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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Needs a better answer than "time" (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/164744-answer-time.html)

xanadu00 02-11-2012 12:12 AM

There are a number of adaptations you can use to make it easier to do computer work with light sensitivity. I have extreme and persistent light sensitivity; it's my most severe symptom.

I created a thread not long ago called "Tips for working with light sensitivity." If you scroll back a bit through the earlier posts, you will find it. You might find some helpful information there. For instance, whenever I have to work with work docs (which is a lot), I turn the page background color to gray, which is MUCH easier on my eyes. Another one is to download and install f.lux, which filters a lot of the blue light out of your computer screen. I list some more things in the other thread.

kccat77 02-11-2012 01:20 AM

First let me say kudos to you for pushing yourself to make it this far! You really have been to hell and back and I'm sorry to hear you have had to endure all this.

That being said, I know a little of what you are going through. I am battling whole "patience is a virtue" and "time is the ultimate healer" thing myself. Honestly, if one more doctor, nurse or therapist says it to me I will explode.

Just a bit about myself, I am a marathon runner and had been runner for 3 years and finally hit my grove when the accident happened. A drunk driver hit the car I was in at lunch time. I PR'd at the marathon only 2 weeks before the accident and took 45 minutes of my previous marathon time which is not an easy thing to do. I completely understand your need to get back out there and play again. For 11 months now, I have stood on the side lines and watched the entire running community (all of my running friends) participate and run in all the events I was signed up to do last year. It broke my spirit and my heart. This drunk driver and PCS has taken everything from me. To make things worse, the drunk driver got away with it. Even after the cop was told the driver was drunk, the cop was to lazy to do the DUI kit and the paper work to go along with it so he let the guy go!

I thought by January 2012 that I would at least be jogging nevermind running. I was just starting to do run/walks when I had a huge set back and am now in my 22nd day of a migraine that just won't go away. Not only has this migraine kept me from running again but it has set my depression back even deeper and pushed my hopes of running back even further. This doesn't even take into consider my regular life which has fallen to pieces due to the depression, brain trauma and injuries.

My injuries aren't as severe as yours but I know where you are coming from. I too am looking for some kind of answer other than time. But I know now 11 months into it that time really is the only thing that will cure this whole mess like it or not. There's nothing I can do to change it. I'm very bitter and angry and I have a lot to work out in therapy because of it. I need to come to terms with the fact that time is the only thing that will get me back on the right track. It's not an easy pill to swallow but its the only "tried and true" thing that works.

I'm wishing you a speedy recovery. I will tell you something that I wish someone would have told me in the begining, find some other kind of hobby to sink your engery into. I eventually found biking and was able to ride a bike without headaches which helped take some of the sting out of not running.

Good luck!

Eowyn 02-11-2012 04:32 PM

Here's my experience. I was a high school English teacher before my concussion. Very busy -- always on the go. Last winter, my son and I had Martin Luther King day off school, so we went sledding. I flipped off the sled and faceplanted in the snow.

By Wednesday of that week, I was having headaches, nausea, light sensitivity, and trouble functioning in the classroom. I called the doctor's office. They said I probably should come in and be seen. I thought, "THEY WILL JUST TELL ME TO REST AND I DON'T HAVE TIME TO REST." So I didn't go home. I didn't go in. I kept teaching until the end of the week. Finally, students giggling was physically hurting me like they were banging on my head. I took a day off and went to the doctor. She told me to stay home and rest.

I stayed home and rested my body. Meanwhile, I sent in lesson plans every day, I checked and responded to work emails, I played word games online. I wasn't resting my brain. I tried to go in one day toward the end of that week and kind of barely managed it. Then it was the end of the semester. I had a grading marathon, grading piles and piles of essays all day. The following day, I had the worst headache ever of my life. The doctor's receptionist talking in her normal voice at the other end of the room felt like she was banging on the inside of my head. That was the day they sent me for a CT.

I went home and basically locked myself in my dark bedroom. But I was still sending in lesson plans and checking work email. I was still trying to manage our family finances. I still tried to watch the Super Bowl with my family. It wasn't until almost TWO MONTHS LATER that I told the school they would have to hire a long-term sub, told my husband he would have to handle finances, told my family I couldn't watch TV or sing or go to church with them any more.

THEN I really started resting my brain and I finally started to improve, little bits at a time. Taking nutrition supplements also helped: B-Complex 100, Acetyl-L-Carnitine, Algal DHA, Vitamin D3, MegaFoods Blood Builder (I'm a vegetarian).

It's been over a year since my injury, and I'm still struggling. I tried to go back to work part time this fall and had to quit working again altogether in January. I used to love to read (that's why I became an English teacher). Now I can read for maybe 30 minutes to an hour at a time. I have piles of books I've been waiting to read, and all the time in the world, and I can't read them.

I ask myself every day if taking the time to really rest sooner would have helped me recover more or faster. I don't know, but what I do know is that pushing myself ultimately didn't work. Have you ever done the fitness testing where you have to do as many sit-ups as you can? And at a certain point, your body just can't do any more, no matter how much you want to? I got to that point with my brain. I just can't push any more. I have to listen very carefully to my brain and my body and respect my limits. Only then can I hope to be able to do the things I love at all.

I hope that you will heal and find ways to do the things you love, too. I know it is hard to have such a small moment change your life in such a big way.

Johnson 02-12-2012 12:13 AM

I am so sorry to hear your story. But time IS the best cure. This concussion thing is very hard for a 14-years-old. I completely understand.

You need to stop your activities immediately and have enough rest. Everything you do will only make it worse. In the meantime, look for some other interesting things. Sport is not the only thing you can love. You can always come back to sports when you are fully recovered. You are very young and there is a bright future in front of you.

Take care,


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