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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-08-2012, 10:15 PM | #1 | ||
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I was so happy yesterday. Forthe first time since the accident,today makes 2months, i felt great. I wasnt at a loss for words, i could find things, remember them, the whole nine yards.
Tofay, i am an emotional trainwreck. Not physically, emotionally, mentally . Forgot where i put everything that i found yesterday. Felt very sad. Tried to make an appointment with my primary, it took 20mins. They didnt have a time for me,etc. My principal is being very patient with me. I have cried everytime someone looked at me. I want to be normal again. Thank you for lending me a shoulder.
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I am 53 and am dealing with PCS following a serious car accident on 12/8/11 . I am thankful that I am alive. My migraines are more infrequent now. Other symptoms include; confusion, memory loss, headaches, dizziness (only with the vise like headaches), foggy head, trouble concentrating, difficulty with word recall. |
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02-08-2012, 10:56 PM | #2 | ||
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tmq,
Sorry to hear of your rough day. These are not uncommon. Oftentimes, a good day is followed by a lousy day. The good day leads to a bit of overdoing it. It does not take much, sometimes just the excitement of feeling good. Sometimes, the good day is just stretched too long or the good feeling leaves one with a bit of excitement into/during the sleep cycle. There is not much your doctor can do to help besides send you home to rest. Did you do anything new on your good day, or maybe consume something different? Maybe we can back track to the trigger for your bad day. It is not uncommon to do something, even early in the day that does not cause symptoms until a full day later. Hope you have a better day tomorrow. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | xanadu00 (02-08-2012) |
02-08-2012, 11:11 PM | #3 | ||
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I'm sorry you're having a rough time. I know how difficult the emotional roller coaster can be, and how disappointing it is (maybe that's an understatement) to have a bad day after such a good one.
Like Mark said, rest assured that it is common to have some back-and-forth in your progress; in fact, as far as I can tell, it's the rule rather than the exception.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor. |
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"Thanks for this!" says: | themaidquit (02-09-2012) |
02-09-2012, 06:17 AM | #4 | ||
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Let me, too, extend my sympathies. Although different level of intensity, I too have the same situation. I have not had a day where I felt normal, but I have had several days where I thought I was improving, only to be brought crashing into an emotional canyon. This is not uncommon. Getting through these "down" days is difficult, but you will do it. Look forward to more "good days" ahead. Eventually, we all hope to be immersed in good days with the occasional bad, rather than the reverse.
We are thinking of you. |
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"Thanks for this!" says: | themaidquit (02-09-2012) |
02-09-2012, 09:30 AM | #5 | |||
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Yeah just to say that this is not an uncommon experience for me either, which doesn't make it any easier for you, but just know we all know how it feels and are thinking of you
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mTBI March 2011, spent around a year recovering. Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy |
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02-09-2012, 08:18 PM | #6 | ||
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Junior Member
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Thank you, I feel so much better now with your kind words
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I am 53 and am dealing with PCS following a serious car accident on 12/8/11 . I am thankful that I am alive. My migraines are more infrequent now. Other symptoms include; confusion, memory loss, headaches, dizziness (only with the vise like headaches), foggy head, trouble concentrating, difficulty with word recall. |
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02-09-2012, 11:19 PM | #7 | |||
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This happened to me SO MUCH when I first started feeling better. I would be all excited I was having a good day, then do too much, and have a HUGE crash the next day.
My husband started telling me, "Even if you feel bad tomorrow, remember, you had a GOOD DAY TODAY." And, over time, I did have more and more good days and fewer bad days. It was helpful for me to keep notes on a calendar so I could look back and see that. So, you had a good day. And, no matter what came next, NO ONE CAN TAKE THAT GOOD DAY AWAY FROM YOU.
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mTBI and PCS after sledding accident 1-17-2011 Was experiencing: Persistent headaches, fatigue, slowed cognitive functions, depression Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload Sciatica/piriformis syndrome with numbness & loss of reflex Largely recovered after participating in Nedley Depression Recovery Program March 2012: . Eowyn Rides Again: My Journey Back from Concussion . |
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"Thanks for this!" says: | SpaceCadet (02-17-2012) |
02-16-2012, 08:05 PM | #8 | ||
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Junior Member
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Hi there everyone. Just want to say I've just joined this support network and it's sooooooo reassuring to read people going through the same thing as I am. I have just had a meltdown - massive cry and feel so frustrated - and then read all your posts and was nodding ( and crying!) because I totally am going through that rollercoaster of feeling good, getting excited and 'overdoing it' then going downhill. It's so hard not to get excited and feel ike you're normal again and start acting that way...Anyways I just want to say thanks for helping me out and it does feel good to know there are people out there who understand how horrible this post concussion syndrome is to deal with.
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"Thanks for this!" says: | SpaceCadet (02-16-2012) |
02-16-2012, 09:44 PM | #9 | |||
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Welcome to NeuroTalk. Pull up a chair, create a thread, tell us about yourself. How did you get injured? When did it happen? What are you struggling with? I'm sure we'll be able to help you. I'm sorry that you got a concussion but you found the right place for support. Look forward to hearing from you.
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. |
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02-17-2012, 08:54 PM | #10 | ||
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Junior Member
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Hi again
Thanks for your kind welcome! So how did I get here? I had a nasty fall at a wedding about 3 months ago and slammed my head on a brick. I was diagnosed with post concussion syndrome - since then recovery has been up and down. On the whole I feel as though the relapses aren't as bad... but this week I have had my first sort of bout of feeling fed up and depressed as this relapse is really awful. What am I struggling with? Fatigue is a major one - I have two littlies ( 1year old and a 3 year old) so I also find the noise levels and high sensory stimulation that kids are into hard to cope with at times! And of course toddlers only really rest when they crash at nighttime! Those are the 2 big struggles at the moment On a positive note - this does feel like the right place for support - it is a hard illness to cope with as it is ' invisible' and symptome like fatigue and over stimulation can be hard for others to understand so just being in a place where you don't have to explain those things is a relief in itself Quote:
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