Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-25-2012, 11:50 AM #1
worried_mom worried_mom is offline
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Join Date: Jan 2012
Posts: 52
10 yr Member
worried_mom worried_mom is offline
Junior Member
 
Join Date: Jan 2012
Posts: 52
10 yr Member
Default When parents disagree over PCS care

The doctor is starting to doubt my son's symptoms. Asked if I thought he could be faking it!

The dads keep flip-flopping. His real dad now is so concerned that he wants me to take him to different doctors until there's an answer. My husband (of 5 years) wants to send him back to school "to see how he's really doing".

During each day, I waver on trying to just accept and deal with what is (which is so ambiguous) and trying to find someone who can DO something.

They want to do an echocardiogram Tuesday and blood work to see if he has a virus causing his high heart rate. Doctor poo-pooed my thoughts on spinal cord issues. His newest symptoms (high resting heart rate with low blood pressure, numbness in extremities, new and dif headaches, and more) started within 48 hrs of the last chiro visit where they stretched his head so far forward that i thought it'd snap off.

Not very many doctors in this area familiar with PCS. Our two docs are the two most known here. The one we saw yesterday has another 16 y/o pt who he's sending to a psychiatrist now.
__________________
mother of 14 y/o son, Concussion from football 10-7-2011.

current symptoms: still out of school, constant headache, migrating severe headaches, vision changes, startles easily, issues w/thermal regulation, delayed pain response, trouble sleeping, struggles for words/concepts/ideas, emotional about accepting what is, behavior issues esp when mentally fatigued.

currently on no meds (except sinus meds and vitamins) and goes to vestibular therapy.
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