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Old 04-22-2012, 12:04 PM #1
PCSMother PCSMother is offline
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Join Date: Mar 2011
Posts: 9
10 yr Member
PCSMother PCSMother is offline
Junior Member
 
Join Date: Mar 2011
Posts: 9
10 yr Member
Default Occipital neuropathy and dizziness

New to posting. I have been reading this forum off and on for 14 months.
I am the mother of a 16 year old who has suffered horribly for 14 months. She has had many concussions as a child, from various bad luck scenarios with swings, things falling on her, her falling on concrete and on and on. In Feb. 2011 she got the one that was one too many. We were in a car accident (rear ended) and then just as she was getting rid of the last of the symptoms in July and getting back to exercise, she was kicked full on in the side of the head by a dance partner. She has not been able to go to school since, suffered PTSD and night terrors, constant headache, dizziness, etc...has also been diagnosed with celiac disease in Sept., and now has some new symptoms.
Lately, her headaches are not on the sides of her head, but in the occipital region and behind one eye and the forehead/scalp area. She is also getting a type of dizziness where everything kind of gets wavy and in and out, not spinning.
She is not on any drugs because of the damage from celiac and healing from that, but she goes to a neurolink guy as well as a therapist who works with PTSD and some Emotional Freedom Technique, and energy work.
You can tell that we have not been happy with the traditional neurologists and psychiatric doctors we have seen along the road. Talk about not helpful, trying to push pills, blame the celiac/blame the PCS/blame her, and tell her she will commit suicide if she doesn't take pills.....(That was before I insisted on labwork for celiac and we found out she was off the charts celiac.) I knew that her excruciating intestinal pain was due to something serious and meds would just rip her up.
This is just a start, but does anyone have information on symptoms developing a year later, like the occipital/eye headaches and weird dizziness? Unfortunately, these are not all of her symptoms and challenges, but thought I would finally start posting to see if there are others out there that I can start communicating with. This is one sad, long, road. Just as we think there is a slow upward trend, there is something new that comes up. She just wants some of her old life back as she feels like she has lost pretty much everything.
But, today it is sunny and a new day and we are able to get out most days now which is fabulous!
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