of dealing with a legal mess made me feel awful. Probably because I couldn't handle it cognitively - the whole idea of it worried me sick - I couldn't even string a coherent sentence together, how was I supposed to deal with legal stuff?!?!?

But my dad'd also the one who always told me to just focus on getting better. (Come to think of it, that's what the lawyer said too.)

It turns out the guy who caused the accident I was in was not covered for enough to even pay for even 20% of the wages I've already lost and I'm still losing. Not to mention all the medical bills, and what my boyfriend is out from taking care of me etc. etc. The guy probably doesn't have any assets either.

Once I found that out, I was a lot more relaxed about the whole thing, because it really doesn't matter. C'est la vie.

All that matters is getting better.
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Old 02-01-2012, 07:12 PM #14
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I just wanted to say...I think we all get the same treatment from our neurologists. There is really nothing they can do but run tests like MRI and EEG, treat the symptoms individually by prescribing medication and send you on your way. Some neurologists don't even give you suggestions on what you should do to improve your recovery. That's what both the doctors I've seen did.

Another thing your husband can do is look in to therapy. There are quite a few threads on here about different therapies. Just do a search.

Rest and time. Those are your best friends when recovering from a brain injury. "Stress and anxiety are your enemy", to quote someone here at the forum.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 02-01-2012, 10:09 PM #15
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He's had CTs, xray, MRI and they show nothing. Goes to chiro regularly even before accident and he just adjusts him as always, he doesnt seem to know what to do either. Been doing bi-weekly massages but they dont help headaches, he has lots of knots in shoulders/neck though she works on.

I think there's something going on with muscles/neck/shoulders that causing the head pain. Any thoughts on that?

He's on 400mg gabapentin.

Do we need referral for physiatrist or physical therapist? I really think physical therapy is way to start.

Nurtional: hasn't had alcohol since accident. Only caffine he has is 1 coffee in morning, otherwise he said he wants to fall asleep at work. Not sure what MSG is, so i'll look ito that and upping his vitamins, he's just taking centrum now. Thanks Mark in Idao.


NightNurse30: Haven't tried accupuncture yet but want to. The dumb neuro we saw said it didnt work and was any relief would be his just believing it, same with chiro. Another reason we dont like him. Accupuncture is something we are prob going to try.


Esthers: Wow what an ordeal, you've had. I'll keep that in mind and mention it to new another neuro if we can find good one.
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Old 02-01-2012, 11:48 PM #16
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Yes....definetly one more reason your neurologist sounds like an idiot. Complementary Therapies along with medicine, good nutrition, rest, and good sleep all combine to help the PCS go away. I also get B12 and B6 shots along with a good B-balanced complex, omegas 3's and multi-vitamin. Acupuncture is very widely used in society today and as a nurse....I'm 100% supportive of it and its ability to decrease pain.

My hospital also has an integrative medicine team that includes a Healing Touch Practicioner who give relaxing, nurturing energy therapies to patients in the hospital who are not responding to medicine and have severe pain issues, anxiety, nausea from chemo, and other ailments and its made a world of difference. I myself am taking Healing Touch and doing treatments in my ICU on my patients and will see someones pain go from a 10 to a 2 after a treatment. With evidence of HR decreasing along with a high blood pressure go down to normal. Its pretty amazing when you have the monitor to show you along with your patient falling asleep or stating their pain is barely there anymore.

You can find a practicioner at www.healingtouchinternational.org.
Most are nurses who took an extensive program to become certified. So their understanding and knowledge of disease, illness, and injury is very broad. Hope you find something that works soon for his pain!
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Suffered a TBI with PCS on April 25th 2011 from multiple blows to the head from falling, unconscious for 12 hours with no memory of event. Hit the back of my head, and above right eye. MRI and CT negative. Symptoms included constant headaches (migraine, pressure, tension, icepicks), dizziness, tinnitus, visual changes, photophobia, fatigue, "spacing out", word finding difficulties, depression, and emotional lability.
Began Healing in November 2011 after starting acupuncture and Healing Touch (a nurturing energy therapy that promotes relaxation and pain relief). I went back to work in February 2012. Ive been symptom free since July 2012. Very happy, positive, energetic and working out every day, doing yoga, and living a normal life again!
I also began taking Healing Touch classes in November 2011 and completed 5 Levels of Healing Touch Certificate Program that included a 1 year mentorship to become a Healing Touch International Practitioner in June 2013. I am so pleased to offer this wonderful healing therapy to my patients, friends, and clients.
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Old 02-02-2012, 02:58 AM #17
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Sounds like he goes to a wellness chiro. Regular chiro visits are just to keep the chiro in ca$h. He should not let the chiro do any twist and pop neck adjustments. They can be just keeping his neck traumatized.

The massage therapist sounds weak too. If he has muscles spasming in his upper back, shoulders and neck, he needs to find someone who understands this area better.

Look for someone who knows myofacial release. They work on the nerves to get the muscles spasms to release. Some massage therapist do it and some PT's.

btw, MSG is MonoSodiumGlutamate. It is a flavor enhancer used in many processed foods. Also, avoid any processes soy products. They are high in free process glutamate.

The Centrum is worthless because the dosages are so low. They are based on the RDA values that are completely inadequate for an injured brain and body. No better than having a bowl of Total for breakfast. All sizzle (hype), no steak (value).

Find him a B-100 complex plus the others I mentioned.

Observe him sleeping. Does he have any irregularities in his breathing? You may need to observe for a hour or two before seeing an abnormalities. Poor breathing during sleep can be a big cause of daytime sleepiness, plus the PCS causes too.



jinga,
Alzheimer's meds are sometimes prescribed for concussions. This is a "try this and see if it helps" idea. They rarely help at all. Then you have to deal with the side-effects, too.

My best to you all.
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Old 02-02-2012, 03:21 PM #18
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Thanks - I will try it at least
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Old 02-03-2012, 09:22 PM #19
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One more thought about your husband. If he's falling asleep at work, perhaps that's an indication that his brain still needs more rest. Maybe the neurologist would provide a note that he needs to take time off work in order to rest?
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Old 02-03-2012, 09:46 PM #20
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Quote:
Originally Posted by duhfur View Post
He's had CTs, xray, MRI and they show nothing. Goes to chiro regularly even before accident and he just adjusts him as always, he doesnt seem to know what to do either. Been doing bi-weekly massages but they dont help headaches, he has lots of knots in shoulders/neck though she works on.

I think there's something going on with muscles/neck/shoulders that causing the head pain. Any thoughts on that?
Sure! If he's got all those knots and spasms in his neck and shoulder area, they are most likely pulling on muscles located on the skull. Experts hypothesize that's one reason why we get headaches. I get tension headaches (some of them are brutal) from stuff like that (knots in my shoulders and neck.)

I think mark is right though, your massage therapist should be keeping those knots well at bay if you're seeing them twice a week. Myofascial release is great if you can find a practitioner. It can be quite painful though, just something to be aware of. If you want to stick with massage therapy, or try both, find a good deep tissue massage therapist. That Swedish stuff and other massage techniques usually don't even scratch the surface of some of the knots I get, but some good deep tissue knocks it right out! Again, deep tissue is considered to be painful to some people.

I personally find most deep tissue to not be painful at all, or very rarely and minimally, but did find myofascial release to be very painful but well worth it! But I haven't had either since the mTBI so I don't know what it's like with a concussed brain. (I just can't afford it due to the financial woes the mTBI have brought to me, but I want some! )

After the injury I *did* have regular acupuncture for a few months. (I have a friend who does it and cut me a generous break on the cost.) And I do think it helped to cut down my pain significantly. I think it worked better for me than the opiates and narcotics I was prescribed. My Dr. and acupuncturist both told me separately that everyone responds differently to acupuncture and that I was lucky it worked so well for me.
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