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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-19-2012, 09:23 AM | #1 | ||
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As per one of the welcome team's suggestion, I copied/pasted my "new member' post here. I really wish I had known about your guys earlier, right after my accidents. I only konw a couple folks with TBIS's, and frankly, my level of affliction is no where NEAR theirs', and who can complain about a high wind thunderstorm when the person wiht antoher TBI suffered a Tsunami?? SO. Here I am, Here's My Intro, and I'm looking forward to having a conversation with others who are dealing with the same issues. !!! Hi....! I just found your forum last night and am so glad I did! Wish I had known about it months ago. In Feb. 2010 I had a rollover accident and was hospitalized for 2-3 days and a couple months later entered a fantastic mTBI outppatient program to help me deal with the vision issues, cognitive issues and the psychological component. I saw a Speech Pathologist, an Occupational Therapist and a NeuroPsycholgist PH.d for several months when I had ANOTHER HEAD Injury. I was on a steep flight of old stairs and fell. *I have amnesia for that entire day, so if it weren't for a witness, I would have no idea*. i was unconscious for several hours and ultimately had to be air lifted to the nearest large hospital where I spent 4 days. Then I went to one of ***THE BEST*** Rehabilitation Hospitals in the Region . I was there for a month. Now I'm dealing with all the residual symptoms of TBI. Debilitating Chronic Daily Headache, Retractable Migraine, Vision, Hyperacusis and Light Sensitivity, ((Actually I developed a SensoryModulation Disorder in general)) Dizzy Spells (not too bad) Tinnitus **I hear both Buzzing and MUSIC in my Ears** and There's Cognitive Deficits as Well. If there's ONE THING I can say with absolute conviction is I am So Incredibly LUCKY AND BLESSED. Some of the patients at the Rehab hospital were so severely and profoundly traumatized that I find it difficult to complain. So.....a Little about me. I'm 50, **how the HELL did THAT happen??** LOL Have had 4 children, live in a small where I have what I call the "sweet cottage on the prairie'. a Double Lot on the Corner, Surrounded by the Quintessential White Picket Fence. I haven't been released to go back to work as of yet; my attorney urged me to apply for SSD. Next Friday I have an appointment set up by SS for a Neuro Psych Exam and I am a bit concerned after reading/hearing that the 'whole shebang' can be a set up for denial. (((Like If I answer honestly about pain and mood, It could look like I'm malingering)) and if I do poorly on certain areas, the tester could REMOVE the data that shows I'm impaired. I am hoping the psychologist is Ethical and there is "no such arrangement' set up between him and the department. Am on a LIST of medications -----and recently had 25 botox injections from my neurologist to try and curtail the migraines. Right now all I see is most of my neck muscles are parlized, so I can't lift my head if I look down, haha.....My big ole heavy head has two positions. chin to chest and Up. And if I want to lift it up after looking down at the floor, I have to use my hands to guide. weird. Well, It's taken me several sittings to get this comprised. My attention span and vision headaches prevent me from doing too much in one sitting. |
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"Thanks for this!" says: | Lightrail11 (04-19-2012) |
04-19-2012, 09:43 AM | #2 | ||
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I'm new here as well, and haven't seen a specialist yet, so I cannot really offer any help at all... I do have a question though... what is a Retractable Migraine? I've googled it and couldn't find anything on it....
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04-19-2012, 09:55 AM | #3 | ||
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Quote:
It's basically a Migraine that doesn't go away. The Pain is different than my "past traumatic daily headache". .. |
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04-19-2012, 01:19 PM | #4 | ||
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Welcome to neurotalk!
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04-19-2012, 08:48 PM | #5 | ||
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Junior Member
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Have been sleeping most of today....
Ended up going to the ER last night for a bad migraine and then today took my reg. meds. The combination of the two sent me into a Sandman-Sleep all day. I hate that. I've never been one for napping during the day, so it still feels like I've lost so much valuable time I could have used doing something else. Looks like this forum has SO MANY topics covered, there's very little reason for me to ask a question, because I'm betting the topic is covered here already! I just feel like my life has been grabbed like a drawer and dumped out a window. Everything is strewn about........some lost, some laying damp in the rain and some things carried off by thieves. But...........sigh. I also try and remember there ARE MORE drawers in the china cabinet from upon I can draw. I hope to gain some ''friends'"" here...I'm pretty adept at finding the information I need on a specific topic --symptoms, meds, treatments, etc., but the feeling of being alone is like being tied over a avast ocean. ------------Grace. |
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04-19-2012, 08:55 PM | #6 | |||
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Getting caught up on your rest was probably absolutly the highest and best use of your time today. You were doing the most important thing, getting better.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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"Thanks for this!" says: | GraceInTheRain (04-19-2012) |
04-19-2012, 09:47 AM | #7 | |||
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Welcome GraceInTheRain,
You have found the right place for support. Your injuries sound severe but it also sounds like you have come a long way (overcome a lot). I suffer from debilitating headaches/migraines as well and I have had the BOTOX injections frontal/temporal. They were extremely painful for me due to the inflamation and scar tissue from the injury. I hope yours work better for you than mine did. Many on this forum will be able to tell you about their experiences with the Neuropsyche eval. I haven't had mine yet but I've heard to just go into it with no expectations and let them see your real challenges. Best Wishes to you and keep us posted.
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Head Injury 10/2011. Diagnosed with contusion/concussion....Now PCS with Tension/Migraine combo headaches. Symptoms: focus/concentration issues, short term memory issues, nausia, dizziness, sleep problems, noise/light sensitivities, extreme fatigue, irritability, vision problems, slow processing, tingling in extremeties and a few more I can't remember. |
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"Thanks for this!" says: | GraceInTheRain (04-19-2012) |
04-19-2012, 08:43 PM | #8 | |||
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Hi Grace and welcome. While there is no way of really knowing the ethics of your Clinical Neuropsychologist, you could do a look up and see what other patients say. You can call me naïve, but I think that by the time a clinical neuropsychologist finishes their education (PhD level) and internship they should be pretty well set professionally, and it would seem to me to be against their professional best interests to do anything other than give an honest evaluation. The two that I’ve had have been very professional, and I admire what they do. At least that’s been my experience.
Best to you in your continued recovery.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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