Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-04-2012, 06:11 PM #1
rick92 rick92 is offline
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Default to sum it all up....

i honestly believe i would feel the exact same as i do right now if i had seen zero doctors since my concussion

i know i have been to atleast 50 doctors or therapy apptments throughout the last year and i feel as if not one has helped me out at all

my symptoms are all the exact same

if i would have to do it all again i would just save the money and time and just sit at home and wait it out i guess....

do yall feel the same way? i feel theres really nothing anyone can do...
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Old 02-04-2012, 06:20 PM #2
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Originally Posted by rick92 View Post
i honestly believe i would feel the exact same as i do right now if i had seen zero doctors since my concussion

i know i have been to atleast 50 doctors or therapy apptments throughout the last year and i feel as if not one has helped me out at all

my symptoms are all the exact same

if i would have to do it all again i would just save the money and time and just sit at home and wait it out i guess....

do yall feel the same way? i feel theres really nothing anyone can do...
Yeah, I see what your saying. I feel like I've wasted my time with all the doctor's I've seen. I don't necessarily regret seeing them, though, because for me it's been a learning experience. It taught me that head injuries are far misunderstood...and I now see what all the fuss has been about when it comes to health care.

I think I've got more help and information on this forum than I have anywhere else.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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Old 02-04-2012, 08:11 PM #3
xxxxcrystalxxxx xxxxcrystalxxxx is offline
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Im grateful for the amytriptaline which helps my headaches. I like my therapist because he specializes in head injuries. There are a few ive seen which wasted my time. Its seems to be driven by money and not compassion. Politics come first, patients last. Just saying.
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Old 02-04-2012, 08:40 PM #4
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Im grateful for the amytriptaline which helps my headaches. I like my therapist because he specializes in head injuries. There are a few ive seen which wasted my time. Its seems to be driven by money and not compassion. Politics come first, patients last. Just saying.
Hi xxxcrystal - How has the amitrytiline helped with your headaches? do you still get them dailey are they just less intense or have they gone away or mostly away??? What dosage. I am taking 25mg at night. I bo believe they have helped with the intesity but still have daily headache more dull unless i do something mentally challenging or physical exertion - I know alot of people on the forum are using these meds but it helps to find out how the meds are actually reducing or elimnating the symptoms. Are you taking anything else? I was put on a med for st memory\alzheimer useage
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Old 02-04-2012, 09:06 PM #5
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Hi xxxcrystal - How has the amitrytiline helped with your headaches? do you still get them dailey are they just less intense or have they gone away or mostly away??? What dosage. I am taking 25mg at night. I bo believe they have helped with the intesity but still have daily headache more dull unless i do something mentally challenging or physical exertion - I know alot of people on the forum are using these meds but it helps to find out how the meds are actually reducing or elimnating the symptoms. Are you taking anything else? I was put on a med for st memory\alzheimer useage
i was on nortripyline for 2 months which i believe is similar to amitriptyline

it reduced the headaches for me but i still seemed to have a constant headache, just not as bad
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Old 02-04-2012, 10:03 PM #6
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crystal,

What does your therapist do that you like and find helpful?

What kind of therapist is he?
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Old 02-04-2012, 11:26 PM #7
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rick : I feel the same way. Besides wasting money frustration is the only left over. Any therapy helps only temporarily.
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Old 02-04-2012, 11:43 PM #8
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Im on 50 mg. I take at night. It has reduced my headaches. I still have them but not all day and not as bad. I like my psychotherpist because he is teaching me how to organize and tools for my short term memory issues. He also helps me cope. I'm having a hard time dealing with stress. I literally get jumbled and melt. Ive only had two sessions with him but he listens and has,worked with head trauma patients so he seems to understand.
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Old 02-05-2012, 06:58 AM #9
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I am glad to hear you are getting relief. I am not sure if you are working or not but how do you cope with or multi-tasking. My job requires me to be simultaneously working on several projects at a time and it is hard to manage this with PCS
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Old 02-05-2012, 09:56 AM #10
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I don't think seeing doctors is a total waste--at least knowledgeable ones. As one person noted, they can impart knowledge and give you some idea of what to expect. If they are good, they can give you some comfort.

Like the rest of you, my symptoms have not changed much in the past 6 months. I wake up wondering if I will ever get better. Given the attention concussions are getting in the media and sports, I wouldn't be surprised to see some major advances in the next five years. Let's hope that happens.
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