seizure meds
 

His doctor put him on topamax. He also has headaches a lot. So they put him on topamax which is suppose be anti-seizure med but they put him on it for his headaches. His neurologist dosen't seem to think that it is seizures that my son is having. He dosen't seem to know what it is. I asked if his ANS could be messed up and he said he didn't think so:confused:. So I still have no answers for my son. He will start his med on tue, b/c he has to wait till after one of his studies is done.

Have anybody else had two concussions and say they want to hurt themselves? My son say's these things and I don't know why.

I had horrible struggles with suicidal ideation and even some comments to others after my severe concussion at 10 years old. I was trying to figure out how to make it look like an accident.

Have you looked around for a different neurologist?

South Carolina has a Brain Injury Trust Fund. Check out http://www.sciway.net/quick/mentalhealth.html to see if there is a reference to specialized help.

Also check out http://ddsn.sc.gov/consumers/divisions/Pages/HASCI.aspx

Also, check out the South Carolina Brain Injury Association at http://www.biausa.org/SC/

A doctor is not going to be his advocate. You need to do that yourself until you find a specialized advocate.

Hope you can find some good help.

Did you understand why u felt that way, did you have to take meds?

I was completely clueless. My parents were too. My father thought my threats were just bluffs based on weakness or misbehavior.

I had no follow up care after my head injury. I was discharged after three days in the hospital with no instructions to my mom. That was 1965.

I lost all of my friends and roller coastered through depression and academics. It was a miserable few years.

Hi Canina,
I don't know if it's directly related to the head injury (i.e. some sort of physical change causing the suicidal thoughts), but even if there is no 100% physical cause, just being sick can be depressing for anyone, especially children, and especially when it seems that none of the adults know what's wrong with you, much less how to make you better. My daughter was in a 3 week intensive treatment program for chronic pain and every kid there was on an anti-depressant. Many had suicidal thoughts and a few had made attempts. I agree with the other person (Donna, I think) that it would be good for him to be able to speak with a counselor to help him cope with the emotions that come as a result of being ill.

Here's one more thought for finding a physician: the Dysautonomia Network has a listing of physicians. If there is a neurologist near you on the list, perhaps you could see them for a 2nd opinion. That way, if they also say that it is not the ANS, at least you can feel confident that someone who focuses on dysautonomia has also ruled it out: http://www.dinet.org/physicians.htm#United%20States

Lori

my son update
 

Update,my son has been seizure free for almost a year now. Since being put on topmax. I thought that everything was all better until lately he started having them again. I wonder could this be seasonal triggered?