[Mist8012]

Yesterday my husbands dad and wife came for a visit which seldom happens. I felt very foggy brained and confused for most of the visit. I wanted so badly to go lie down but I knew if I did they would leave out of feeling sorry for me and my hubby enjoys his father's visits so I pushed through. I sat in a chair for hours and couldn't participate in the conversations out of dropping words, slurring and stuttering. And I couldn't remember simple words and had to have my son help me find them. My FIL kept complaining that I speak too quietly. His wife would tell me that my eyes looked different and I seemed dopey. By the time they left I was in agony! I was angry and cried uncontrollably. My eyes hurt and so did my head. I took some Advil and had a hot bath to ease the tension in my neck. Hubby apologized relentlessly. The one thing I've noticed about myself lately is that I have lost all desires for things I loved before. I was an avid crochet/knitter and would design beautiful things. I tried to pick it up a week ago and couldn't remember a simple slip knot. Out of frustration I haven't picked it back up. This morning I wake up with foggy brain and I'm very angry so I've had to isolate myself from my daughter whose driving me crazy! I had to make a phone call to my work and as I was leaving a message my daughter kept interrupting me which made me forget what I was saying and I began slurring again. When she gets this message she's gonna think I'm some kind of mental patient!

Thanks for listening.

Kelly

Violently assaulted in April 2012 by a demented patient working on the night shift in a nursing home. Was affected with many cognitive impairments and PCS. Massage therapy 2x a week

[ShellyK]

I am so sorry for what you are going through. Unfortunately, I can relate. If it wasn't for this site, I would think that I was going crazy sometimes.

It's been almost two-and-a-half years for me, and I still cannot tolerate noise, crowded places, long conversations, etc. When I get the foggy days, I either want to cry or scream or both.

I think the thing that has helped me the most is to try (and the key word is "try", because it doesn't always work) to take it one day at a time. That is the only thing that you can do with this PCS.

Unfortunately, doctors don't understand it. At least that's what I've found. You have to seek out what works for you. And even though you were trying to be think of your husband, you do have to protect yourself. If you feel you have to lie down, that means that you are getting a signal from your body, and if you don't listen to it, you will suffer.

Please take care of yourself. Everyone here cares. Vent as much as you like. I guess that's one of the purposes of this site.

I hope you feel better soon. PCS is so up and down. A good book, if you haven't read it yet is Brainlash, by Gail Denton.

ShellyK

[Mist8012]

Originally Posted by ShellyK

I am so sorry for what you are going through. Unfortunately, I can relate. If it wasn't for this site, I would think that I was going crazy sometimes.

It's been almost two-and-a-half years for me, and I still cannot tolerate noise, crowded places, long conversations, etc. When I get the foggy days, I either want to cry or scream or both.

I think the thing that has helped me the most is to try (and the key word is "try", because it doesn't always work) to take it one day at a time. That is the only thing that you can do with this PCS.

Unfortunately, doctors don't understand it. At least that's what I've found. You have to seek out what works for you. And even though you were trying to be think of your husband, you do have to protect yourself. If you feel you have to lie down, that means that you are getting a signal from your body, and if you don't listen to it, you will suffer.

Please take care of yourself. Everyone here cares. Vent as much as you like. I guess that's one of the purposes of this site.

I hope you feel better soon. PCS is so up and down. A good book, if you haven't read it yet is Brainlash, by Gail Denton.

ShellyK

Thank you for the book reference I'll check it out. You sound like my mom lol Yes I should be acting selfish now. All day yesterday I was a complete zombie because of the visit. Today a bit better but still foggy brained.

[Mist8012]

Michaelabella,

I just wanted to say I know how you feel and I want to vent as well. I feel awful. I was lucky to have a few days where I actually felt “normal” I guess I must have pushed a little too hard at work and have felt terrible for the last 2 days. I was going to write a post asking if these set –backs are normal but then I saw your post and I could relate.

I haven't gone back to work yet and not sure if I could handle my line of work anymore. Any advice? I have a return to work meeting with them tomorrow and afraid of the outcome coz they are so darn pushy!

I have also enjoyed this site. My doctor just gives me a weird look every time I say I feel the same as before. Like it's unusual. I'll see what they say this afternoon when I see them again

Kelly

[ShellyK]

When I first got injured, I had to see a workers' comp doctor, and he made me feel like there was something terribly wrong that I wasn't better yet. I knew that I couldn't go back to work.

But he made me feel guilty - like I should tough it out. As I said, I wasn't capable of working. I was feeling too lousy. I had horrible headaches. I couldn't tolerate noise. I was nauseous. Etc., etc., etc. But I tried to volunteer. I was a teacher, so I went in to help the substitute.

However, I couldn't last more than an hour. I would usually get dizzy and get a headache and have to leave. And then I had headaches for days.

Luckily, I eventually found this site and I realized that my symptoms were real, and I realized that I had to listen to my body. I wonder whether it would have made any difference if I didn't go in to volunteer at the beginning.....

What I am saying to you is listen to your body. If you are not ready to go back to work, don't let anyone tell you that you are. It will only set you back further.

Unfortunately this is not an illness that you can "push through". I have learned that. I have also learned that if you have to see a workers' comp doctor, you have to be an advocate for yourself. You have to find treatments.

The doctor that I saw only gave me Motrin for my migraines, and Motrin gave me stomach problems. They don't even pretend to try and help you. They just want to get rid of you as quickly as they can.

There are doctors who care - even if they may not know how to help you. I think that it's all a guessing game. They really don't understand our illness. So we have to keep trying to find out what will help us.

This website has been a godsend. At least there are other people who are going through the same type of thing that I am going through. And I realize that what I am feeling is normal for this type of injury.

My best to you.
ShellyK

[Mist8012]

Thank you Shelly!

I'm trying so hard to listen to my body and sometimes I just think I'm crazy but then I come here and realize I'm not

Thanx again,

Kelly

[gardnermom]

Shelly,
I know what you mean about the workman's comp drs. i am going through that right now. I am 6 mos post injury from an assault on the job in a lock down mental health facility. Every time i go they literally try to put words in my mouth about feeling better from the moment i step in the door. The CNA does and the DR does it. I think they are trained to do it. No i don't feel better, I'm at a stand still. I live in a fog. I can't find words, i don't make sense most of the time, my balance is off, i over load easily, I'm no longer smarter than a 5th grader, heck I'm lucky if I'm smarter than a pre schooler most days. The list goes on and on. But nope they will just keep saying things like "but over all you're better right?" I'm not going to answer yes to that. The neurologist says i have a long road ahead of me, but the other guy wants to close the case for the employer who happens to be the State of Oregon. lol I'm screwed. ugh!

[rosebower]

Originally Posted by Mist8012

Michaelabella,

I haven't gone back to work yet and not sure if I could handle my line of work anymore. Any advice? I have a return to work meeting with them tomorrow and afraid of the outcome coz they are so darn pushy!

I have also enjoyed this site. My doctor just gives me a weird look every time I say I feel the same as before. Like it's unusual. I'll see what they say this afternoon when I see them again

Kelly

I went the the ER for a spider bite the other night and the young doctor there when I told him I'm 8 months in to PCS looked at me strange and said "You should have been done with that concussion after 1 month. Here's our neurology dept. number." Now first of all PCS obviously does not last just 1 month. Second of all it's alarming to think there may be something ELSE wrong with you that's a total mystery. All I can conclude is that this young doc new nothing about PCS and thought he did. So your doctor is not the only one who gives you weird looks because he doesn't realize what a haul PCS is. BUT my mom went to see a nurse practitioner at her doctor's and when she heard I had PCS she flatly stated "I'm so sorry to hear it! That's 1-2 years of mood swings and symptoms." That would have terrified me at the start but now at least I know it's a long haul, but not indefinite.

[sospan]

Originally Posted by Mist8012

Yesterday my husbands dad and wife came for a visit which seldom happens. I felt very foggy brained and confused for most of the visit. I wanted so badly to go lie down but I knew if I did they would leave out of feeling sorry for me and my hubby enjoys his father's visits so I pushed through. I sat in a chair for hours and couldn't participate in the conversations out of dropping words, slurring and stuttering. And I couldn't remember simple words and had to have my son help me find them. My FIL kept complaining that I speak too quietly. His wife would tell me that my eyes looked different and I seemed dopey. By the time they left I was in agony! I was angry and cried uncontrollably. My eyes hurt and so did my head. I took some Advil and had a hot bath to ease the tension in my neck. Hubby apologized relentlessly. The one thing I've noticed about myself lately is that I have lost all desires for things I loved before. I was an avid crochet/knitter and would design beautiful things. I tried to pick it up a week ago and couldn't remember a simple slip knot. Out of frustration I haven't picked it back up. This morning I wake up with foggy brain and I'm very angry so I've had to isolate myself from my daughter whose driving me crazy! I had to make a phone call to my work and as I was leaving a message my daughter kept interrupting me which made me forget what I was saying and I began slurring again. When she gets this message she's gonna think I'm some kind of mental patient!

Thanks for listening.

Kelly

Violently assaulted in April 2012 by a demented patient working on the night shift in a nursing home. Was affected with many cognitive impairments and PCS. Massage therapy 2x a week

Many of us here are going through the same thing - so you are not alone.

I have a hyper active 5 year old grandson whom lives with us. Some days it is very difficult to be in the same room as him as the noise and activity really grates on my nerves even though he is just being a normal 5 year old.

Much as your experience, it is almost like torture - you know whats causing the pain but as much as you want them to stop it seems unforgivable to ask them to stop and go away

[Mist8012]

I have a hyper active 5 year old grandson whom lives with us. Some days it is very difficult to be in the same room as him as the noise and activity really grates on my nerves even though he is just being a normal 5 year old.

I agree. My daughter is a 9year old and full of energy and most days I just can't take it! Dang summer holidays!

I asked my hubby to get me those ear plugs they use at his work (He's a welder) Hope it helps

Kelly