Yes I totally agree.

I think one of the problems is that we are all referred to neurologists who generally see us as an intractable problem at best and as malingerers at worst, because they can't make much of a difference with meds like they can with, say, people with Parkinson's.

I was eventually referred to a neuropsychologist which was far more useful, but which took 6 months when I needed it at the beginning.

I also feel that seeing a specialist occupational therapist who could have explained the way PCS fatigue works and helped me out with a fatigue management/pacing programme as well as looked at the role of exercise with me would have been massively helpful. And a dietician, though I doubt that will ever happen.

I think the problem is that the main way we can be helped is through lifestyle factors, and for whatever reason neurologists don't seem interested in these. Yet we still seem to get sent to them even though they are not interested in the factors which can make us better.

I completely agree with everyone here about mismanagement! I have a good feeling that no one in the medical profession knows how to handle PCS. And when I explicitly said NO MEDICATIONS, I knew those were words that meant I had to deal with it myself (since they wouldn't make money off me), even with the symptoms.

In my case, some docs I have encountered have been helpful and others no so much. I do believe that the majority really have very little idea how to "treat" head injuries/concussions/PCS

I think they get stuck between patients who want to be treated and the limitations there are of effective treatments for PCS. It becomes a "If I can't treat it, it must not be a valid complaint."

It would be just as good if the doctor would confirm the symptoms and explain them as best as they can then explain that there is no much that they can do. The confirmation of symptoms can be a valuable benefit to the patient.