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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-17-2012, 05:19 PM | #1 | |||
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Thanks for your input. I'll probably pick some up this weekend. Nick
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What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. |
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05-17-2012, 05:48 PM | #2 | ||
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Personally, I don't like the taste of the non-alcoholic stuff. Good luck with it!
I miss drinking the occasional glass of wine. Luckily, I can wait until I'm doing significantly better than I am now to have a glass. But early on after the injury, even though I wasn't much of a drinker before the accident, I would get so tense from worrying about what was going on with my cognitive functioning that I just craved a half glass of ANYTHING to take the edge off.... but I was too scared to try it. |
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"Thanks for this!" says: |
05-17-2012, 07:05 PM | #3 | ||
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I am soo with you on this one ED - Many a night I have craved a glass of wine, but have held off... and we never have wine or any kind of alcohol.... One day my aunt brought over a bottle, and I put in 1/5 a glass and then aded carbonated water... it was delish!
OH! There's non alcoholic wine/fruity champagne type stuff that we love... it's just at the supermarket here.
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Feb 24, 2012 - Slipped on a large puddle of ice at work, hitting the back of my head. No loss of consciousness, so I assumed I'd be back at work within a few days. I was wrong. When resting, symptoms are low. With exertion, I still suffer from fatigue, migraines, vision problems, problems thinking or reading, troubles sleeping, issues finding or getting words to my mouth when the headaches are bad, tinnitus, and thyroid issues which I think are due to the concussion. Seen one specialist, and now a few others through insurance review of my case. Hoping for further treatment. |
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"Thanks for this!" says: | EsthersDoll (05-17-2012) |
05-17-2012, 08:32 PM | #4 | |||
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I have been drinking carbonated fruit water too !
sometimes I add pomegranate juice to it as well; I pretend its an alcoholic beverage...not the same ,but no toxic stuff and it helps take the edge off! (well the craving edge,lol) I too want to drink , but know it will not be good, even in tiny amounts. (i tried and failed at 4 oz of beer)
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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD. So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed every day. 2 Corinthians 4:16 |
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"Thanks for this!" says: | EsthersDoll (05-17-2012) |
05-17-2012, 11:09 PM | #5 | |||
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Okay, so I chickened out. I purchased a 6 pack of O'doul's (spelling?)...and after staring at it for 10 minutes, I started doing research. According to this website, http://4therapy.com/conditions/subst...y-bad-mix-3012 , there is no safe amount of alcohol to drink if you have a brain injury.
Can it really be that bad? I think O'doul's has 0.4% alcohol. Why am I so scared to drink one? Geez. I'm such a chicken. Nick
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. |
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05-18-2012, 01:27 AM | #6 | |||
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I had a some really bad reactions to alcohol early in my recovery so I know it affects me, but non-alcoholic beer has caused me no problems that I can identify brain-wise.
In England the best ones I can find are the German white beers, which seem to have some really good and realistic non-alcoholic versions. It helped ween me off the stuff since I too was an 'avid drinker' before my injury. I've stopped drinking it now because I've decided that since I can't drink alcohol but I should be exercising a lot then I might as well try and get myself six-pack abs for the first time in my life! So that is now one of my missions. So far it's progressing very slowly.....
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mTBI March 2011, spent around a year recovering. Since recovery I have achieved a Master's degree with distinction in Neurological Occupational Therapy |
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"Thanks for this!" says: | Marina22 (05-18-2012) |
05-18-2012, 07:41 AM | #7 | |||
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I like that way of thinking! I might have to make that a goal of mine as well...(once I can resume more strenuous exercise of course)! That way when people ask why I am not drinking, I don't have to tell them its because of the PCS but because I am working on a different six-pack than they are!
Thanks, Klaus!
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March 2007, Oct. 2007, and Jan 2012 concussions sustained in martial arts/police academy training; suffering from PCS symptoms of fatigue/exertion problems,tinnitus,dizziness, overstimulation issues, photophobia. Also suffer from PTSD. So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed every day. 2 Corinthians 4:16 |
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"Thanks for this!" says: | Klaus (05-19-2012) |
03-26-2013, 03:08 PM | #8 | ||
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I saw your post and felt compelled to say "hi"....this may be a long hello September 2010 I slipped backwards out of a free-standing shower (had removed the shower mat and was shampooing and conditioning my hair = slick). As I fell backwards I hit the vertex of my head against the toilet and then on the floor, no loss of consciousness as far as I am aware. 2.5 years later and I still experience symptoms. I am a positive, goal-setting individual and definitely do not accept that my life can't get better. I guess, my issues have been underestimating and minimizing my symptoms and not receiving on-going medical support. I've seen 2 neurologists-- first one diagnosed me with Alice in Wonderland syndrome, migraine variant, sensitivity to light and sound and whiplash and a few other lovelies. Never been treated for the whiplash and I have terrible spine and neck issues that keep blighting my attempts at getting fit again. I now have an appointment for an MRI on the neck and spine in a few weeks time. I think your post stood out to me as your circumstances and symptoms are similar. I still slur my speech if I over exert myself, and feel shaky standing. I'm amazed that I'm still recovering. I have learned that healing from a head injury is not a linear process, which has impacted on my level of frustration at times -- thinking that because I have had a good few months means I am in the clear . The migraines have subsided, but my speech, cognition, short term memory and fatigue still cause me issues. I haven't spoken with other people who have experienced similar issues and just reading your story made me feel like I am not alone. I also had a pretty serious head injury when I was younger with a loss of consciousness and external injuries. The last neurologist I saw explained that, because of that my head injury symptoms have had a cumulative effect. He likened the effect to my brain as having a heart attack. I am in bed today as I exercised this morning and it seems it was too much. Thank you and apologies for offloading to you. |
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03-26-2013, 05:12 PM | #9 | |||
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But yes every once in awhile I can do red wine and no after effect.What I do is sip it and I tried a bubbly wine one time-NO GOOD,Liq-NO GOOD!I think maybe if you can find a beer with no bubbles it will be better IDK I never drank beer!
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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