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Vision Therapy and general update

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Old 07-06-2012, 10:54 PM #11
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I am in Rochester MN where Mayo Clinic is and still have trouble finding doctors who truly understand PCS even when they say they do
I live in Rochester as well, and I'd have to say that the doctors at Mayo kind of dropped the ball when it came to my case. I was in and out in two weeks with no follow ups and little to no information about PCS or how to cope with long-term symptoms - definitely a source of frustration the last few years.
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Old 07-09-2012, 03:14 PM #12
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Default Vision Therapy Help for PCS
So glad to hear that people are finding help for PCS with vision therapy. I came across this strand by accident, but as a vision therapist with 15 years experience, it is wonderful to see this type of information being shared. Best of luck to you in your continued recovery. The organization COVD has a wealth of information on this topic.






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Originally Posted by EsthersDoll View Post
Thank you!!

I was just commenting to myself yesterday about the benefits I've gained from going to vision therapy - I experienced a LOT of weird visual phenomena like the ones laurarrrgh mentioned and since I've started going they happen MUCH less - I can't say whether the vision therapy has helped reduce them or not at this point because I'm not an expert in the field.

And the dizziness I experienced multiple times a day seems to have subsided since I started going too!
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Old 07-09-2012, 05:06 PM #13
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Makes sense that Mayo will leave PCS patients wanting. The Mayo Clinic online information about concussions is very old school. Definitely not up to Mayo standards.

RV, Are you just a vision therapist or have you had a concussion?

I guess you meant thread when you said strand. This is a common occurrence of those of us with PCS. Thread....strand...the PCS brain picks the first to come to mind.
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Old 07-11-2012, 05:24 PM #14
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Mayo clinic has been so wonderful for many other health issues for both me and my husband but when it comes to PCS they seem absolutely clueless especially if your symptoms linger past 3 months. It has now been over 5 months for me and supposedly I should be all better by 6 months.
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Old 08-02-2012, 04:02 PM #15
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Hello,
I'm relatively new to this site (I've been browsing the forums but haven't posted until today) and I have some questions about vision therapy. I've been dealing with PCS for almost 3 years now and have had a lot of problems with my vision: blurred vision, palinopsia (visual trails), visual snow, flashing lights, and sometimes my eyes seem to vibrate and are unable to focus. Do these seem like symptoms that vision therapy could possibly help correct? If so, how do I find if there is a facility that has vision therapy in my area?

Thanks so much!

Laura
Hey Laurr I'm having all the same symptoms as you! Have any gone away yet? Mine seem to have gotten worse since my concussion two months ago. Did yours start right after your concussion?? I heard visual snow never goes away i'm scared!!!
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Old 08-04-2012, 07:12 AM #16
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I'm sorry I suffer from visual snow too. I had vision therapy a few years back and it helped with some of my focusing issues, but not with the visual snow itself.

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Originally Posted by laurarrrgh View Post
Hello,
I'm relatively new to this site (I've been browsing the forums but haven't posted until today) and I have some questions about vision therapy. I've been dealing with PCS for almost 3 years now and have had a lot of problems with my vision: blurred vision, palinopsia (visual trails), visual snow, flashing lights, and sometimes my eyes seem to vibrate and are unable to focus. Do these seem like symptoms that vision therapy could possibly help correct? If so, how do I find if there is a facility that has vision therapy in my area?

Thanks so much!

Laura
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Old 08-05-2012, 12:07 PM #17
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Originally Posted by laurarrrgh View Post
Hello,
I'm relatively new to this site (I've been browsing the forums but haven't posted until today) and I have some questions about vision therapy. I've been dealing with PCS for almost 3 years now and have had a lot of problems with my vision: blurred vision, palinopsia (visual trails), visual snow, flashing lights, and sometimes my eyes seem to vibrate and are unable to focus. Do these seem like symptoms that vision therapy could possibly help correct? If so, how do I find if there is a facility that has vision therapy in my area?

Thanks so much!

Laura
Laura, I had many of your visual symptoms for the first few months. I am fortunate that most seem to of faded or disappeared. I still have convergence issues sticking with me and will be starting vision therapy shortly.

I wish you luck and healing.
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Old 08-07-2012, 11:15 PM #18
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I keep having vision symptoms and this is NEVER going away. Is there anything that I can do to fix this? I wish the OP best of luck as well, as this is very frustrating.
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Old 08-09-2012, 09:14 PM #19
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Glad to hear of success with vision therapy. Neuropsych did diagnose me with vision issues, so I am going to ask about a referral. I don't need a referral-BUT, I feel like it will give more validity.
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Old 08-10-2012, 12:43 AM #20
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I'm sorry I suffer from visual snow too. I had vision therapy a few years back and it helped with some of my focusing issues, but not with the visual snow itself.
DId your visual snow get induced by concussion or did you have it before?
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