Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-18-2012, 11:32 PM #1
paige.elizabeth paige.elizabeth is offline
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Join Date: Feb 2012
Location: Canada
Posts: 6
10 yr Member
paige.elizabeth paige.elizabeth is offline
Junior Member
 
Join Date: Feb 2012
Location: Canada
Posts: 6
10 yr Member
Default Concussion after TBI/PCS

Hello everyone,

So after being extremely careful for the last 5 years and finally getting back to being active, a "freak accident" happened and i got yet again another concussion. My dog jumped the couch and kneed me in the head. I am so frustrated and cant seem to wrap my head around the fact that I am now limited again to what i can do.

a little history: I used to play competitive volleyball and received 3 concussions in 6 months by diving for the ball and hitting my head on the ground. for the first 2 concussions doctors told me it was nothing serious and gave me two wks off until i could return to playing. the third one, i had bleeding out of the ears and nose and it still took 5 months for doctors to get their acts together and get me some help. Finally after a long process I was diagnosed with PCS and told I couldnt play anymore competitive sports, which was probably the hardest thing to hear.
Now 5 years later I returned to playing volleyball in a sort of rec/competitive league but have been extremely careful. I had also finally started going to the gym again. Everyone was so supportive of me getting back into things, and I was finally starting to be happy without having to try (I have suffered from major depressive disorder due to my injury for the last 5 yrs so it was a big deal to be happy).
Now I am back to where i used to be 5 yrs ago. but this time it wasnt due to sports. I was able to be ok with it before and wrap my head around the injury since it was sports related and injuries happen and its a consequence you need to accept. But this time it wasnt sports.

Now:
I feel like im even more depressed and struggling to understand everything. Reading all the posts on this forum have helped me greatly in the last few weeks especially knowing im not alone.
I have been going to a concussion specialist every 2 weeks now for the last month and a half and the most recent news i received was that since I had had previous concussions and had been dealing with PCS it will be especially hard for me to get back to how I was even just 2 months ago. I was told my expected recovery this time around was 25%. Just hearing that made my heart sink. I am supposed to be going back to university this coming fall after having dropped out 2 yrs ago due to my PCS.

My mum at the rip age of 50 has been diagnosed with dementia and she is the only who understands the daily struggles and frustration. So the one person I can depend on can't even be there for me when I need because she doesnt remember day to day events. That leaves me with a father in denial, and a boyfriend who doesnt understand and "forgets". I am just not sure how to get the support I need from either of them, especially when my dad would rather pretend it doesnt exist and my boyfriend thinks my pride is in the way of me getting better and beyond that there are no other problems.

So i guess what I am trying to find is:
a) how do you keep going when you've already had to go through this once and thought it was the end of your world
b) understand it and accept it
c) get support from those closest to me. i dont need them to understand, just need them to be there for me.
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