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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#11 | ||
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I sometimes just don't bother participating in conversations. Its a lot of work to find the right words, at the right time... then if you fail to find them, its embarrassing and for some reason people think they are helping if they correct me or point out my mistakes.
So yeah, sometimes I just sit in silence. Isolating, but whatever. Starr |
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#12 | ||
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I came here looking for conversation, understanding and support. Now that I am registered I can't join any chats or post a new thread. It is no wonder poeple with chronic pain do desperat things. What is the point in haing this site if you can't post. Anyway, just another form of exclusion and not what I was hoping for. Most likely best if I just let you folks do your thing and stop complaining but that is the only time I get to talk with humans. I pray is is well in your world.
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#13 | |||
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Quote:
You do get a notice when you first post (as well as in the site guidelines) that your first few posts are moderated. We do this to prevent spam. Your own new thread was approved within just a couple of minutes of your posting it ...here it is http://neurotalk.psychcentral.com/thread172844.html If you could see the disgusting spam and porn that we keep off these forums due to our premoderation for new members, you would understand why it is needed The chatrooms are ones we share with PsychCentral and not many of our members are active there...it is mainly just chit chat and not health related. Again, we prevent newly joined people from going in there as that keeps spammers and trolls out of the chat. All these features are designed to protect members and they are explained in the terms & guidelines that you agree to when you register I hope you find the support you are seeking
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#14 | ||
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Don't give up on us Yankees5. Hopefully the above explanation helps.
I had a similar frustration in joining. I could not get past the captcha no matter how many times I tried. In the end I had to get a mod to create my account for me I just couldn't do it. All I could do for over 2 months was read the posts. I understand why all these measures are in place but for those of us with brain injuries they are quite the barrier when we are already struggling. I wonder how many people don't manage to make it through. ![]() Chat away here. We understand and will try to help if you have something specific you need advice on. Starr |
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#15 | |||
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Administrator
Community Support Team
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Hi "Starr"
![]() You'll be pleased to know we are no longer using captcha and have a simpler method to differentiate real people from spam bots trying to register now
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Jomar (07-07-2012) |
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#16 | |||
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Co-Administrator
Community Support Team
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Anytime you have problems there is a Contact Us link at the bottom of every page here, just send a message on the issue you are having.
Sometimes a forum search will find answers for you also, as well as the FAQs - http://neurotalk.psychcentral.com/faq.php
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Search the NeuroTalk forums - . |
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#17 | |||
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Junior Member
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I have the same issue. My family is understanding (most of the time) they talk slower to me (helps a lot!) And wait patiently for me to talk. When I get all mixed up and don't know what to say they don't laugh and they wait. It helps that my mom works in the neurological unit at kessler rehab she understands what a comcussion really is and even if its small how much it can mess you up. I've stopped hanging out with friends and don't do groups. If someone goes to talk to me with the tv or music on I tell them to wait, turn it off then devot all my attention to them if I dnt I don't understand them nd can't process it.
My boyfriend and I recently met one of our neighbors and went to their house the other night. Our neighbor asked me why I was so nervous I just laughed and said oh I'm not. I later asked my bf if I seemed nervous h said yeah you just stood away quietly didn't talk much. He's right! I didn't even really notice but I do pull my self away from people I don't talk much anymore especially around others because I don't make sense and sound dumb. Its just I have so much trouble speaking I don't want others to laugh or whatever. I keep quiet and to myself around people I don't know and no longer go around groups. I was a very friendly talkative person who could make friend with eveyone. Now I'm quiet and content with the about 5 people in my life my family, boyfriend, and best friend who has also had a tbi.
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22 year old college student and former college athlete suffering from memory loss, lack of concentration, confusion, loss of balance, mood changes, frequent head aches, noise sensitivity, and more due to multiple concussions. Last recorded in August 2011 during a soccer practice while doing a heading drill. No longer allowed to play soccer or any other competitve sport because the risk of another concussion is too great. Also suffering from Fibromyalgia, diagnosed in 2006 chronic pain, fatigue, irritability. Last edited by Jaystar89; 07-09-2012 at 01:18 PM. |
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#18 | |||
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They said, try to make light of it. Turn it into a joke. Laugh a bit when you catch a mistake. I did this exact thing the other day. It worked! Believe it or not some people do try to understand and most don't even catch the mistakes like we do. Turning off distractions is a good idea when talking with people. I struggle with groups especially when others are all talking at the same time. It's frustrating. Keep on Fighting! |
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#19 | ||
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Junior Member
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Hi, everyone --
Wow, thanks for all your kind and encouraging words. I'm glad to see people responded to this thread. I appreciate it. While this may sound like a weird request, i'm wondering if anyone is willing to share the story about their concussion, or maybe what an MRI or scan showed. I know every injury is different and unique, and we all heal in different ways. But somehow, comparing stories makes me feel better. Especially in relation to this symptom, which to me, feels most defeating. |
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#20 | |||
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Junior Member
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Wow Mark! I love how you described the processes. Is there a way to bookmark or link these posts so family can read them. I have a hard time with words and descriptions and your description could help my family start to understand a tiny bit of what i am going through. I just joined today and am just starting to read the forum and am amazed at the knowledge and support on here.
Jennifer Quote:
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