Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-21-2012, 02:32 PM #1
JoeT JoeT is offline
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Default Does any one ever feel

Like they come in and out of a different world. Like they are stuck mostly feeling like they are almost retarded but just not be able to understand or figure out easy things that they used to be able to but then some times feel totally normal and not understand why.
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Old 05-21-2012, 03:30 PM #2
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I haven't felt "normal" since just before the accident I was in.

But I do know what it's like to feel almost retarded, even though I know I'm not, I still feel like that when I compare my perception of my current cognitive functioning to my previous level of cognitive functioning. I feel guilty about feeling so extreme about it, because I don't think I'm perceived by others to be almost retarded... but that's how I feel sometimes nonetheless.
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Old 05-21-2012, 03:36 PM #3
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For me it feels like I can recognize the difference in a way similar to when a computer is just not processing something. Like when you're waiting for an email to be sent and it's just not sending. I can recognize that some places in my head just aren't working.

In terms of coming in and out of worlds, I only feel that I am living in this new world that a product of my concussion. I don't feel like I can't join others, but I do feel like others can not join me; in that I do know that they don't know or perceive or understand the difference in my illness, since having an concussion, other than the obvious symptoms which also involve alienation (need for sleep and quiet) is rather difficult to see from the outside in.
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Old 05-21-2012, 04:18 PM #4
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blackcode,

Welcome to NeuroTalk. It sounds like you fit with us quite well.

I also experience the in and out feelings. Over my many years of these feelings, I find that I can get out of the 'does not compute' feeling by doing something simple. It may take a few simple tasks to gradually get to a better but not normal feeling.

Other times, I just need to reboot. I take a nap and start over. It is like my brain did not wake up in a proper cycle. A good nap and I usually can get to a better condition.

I don't let the poor days effect me. They are just temporary and will always pass. I may need to hunker-down at home.

I have 3 different grades of days or parts of days.

The worst leave me napping on and off most of the day. They usually follow a bad night of trying to sleep. I end up doing very little.

The next level are days when I can get some tasks done and act alive but not well enough to drive. The biggest indicator is how well I can scan with my eyes. I usually can not scan very fast or I struggle to comprehend what I am seeing. I usually get better as the day goes on.

My good days are driving days. I have good visual scan skills and can read without too much fatigue. I have good awareness of my surroundings. I can solve problems in my head and do much deeper cognitive tasks.

There is no rhyme or reason to each level except for my sleep the night before.

I've been living with this for 11+ years. My wife can look in my eyes and see what level I am in.

btw, I do much better when I am away from the sounds of a city or town. When I am at my mountain cabin, I can get past the initial dragging feeling by just walking outside and listening to the sounds of nature. The ambient noise of civilization tends to have a negative effect.

My best to you all.


But then life goes on.
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Old 05-21-2012, 05:51 PM #5
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totally normal was the wrong thing to say. Even when I feel better I still can not watch a show with out the volume low and off when it gets too busy or noisy. Even when I feel better and try to figure out how to have some kind of a life just trying to think it out messes me back up again. And every time I email even family or even post on here it always seems stupid and I usually delete it. I tried to delete this first part that I wrote. Is there a way to delete posts here?
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Old 05-21-2012, 07:44 PM #6
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You can edit a post within a time limit. A moderator can delete a post for you if you ask them.

JoeT, Have you tried watching TV with a head set? It will help separate the ambient sounds from the TV sounds. It makes a big difference for me.

What things do you do during the day?

What is your environment like?

Tell us more details about your days and symptoms and maybe someone can suggest some ways to make your days better.

My best to you.
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Old 05-22-2012, 08:23 AM #7
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I totally understand how you feel. Just today in the office, I had to deal with a situation where I am still learning how to do things.

I had to make two phone calls to find out information, and someone was in the room with me. I felt self-conscious, which complicated how my brain processes, and could not get the words to come out of my mouth. It was like my brain was screaming the words but I could not say them.

I feel so dumb sometimes because the simplest of tasks or words sometimes confuse me when I know they shouldn't.

However, I am fortunate enough to work where I have my own space, and am not bothered much so I can turn off the lights if needed and throw in the earplugs.

Hopefully these things will pass for all of us...
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Old 05-22-2012, 09:42 AM #8
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JoeT, I know the feeling well. There have been many times I feel as if I can't think or my brain appears to just shut down in the middle of something. I even forgot how to spell my youngest daughters name one day...was a brief moment of panic.

Like others have said, i usually have to take a nap or just sit in silence when that feeling comes over to be able to recharge a bit. This might be one of those tmies becuase I just can't "think" of what I want to say.
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Head Injury 10/2011. Diagnosed with contusion/concussion....Now PCS with Tension/Migraine combo headaches.

Symptoms: focus/concentration issues, short term memory issues, nausia, dizziness, sleep problems, noise/light sensitivities, extreme fatigue, irritability, vision problems, slow processing, tingling in extremeties and a few more I can't remember.
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Old 05-22-2012, 10:11 AM #9
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Default Exactly

Hi JoeT,
Yes I do go in and out of worlds. I had my concussion two years ago, and an encouraging sign for me is that my good days have recently become great. Just about normal, maybe a slight headache-but I'll take that anyday over that feeling of being in a different world. For me I would describe it as being at the bottom of a fish tank looking out. It can be a very lonely feeling and even though I feel lonely I usually do not want to be near other people.
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Old 06-01-2012, 11:56 AM #10
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Quote:
Originally Posted by concussedlawyer View Post
Hi JoeT,
Yes I do go in and out of worlds. I had my concussion two years ago, and an encouraging sign for me is that my good days have recently become great. Just about normal, maybe a slight headache-but I'll take that anyday over that feeling of being in a different world. For me I would describe it as being at the bottom of a fish tank looking out. It can be a very lonely feeling and even though I feel lonely I usually do not want to be near other people.
Concussedlawyer
EXACTLY.. You've summed up the feelings I can never remember to write down when I see these forums :P Before the concussion, If i felt lonely, I'd call up a friend, bam problem solved. Now it's like: do I feel well enough to see someone? Can i handle going to a movie? etc. Feels like other people are worlds apart from us sometimes.

Thanks!
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