FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
Reply |
|
Thread Tools | Display Modes |
05-26-2012, 10:00 PM | #1 | |||
|
||||
Member
|
My neurologist still seems to think what I'm experiencing is seizures. We haven't found a seizure medication yet that doesn't have a severely negative effect on me...so we don't know yet???
I guess it would make sense, since seizures can cause permanent brain damage. I haven't experienced a full blown seizure and nobody has told me that I've had one...I do have some random tingling in my extremeties, mainly my head. Could those be seizures? I'm also still unable to handle watching TV without the part of my brain that controls my thinking and speech "seizing up" immediately. No convulsions, no twisting and turning or anything...Just brain fog, mild tremors and random tingling in extremeties. I've had a clear EEG 3 times. Could it be seizures??? Any thoughts on this??? Nick
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. |
|||
Reply With Quote |
05-26-2012, 11:30 PM | #2 | ||
|
|||
Legendary
|
Nick,
If it was seizures, the flashing lights and other stimuli they use during the EEG's would have shown the seizure. You might ask your neuro if you can try phenobarbital. It will help you sleep and likely settle you down. It is a anti-seizure barbiturate but does not cause strong addiction problems. I have been on it long term twice. Once when I was 16 for 1 1/2 years and again when I was 19 for 6 months. If you neuro does not know how to look at a VEP or AEP to see how much such stimuli effects your brain, you need to find someone who does. A qEEG/AEP/VEP done by someone who truly understands them will be a big help. I'll try doing some more research for a specialist in your area. My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
||
Reply With Quote |
"Thanks for this!" says: | SpaceCadet (05-26-2012) |
05-27-2012, 12:05 AM | #3 | |||
|
||||
Member
|
I still haven't heard anything back from Dr. Yucha.
I am very much interested in the AEP and VEP test. So, if you could find someone that would be willing to work with me, that would be great.
__________________
What happened: I was randomly assaulted from behind in June of 2011. I was knocked unconscious for an unknown amount of time (less than 30 minutes) and have no memory of the event. CT scan showed contusion and hematoma of the left frontal lobe. I spent 3 days in the hospital. Diagnosed with Post-Concussion Syndrome in September 2011. Currently have Medicaid, Medicare and SSI. Current symptoms: Brain fog, mild memory issues, problems with spontaneity, occasional spacing out, word finding difficulties, tinnitus in right ear and some other things that I can't explain. Life after the brain injury: 4 years after the injury, I'm engaged to my beautiful girlfriend of 5 years, I'm the CEO of my own business, Notorious Labs, I've taught myself how to program complex games and apps which is a feat I never thought I'd accomplish and now live a semi-normal life with very mild PCS symptoms. Slowly but surely regaining my life back. |
|||
Reply With Quote |
05-27-2012, 02:36 AM | #4 | ||
|
|||
Legendary
|
Nick,
Check out this place. Michael and Leslie Newman Neurofeedback and Counseling Associates 702-224-5222 Las Vegas, NV
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
||
Reply With Quote |
"Thanks for this!" says: | SpaceCadet (05-27-2012) |
05-27-2012, 10:19 PM | #5 | ||
|
|||
Member
|
SpaceCadet,
Personally, I'd recommend getting in to see an epileptologist. A neurologist with extensive experience dealing with only seizure disorders. There are many different types of seizures ~ 30+! Sometimes, an EEG doesn't detect abnormal electrical activity (if it's deep within the skull). That does happen. Which medications have you tried? Personally, I've had dependency problems with phenobarbital which my neurologist increased to a rather high dosage in hopes of controlling my seizures. Didn't work very well for me, but it was the most successful med for me. I was hospitalized while taken off the med ~ to prevent major withdrawals. Different meds work well for different people....that's how I look at it. I'm sorry that you've had such a difficult time ~ being uninsured and assaulted. What a horrible addition to the misery of TBI. I'll have to look and see if there are epileptologists in your area. Best wishes! Shezbut |
||
Reply With Quote |
05-27-2012, 10:47 PM | #6 | ||
|
|||
Member
|
Quote:
Daniel J. Broeske, M.D. Board Certified Neurologist 3121 S. Maryland Pkwy. Suite 408 Las Vegas, NV 89109 Tel: 702.733.8018 I didn't see any epileptologists in the Las Vegas area. But the two clinics mentioned do have extensive experience with brain injuries and related effects, so they might be an option for you! Cleveland Clinic ~ Lou Ruvo Center for Brain Health 702-483-6000 You may want to try calling the Cleveland Clinic to see if you might be helped and assisted with payments, given your personal situation. Hope this helps you! Shezbut |
||
Reply With Quote |
"Thanks for this!" says: | SpaceCadet (05-28-2012) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Seizures or not? | Children's Health | |||
Seizures? | Multiple Sclerosis | |||
Possible seizures | Traumatic Brain Injury and Post Concussion Syndrome | |||
Had 2 seizures ... what to do?? | Epilepsy | |||
Son with Seizures | New Member Introductions |