Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-19-2012, 09:43 AM #1
camyam73 camyam73 is offline
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I'm new here as well, and haven't seen a specialist yet, so I cannot really offer any help at all... I do have a question though... what is a Retractable Migraine? I've googled it and couldn't find anything on it....
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Old 04-19-2012, 09:55 AM #2
GraceInTheRain GraceInTheRain is offline
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Quote:
Originally Posted by camyam73 View Post
I'm new here as well, and haven't seen a specialist yet, so I cannot really offer any help at all... I do have a question though... what is a Retractable Migraine? I've googled it and couldn't find anything on it....
I'm SORRY, I MEANT to type "Intractable"....
It's basically a Migraine that doesn't go away.
The Pain is different than my "past traumatic daily headache". ..
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Old 04-19-2012, 01:19 PM #3
EsthersDoll EsthersDoll is offline
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Welcome to neurotalk!

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Old 04-19-2012, 08:48 PM #4
GraceInTheRain GraceInTheRain is offline
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Default thank you for the welcome!

Have been sleeping most of today....
Ended up going to the ER last night for a bad migraine and then today took my reg. meds.
The combination of the two sent me into a Sandman-Sleep all day.
I hate that.
I've never been one for napping during the day, so it still feels like I've lost so much valuable time I could have used doing something else.

Looks like this forum has SO MANY topics covered, there's very little reason for me to ask a question, because I'm betting the topic is covered here already!

I just feel like my life has been grabbed like a drawer and dumped out a window.
Everything is strewn about........some lost, some laying damp in the rain and some things carried off by thieves.

But...........sigh.
I also try and remember there ARE MORE drawers in the china cabinet from upon I can draw.

I hope to gain some ''friends'"" here...I'm pretty adept at finding the information I need on a specific topic --symptoms, meds, treatments, etc., but the feeling of being alone is like being tied over a avast ocean.

------------Grace.
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Old 04-19-2012, 08:55 PM #5
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I've never been one for napping during the day, so it still feels like I've lost so much valuable time I could have used doing something else.
Getting caught up on your rest was probably absolutly the highest and best use of your time today. You were doing the most important thing, getting better.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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"Thanks for this!" says:
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Old 04-20-2012, 12:44 AM #6
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GITR,

Welcome to NeuroTalk. Your experience sounds familiar except mine was just the opposite. I fell down stairs then a short time later had a catastrophic concussion from a bike accident. That was in 1965.

Don't worry about the psych eval. SSDI does not pick biased psychs. Applicants attorneys would have them for lunch. SSDI applications are not adversarial like a Work Comp or personal injury claim is.

Be truthful. Take the tests as they come without any pretense. The first SSDI application is often denied as a matter of policy. The second application is where the claim is looked at with more consideration.

Your history will provide lots of medical records so the psych eval which is usually an abbreviated neuro-psych assessment, will likely be just to confirm the information in your medical records. In my opinion, you stand a good chance of approval on your first application.

There are plenty here with years of experience who can help you work through and around some of you symptoms. Feel free to ask you questions.

My best to you.
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"Be still and know that I am God" Psalm 46:10
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Old 04-20-2012, 08:19 AM #7
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Default Appreciate the Words of Encouragement.

[B]Just read your response and I thank you for the reassurance.
I'm not sure if I'm authorized to post links yet (since I'm so new), but the website talking about the testers 'throwing out the data' and 'staking the deck against the disabled" was


"""The Truth About Neuropsycholgical Tests By Linda Nee at Wordpress"
google those words and you should find it.
I have to have 4 more posts to be able to add links in my posts.

Yeah....(nods nods nods) she pretty much says we're all screwed. :+(
But from looking at her site/page, she may not be the most OBJECTIVE source out there.

At least most of the meds have worn off this morning, so I can get a few things accomplished. Sure, I'll have the normal fatigue and brain fog, but those are familiar. That horrible fuzz/lethargy from more potent drugs is miserable.
And that's one of the things that's been so hard for me. Before the accident I was so fast paced; always on the go, up early, out late and did miles and miles of driving for my job.
After the rollover accident in late Feb. of last year, that was the Dr.'s major complaint. That I had to slow down.
BUT, I needed to pay my bills. Work is a necessary evil and my injuries were not severe enough (in my opinion) to warrant disability claim.
So I burned my candle at both ends.
With this injury it doesn't much matter just HOW much I want to go, My Neurological system simply can't handle the stimulation of noise, light, movement and conversation.

Off to get a cup of coffee.....pet my dog...........enjoy my morning. There's a lot of beauty out in that yard, and I'm going to go wallow in it!

Grace............Maybe in the Rain, but There's Still Peace and Hope.
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