Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 10-01-2012, 09:39 AM #1
xxxxcrystalxxxx xxxxcrystalxxxx is offline
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xxxxcrystalxxxx xxxxcrystalxxxx is offline
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Default Year update

It's been 16 months since my injury. I haven't responded much since my only access to the site has been on my phone. It's way to hard to try to put thoughts down using such a device. lol

I finally got into speech therapy and it reiterated what I already know. I have short term memory issues. My biggest complaint is my shaky legs. I'm not sure if it's the medication or the injury and no one seems to know. I literally have problems walking down the stairs and when I go walking I notice my gait is way off.

Ok maybe that's not my biggest complaint. I hate writing my fears down but here it goes.

My brain just cant handle stress. I fog over and cant process everything that is being thrown my way. I've talked with my neuropsychologist and he says that I may need to change my environment. How can I do that? My son is a teenager and recently had some issues. He was assaulted and fractured a bone in his face and had a concussion as well. He suffered post concussion symptoms for about two weeks. Knowing how serious a head injury can be I immediately thought the worse. I made him rest and he seems to have recovered very well.

He is still a teenager though and is pressing his boundries and had some behaviours that weren't acceptable. I dealt with them but between my husband telling me what I didn't do right and dealing with the onset of troubles I was put into what my therapist called "crisis mode". I literally shut down. I told my son if things dont get better he will need to move in with his father.

This would be so hard for me to do. I hate to admit the fact that I cant care for my 16 year old son. I hate to admit the fact that my husband (who is my son's stepfather) keeps telling me I'm killing myself trying to care for my son. See the cycle here?

I am grateful dont get me wrong. I have improved in so many ways. I dont have headaches daily. Perhaps one every other day and the are lessoning in degree pain wise. I still have anxiety, depression, and have gained weight. These are bothersome to me. I try to walk but my gait isssues deter me.

Has anyone experienced the leg problems? I'm on Depakote, Celexa, Abilify and d/c the Lamictal. They thought perhaps the Lamictal was the issue but I'm questioning the rest of the medications. I hate having to take all these meds when prior to this injury I was medication free.

Sorry this is so long. It's been awhile since I've been on the site. I hope everyone has a good, pain free, non-confusing day.
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Old 10-01-2012, 06:04 PM #2
rmschaver rmschaver is offline
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Default The post in PCS

I struggle with this also. Emotionally stressfull enviroments have me feeling my already slippery grip on my sanity just gets more so. I literally feel like going to pieces. I am currently trying to get to a nuero-psychologist.

Raising teenagers is hard enough and your son is at the separtion stage. As you have noticed they can be alittle rough about it. You might try talking to him be honest and vunerable about your fears and what it is costing you emotionally.

He may also need an outlet that is outside the home enviroment. It is common a young man his age will seek out a surrogate for whomever his father figure was. It is an effort to validate the man he feels he is becoming.

If you can get him to tell you something that he is really interested in, you maybe able to help him and lower your stress.
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Old 10-02-2012, 09:50 AM #3
pcslife pcslife is offline
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Default

I got the SeaLegs five weeks after my TBI and stayed with me It gets noticeable when I get out. I tried to go for a walk few times around the block and thought going to pass out with heart beating so fast and nausea. I did all the ENT tests, MRIs, CT scans and everything came out ok.

Some docs call it anxiety, some Meniere's etc., Since I have to pay so much attention not to sway it gets exhausting. Still some friends and docs notice and say I walk like a very old man. I tell them, I know many old men who walks even runs better than me. So don't compare

For me it is not medicines doing it. It can be from neck or vision or ear issues or from brain itself. Who knows?

Cheers.
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Old 10-03-2012, 04:52 PM #4
mollymum mollymum is offline
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Me too, my gait gets like I'm walking through knee deep water when I'm struggling. My new dog has helped immensely as he helps me focus and tows me home.

The stress/kids/husband bit is very similar - I'm getting respite a bit since I got the judgemental stressy partner to move out. My 2 kids are now much calmer and so am I.

I had my 8 month check today and was advised to avoid using the brain to think and the body to move at the same time - great idea but a bit hard to do x
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44 year old mum of 2. Senior zoo keeper and former prison officer.
TBI and PCS symptoms all came about 3 weeks after an accident at work in February 2012 when I hit my head on the corner point of a metal barrier at brisk walking pace.

Life as I knew it came to a shuddering halt that day. 20 year history of depression and anxiety now coupled with memory issues, personality change, speech and communication problems, ringing ears, impulsivity etc etc etc.

Damaged people are dangerous.....they know they can survive!
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