Go Back   NeuroTalk Support Groups > >

Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Ataxia

Reply
 
Thread Tools Display Modes
Old 08-03-2012, 10:44 AM   #1
Mist8012
Member
 
Mist8012's Avatar
 
Join Date: Jul 2012
Posts: 187
My Mood: Ataxia
Default Ataxia

Ataxia is my new dx. I have no idea what it is!

Can anyone help me? Is there another forum for this condition with resources to teach me how to cope?

I will be having a follow up with Neuro sometime after September but I would really like to know what I'm facing now.

Kelly
__________________
I have PCS, PTSD, Panic Attacks, Occipital Neuralgia, Ataxia.CT normal.
Mist8012 is offline   Reply With Quote
Old 08-03-2012, 11:15 AM   #2
Lightrail11
Member
 
Lightrail11's Avatar
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 530
My Mood: Ataxia
Default

I'm not an expert but it's loss of coordination and/or balance with involuntary movement, as you mention in your signature, problems with vertigo and balance. Are you currently seeing a physical or occupational therapist for this?

You may want to visit the forum on movment disorders. Here is a link with more information.

http://www.ataxia.org/index.aspx

Best to you as you recover.
__________________
What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
Lightrail11 is offline   Reply With Quote
"Thanks for this!" says:
Mist8012 (08-03-2012)
Old 08-03-2012, 11:26 AM   #3
Mist8012
Member
 
Mist8012's Avatar
 
Join Date: Jul 2012
Posts: 187
My Mood: Ataxia
Default

I have a bunch of referrals in the works and nothing has started yet.

I was only dx yesterday.

Thanks for the link
__________________
I have PCS, PTSD, Panic Attacks, Occipital Neuralgia, Ataxia.CT normal.
Mist8012 is offline   Reply With Quote
Old 08-03-2012, 10:52 PM   #4
Eowyn
Member
 
Eowyn's Avatar
 
Join Date: Jun 2011
Location: Sunset Coast, USA
Posts: 711
Default

I responded on another thread as well. My grandfather has a specific type of ataxia (a rare type) and has gradually been losing motor control over many years. He is now at the point where he cannot walk, feed himself or even swallow solid food, transfer from bed to chair, hold onto items in order to write, etc. His mind is just fine, but his body won't cooperate with most things he wants to do.

Again, his is a very specific, rare, and GENETIC type of ataxia, and it has taken many many years for him to get to this point. I don't think this is how all ataxias go. Were you given any other specifics on it, such as "cerebellar ataxia" or anything?

In general, I think it just has to do with loss of coordination, which could mean that you would need to learn new ways to accomplish daily tasks that become difficult, use specialized tools to help you, or possibly have someone assist you with them.
__________________
mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

.
Eowyn is offline   Reply With Quote
Old 08-27-2012, 12:36 PM   #5
FarmDiva
New Member
 
Join Date: Aug 2012
Posts: 2
Default

Mist,
I was recently diagnosed with ataxia too, after my internist referred me to a neurologist. Had an MRI (unremarkable) Blood tests for vitamin levels, copper, etc all came back fine, except for vit D. Neuro asked about my drinking (heavy for last 10 years) and suggested I have our well water tested for heavy metals. Since I haven't done that yet, he's sending me for a urine test to check for heavy metals.

My ataxia manifests in balance/gait issues, difficulty with stairs and sometimes tremors in my legs. From what I've read it's usually a symptom of injury to the cerebellum due to some toxin like alcohol, mercury, vitamin defiency, etc. I've cut out drinking and started a vit D supplement. Today Mrs. D, on this board suggested that gluten can also cause ataxia. My neuro is sending me for urine tests to check for heavy metals. I also have a referral to an ENT, as inner ear issues can also cause ataxia. Good luck with your search and keep us posted.
FarmDiva is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Cerebellar Ataxia Cathy General Health Conditions & Rare Disorders 31 06-05-2013 10:41 AM
ataxia bedbound me Privateer New Member Introductions 3 11-01-2011 04:08 PM
Ataxia dahlek Peripheral Neuropathy 1 09-06-2009 07:44 AM
which forum best for ppl with Ataxia Aarcyn General Health Conditions & Rare Disorders 3 07-18-2009 05:31 AM
Ataxia smitty Movement Disorders 2 12-25-2008 10:22 PM


All times are GMT -5. The time now is 05:06 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy