Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-20-2012, 04:16 PM #1
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Crazy Anyone's pain fade away over time? Anyone have nerve pain?

My pain has lessened over the past 22 months, and after an impact to front tooth caused some nerve pain during the early stages of the TBI, it seems I now have nerve pain in the roof of the mouth.

Curious is any mods or members here can relate to having nerve and/or head pain, and what has happened to your pain.

Thanks.
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Old 05-20-2012, 04:21 PM #2
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Default different but maybe related

Ever since the accident I get severe pain behind my ears...my mastoid bone. Drs just "listen" to me, and go on to another topic. While the pain is less frequent I still get it along with the other more frequent symptoms.
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Old 05-20-2012, 08:41 PM #3
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Sorry to hear that. Hope the pain fades away or someone can help.

Seems we have the same mood.

Thanks for the reply.
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Old 05-21-2012, 11:37 AM #4
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After 18 months I still occasionally experience tingling and occasional cramping in my feet and ankles; I had quite a bit of lower body trauma so I suspect it's some residual nerve damage in the lower extremities rather than related to the TBI.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 05-21-2012, 06:04 PM #5
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My pain has not faded in 36 years. I have a theory that the pain thresshhold in my brain was permanently lowered. I no longer take pain meds; I consume them.

Yet I continue to hope. And pray. Praying's good.
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Passenger in auto wreck, mTBI:
  • CHRONIC FATIGUE SYNDROME
  • MYALGIA (generalized muscle pain)
  • MIGRAINE HEADACHES
  • INSOMNIA
  • ANGER & SELF-CONTROL (going "Frontal")
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Old 05-22-2012, 01:04 PM #6
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Quote:
Originally Posted by Kenjhee View Post
My pain has not faded in 36 years. I have a theory that the pain thresshhold in my brain was permanently lowered. I no longer take pain meds; I consume them.

Yet I continue to hope. And pray. Praying's good.
I've read that, over time, taking pain medications can actually lower a person's tolerance for pain too.
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Old 05-22-2012, 01:40 PM #7
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Quote:
Originally Posted by EsthersDoll View Post
I've read that, over time, taking pain medications can actually lower a person's tolerance for pain too.
That's good to know, thanks. I've only been taking pain meds for a few years, surprisingly.
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Passenger in auto wreck, mTBI:
  • CHRONIC FATIGUE SYNDROME
  • MYALGIA (generalized muscle pain)
  • MIGRAINE HEADACHES
  • INSOMNIA
  • ANGER & SELF-CONTROL (going "Frontal")
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Old 05-22-2012, 01:47 PM #8
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Quote:
Originally Posted by Kenjhee View Post
That's good to know, thanks. I've only been taking pain meds for a few years, surprisingly.
Well, I hope you have a Pain Management Specialist. If you don't, ask to be referred to one. They should be able to better explain the consequences of taking pain medicine for too long. And evaluate your situation better than any other doctor could.

That goes for everyone who suffers a lot of ongoing pain - get yee to the pain management specialist's office!
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Old 05-22-2012, 02:31 PM #9
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Quote:
Originally Posted by EsthersDoll View Post
Well, I hope you have a Pain Management Specialist. If you don't, ask to be referred to one. They should be able to better explain the consequences of taking pain medicine for too long. And evaluate your situation better than any other doctor could.

That goes for everyone who suffers a lot of ongoing pain - get yee to the pain management specialist's office!
Funny you should mention...I made the appointment about two hours ago.
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Passenger in auto wreck, mTBI:
  • CHRONIC FATIGUE SYNDROME
  • MYALGIA (generalized muscle pain)
  • MIGRAINE HEADACHES
  • INSOMNIA
  • ANGER & SELF-CONTROL (going "Frontal")
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"Thanks for this!" says:
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