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Old 09-15-2012, 05:45 PM #1
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Default Trying to help someone with a brain tumor

Hi All.

This morning I was told about a 28 year old young man who recently began suffering from seizures. He went to a neurologist, they did their tests and it was discovered he has a brain tumor. When I asked the girl who told me this "Can they operate"? She told me 'No, they told him it's too close to the brain".

She also said he got 3 opinions and no one would operate. She is getting me more info and when I get it I'll post here. I guess I'm trying to determine (once I get the exact diagnosis), if indeed no one will operate.

This young man is only 28 years old. What a shame.

Sometimes, when one finds a 4th opinion, one finds a doctor who has the absolutely latest laser or some kind of equipment that the other doctors don't presently have. I really don't know.

I felt I had to do something so I told her I would get more information for her. She is going to get the rest of his medical information.

When i find out more, I'll post here and maybe one of you can say "He has a shot, they are doing trials in this, or maybe we know a physician who does this type of sugery".

I really don't know.

So when i find out more, I'll post here.

Hey, we all have to help each other in this world.

Thanks much

Melody
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Old 09-15-2012, 06:30 PM #2
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The kind and location of the tumor makes all the difference. There are a few specialists who operate on tumors that others will not touch. There are also some 'knifeless' procedures for some tumors.
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Old 09-15-2012, 08:21 PM #3
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Quote:
Originally Posted by Mark in Idaho View Post
The kind and location of the tumor makes all the difference. There are a few specialists who operate on tumors that others will not touch. There are also some 'knifeless' procedures for some tumors.
And that's what I told her. So as soon as she updates me, I'll post it here and maybe I can get SOME info to give her.

Thanks very much

Melody
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Old 09-16-2012, 12:08 PM #4
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There is a World Wide Gamma Knife Organization online.

I can't link it since I am a new member and links have a new member limit of posts before I am able to make links.
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Old 09-16-2012, 03:07 PM #5
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*moderator edit*

Mark - I enjoy reading your posts and replies, and will post my bio one day - I tend to be long winded - is there a word limit on beginning posts? I have a detailed history, my last concussion got the best of me.

I also shall share my background and hope to give some assistance in future when I have no fog of my own, which does happen - like today.

Last edited by Chemar; 09-16-2012 at 03:16 PM. Reason: sorry but we do not allow any form of linking for new members
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Old 09-16-2012, 03:59 PM #6
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Quote:
Originally Posted by Mark in Idaho View Post
The kind and location of the tumor makes all the difference. There are a few specialists who operate on tumors that others will not touch. There are also some 'knifeless' procedures for some tumors.
I'll admit my bias up front since I was a patient there and am alive today, but Barrows Neurological institute in Phoenix does more brain surgeries than anywhere else in the country, and they have the reputation for being able to perform surgeries that other hospitals can't or won't consider.

http://www.thebarrow.org/Neurologica...nter/index.htm
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 09-16-2012, 04:53 PM #7
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Quote:
Originally Posted by Lightrail11 View Post
I'll admit my bias up front since I was a patient there and am alive today, but Barrows Neurological institute in Phoenix does more brain surgeries than anywhere else in the country, and they have the reputation for being able to perform surgeries that other hospitals can't or won't consider.

http://www.thebarrow.org/Neurologica...nter/index.htm
Thanks for all the great info. I'm storing it all. When I find out more, I'll come back.

Great info

Melody
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Old 09-16-2012, 04:57 PM #8
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Quote:
Originally Posted by Lightrail11 View Post
I'll admit my bias up front since I was a patient there and am alive today, but Barrows Neurological institute in Phoenix does more brain surgeries than anywhere else in the country, and they have the reputation for being able to perform surgeries that other hospitals can't or won't consider.

http://www.thebarrow.org/Neurologica...nter/index.htm
Hi there. I have emailed this link to the person who is related to the guy with the Brain Tumor.

I'll update here when I learn anything new

Thanks very much

Melody
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