Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-19-2012, 10:11 AM #1
xxxxcrystalxxxx xxxxcrystalxxxx is offline
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Default tinnitus

I have my appointment tomorrow with the Head Injury clinic tomorrow. I am dreading it. I've looked back at all my appts and they are very generic I'd say. Everytime I go I see the Neuropsychologists who speaks with me and then he usually says, "Well I dont think you need to see the surgeon". They schedule a follow up and such is life. He thinks my "anxiety" is causing my symptoms and making me worse. Well this time I'm able to go back and say... Listen, I'm seeing an anxiety specialist that they recommended I see. He doesn't think my anxiety is causing my symptoms to worsen. He feels that my injury and the symptoms that I'm dealing with is causing my symptoms.

I do have a couple of questions. I'm debating wether or not to bring them up. My first is the head whooshing sounds. I mean it can get so loud and physically it feels like I'm gonna to fall over along with my head blowing up.

I have a new symptom and I'm not sure if it's related. I have in my upper back a burning sensation along my spine. I almost thought I tore my esophogal membrane taking the vicodin. This symptom isn't all day, everyday but when it happens it hurts.

I have also noticed since my injury that sometimes I have to pee and when I'm peeing I dont feel that I'm peeing and I have to visually look to make sure I'm done. I never thought about maybe my injury causing this. My friend thinks it's worth mentioning.

I didn't want the doc who thinks I'm crazy to think I'm crazier. lol I want to make sure this "whooshing"sound sensation isn't something worse.

I am no longer insured. I am on workman's comp for the injury so that is the only service that is covered.

Am I right to be concerned? If I speak with the Doctor how can I phrase these questions?

My last appt with another neuro said he was worried about my situation being permanent. I know it hasn't been enough time but I was thinking after nine months shouldn't I be getting better?

Yesterday I was returning my cans at the grocery store. The constant back and forth made me unsteady. I was thinking perhaps I could do some physical job but now... I'm not so sure.
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Old 03-19-2012, 12:13 PM #2
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Hi Crystal, No you are not crazy and you shouldn't feel bad about bringing these issues up at your appts.

The Wooshing in your head sounds like tinnitus (mine comes in a high pitch monotone) but I've read it can sound like a wooshing, ringing or even a buzzing type sound.

I also have noise sensitivites that make ordinary noises seem unbearable at times...so I can relate.

As far as the peeing issue, I wish I could offer some help, but I have no idea. Are you taking any medications that could possibly be causing this? I would def bring it up at your appt.

I am not as far along as you ....been 5 months for me and some things have improved and some have gotten worse or stayed about the same so I know the frustration you are experiencing.

Just time and more time I guess. Sucks to keep hearing that, but I thinks it's the truth.

Take Care.
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Head Injury 10/2011. Diagnosed with contusion/concussion....Now PCS with Tension/Migraine combo headaches.

Symptoms: focus/concentration issues, short term memory issues, nausia, dizziness, sleep problems, noise/light sensitivities, extreme fatigue, irritability, vision problems, slow processing, tingling in extremeties and a few more I can't remember.
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Old 03-19-2012, 12:17 PM #3
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I had loads of sounds in my head in first 2 months, at the moment i have a whooshing sound in head but only when im switching my sides on pillow while sleeping. I have ringing really rarely now.

Well, at least you can hear with both ears, i wasnt that lucky....
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