Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-23-2012, 03:00 PM #11
EsthersDoll EsthersDoll is offline
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Hi Mark,

I've had Cranial Sacral Massage before and it's a gentle form of massage centered around the spine and from what I understand about it, it has to do with balancing the energies or circulation between the head and the bottom of the spine and everything along that path - the spinal column, where the CSF flows.

http://regenerate-now.com/faq-what-i...al-system.html
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Old 04-25-2012, 11:06 AM #12
paul in canada paul in canada is offline
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paul in canada paul in canada is offline
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Mark
You were not offending me, and to answer your questions;
in Canada, an RMT is a qualified massage therapist, and the cranial massage I mentioned is part of cranial-sacral therapy. As it took 3 years to actually diagnose me correctly, I have had quite a struggle. Iam not capable of exerting myself without incurring pain and I am not functioning as " normal" anymore. Loss of both physical and mental abilities has taken quite a toll on me, given I relied on one or the other for all of my working life. Depression, anger and frustration is now a daily occurrance I am trying to cope with. Do you have any suggestions on coping strategies I might use(other than drugs)? Has anyone been dealing with this LONGER than 1-2 yrs have any suggestions?
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Old 04-25-2012, 01:17 PM #13
GlassHead GlassHead is offline
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Hi Paul in Canada,

The issue with anger and especially depression is well known to me. There are a number of things besides drugs that might be of some benefit to you.

I donīt know how you currently cope with your TBI related issues, but I can mention a few things that have helped me or others:


1) Breathing techniques are a way to make you more relaxed when bouts of anger surface. These techniques calm the body and reduces stress levels:

http://www.drweil.com/drw/u/ART00521...exercises.html


2) Art therapy for depression is an interesting approach in getting out feelings of anger and despair and can be done at home by anyone:

http://www.nursingschools.net/blog/2...body-and-soul/

http://www.ehow.com/video_7876588_ar...epression.html [short video]


3) I often listen to relaxing music on youtube, where rain forest sounds and thunderstorms are amongst my favorites:

http://www.youtube.com/watch?v=b_Wey...eature=related
http://www.youtube.com/watch?v=t8iip...eature=related


4) A self help book that has helped many people cope with depression is "Feeling Good" by David D. Burns. It didnīt do much for me but many people benefited from this book:

http://www.amazon.com/Feeling-Good-T...5377401&sr=8-3


5) Lastly we have cognitive behavioral therapy done by psychologists or brain injury support groups run by volunteers that might also benefit.


-GlassHead
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Old 04-25-2012, 02:07 PM #14
EsthersDoll EsthersDoll is offline
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I'm going on 21 months here after the concussion I sustained. Luckily, I was properly diagnosed with a concussion from the beginning. Unfortunately, I also had a rare complication called IICP (Increased Intracranial Pressure) that seriously prolonged my recovery and may have actually damaged my brain worse than the initial concussion (although there is no way to quantify that theory.)

I didn't really start to improve until the IICP was relieved six months after the concussion - before then, I got much worse.

It's been a slow and long process. I still struggle mentally and physically every day and I was a very productive, over-achieving and active individual who also relied on both my mental and physical faculties for my career and general well-being.

I had several months of speech therapy that helped improve my speech and cognitive functioning. I also had several months of physical therapy that helped reduce the pain I was in. I was in an auto accident and the accident gave me the concussion which caused the IICP and bulging disks in my neck and exacerbated some shoulder pain that I had years before but was completely under control for years before the accident.

I continue to improve - so I try to focus on that. My boyfriend will remind me that I haven't experienced any plateaus yet during my recovery, so that is really something to be grateful for and it's a clear indication that I will continue to improve.

I have better days emotionally when I'm not over-fatigued; so I really try hard not to over-do it. I try to pay attention to my body when it says I need to rest. I used to be very active, so this is still difficult for me to do. But I feel better when I do. I try to recognize when I might be getting overstimulated and I try to remove myself from whatever the source is so I can let my brain rest.

I am the kind of person that likes to be productive. So watching TV doesn't really make me feel good about myself. I try to do little projects, like sewing and coloring, so I can see results of my time spent resting. Resting doesn't have to mean laying down on a bed in the quiet when it's dark. It can just mean allowing my brain to not be over-stimulated.

I also find great help by speaking to a therapist weekly. I never understood how helpful that could be - I never really needed it before this accident. So, it's made a world of difference and I highly recommend finding a therapist that you trust to help you deal with the depression, anger and frustration. It's not easy.

Also, try to work on accepting that this has happened to you. It will help you to move forward in your life. That's what I'm trying to do...

And be compassionate and patient with yourself. You've undergone a major trauma and you need adequate time to understand what the results of that trauma are and to accept it. You need to go through the emotional pain in order to get through it - does that make sense? It's completely natural.

And I find comfort in calming my brain and resting it through mantra meditation. There are many kinds of meditation though - and mantra meditation might not be the right kind for everyone recovering from a brain injury - especially those who experience mental "loops" - I don't suffer from those so I can turn the mantra off when I'm done, but people who experience "loops" might have a lot of trouble doing that.
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