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Old 05-19-2014, 11:00 AM #15
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Quote:
Originally Posted by sharoneld View Post
Hi Jamie,
My son sustained TBI following a motorcycle accident in Sept 2013, so its now 8 months ago. He never made a sound for 6 months, and then started trying to speak. He can say a few words, but his speech is inaudible most of the time. He communicates with his ipad by typing if we cannot make out the words. He is in a wheelchair as the right side of his body is not operating the same as the left. He can move his left side perfectly, but the right side is stiff and moves with difficulty. He is at home and receives physio, occupational and speech therapy. My problem is that even though he cannot get up and walk, and also obviously cannot speak properly, he keeps on saying that he can.. He has very bad short term memory and asks the same thing over and over again. He constantly calls me to ask the same question (he is 21). He forgets what happened a few minutes ago, the previous day etc. He cannot remember his accident at all. He can remember before that, but thereafter is non existent. He wants to go back to work, and the more I tell him he cant as he cannot walk, talk or drive, the more he gets angry and says that he can. I tell him that he needs to recover, and he says he has, that there is nothing wrong with him. He gets angry and frustrated very quickly, and then shouts, swears and shows the middle finger. I wonder if anyone else has experienced the same with their loved one, and has some advice on what to do, what to expect please. How do I get him to believe/accept that he is disabled at the moment and has to undergpo therapy to recover? I am stumped, and so sad for him!!
Hi Sharon,

TBI is very difficult for caregivers. Bless all of you!

As you are finding with your son, TBI patients are not always aware of their true condition. He really thinks, despite the overwhelming evidence, that he is his old self. When you tell him he can't go back to work, etc..., he is genuinely bewildered by your response. He probably thinks you're crazy.

It sounds like you're doing a lot of great things for your son. What are you doing for yourself?

I can't urge you strongly enough to join a caregivers' support group and to talk to your doctor about getting you some respite care, etc... It is NOT selfish to think about your own health. In addition to your son needing you fit and strong, you are a person, if your own right.
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