Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-12-2012, 07:16 PM #1
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Join Date: Oct 2011
Location: Las Vegas, NV
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SpaceCadet SpaceCadet is offline
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Join Date: Oct 2011
Location: Las Vegas, NV
Posts: 756
10 yr Member
Crazy Overwhelmed!

The people here at NCEP are amazing. The staff is so nice and understanding. They are all well trained in brain injuries...The people here attending are so friendly and positive. Its truly a great place for me...I feel like I'm at home.

There's just one problem...I run out of gas so easily, my brain just shuts down without warning and I have to leave the class. I lasted through most of the day...but towards the end of the day, I attended a vocational class with just one other person. I was trying to follow along with the teacher (he spoke way too fast) and something clicked...and my brain just stopped working. I felt way weird and disoriented. I had to lay down for the rest of that class and missed the next one, too, so I could regain my composure. When I finally (somewhat) emerged, the day was already over. I stuck around after hours for some pizza and BINGO...and that was a failure. There was way too many people, voices and other stuff going on...my brain quickly shut down again. Unable to think, talk, express myself, etc.

I'm writing this from one of the rooms here...they are letting me chill out before I get on the bus. Man, this is so hard for me. Everyone else is just chillin, they don't have problems with overstimulation or anything...it sucks being the only one.

Is this even beneficial for me? I just feel like I'm delaying my recovery by constantly being overloaded by every class and conversation I have. I can't handle anything here ...Its hard to believe its going to get any better...if it was going to get better, I would have gotten better by now because I've been moderating my stimulation at home...and slowly increasing activity before I even started here. Besides, this overstimulation thing was way better a few months back.

I feel good being around a lot of people who have brain injuries and specialists who deal with it everyday...but I still feel alone and frustrated. They are willing to work with me, let me take breaks and what-not but again...is this even beneficial? When my brain shuts down I don't retain any information...and after I rest, I shut down even worse and faster the next time. Its very scary...I feel like I'm going to shut down and never come back.

Waiting to be seen by their nurse and physiatrist. I was told I'd get a full blood panel and spinal tap if I wanted it. Would be nice to have those?

They want to keep pushing me until I break...The "shut down" is getting worse, happening faster and lasting longer each time it happens. I don't know what to think or do???

Thoughts? Advice?

Nick
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI.

Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain.

Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms.

Slowly but surely regaining my life back.
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