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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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10-17-2012, 02:06 AM
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So, it's been 3 years since my last 2 (of several) concussions. I have gone through a lot of the ups and downs and am working hard on "acceptance" as well as coping skills to deal with symptoms.
I'm in the midst of applying for medical retirement/long term disability. My regular primary care dr has been wonderful and has recently completed the required forms. About 7 months ago she referred me to Neurologist for a final consult (I only saw the neurologist once previously just over 2 years ago - at that time she reported that I should make a full recovery). So, finally saw the Neuro yesterday and she says that there is no way I have PCS/MTBI because I would no longer have symptoms. So, now she is sending me for blood work to check for a connective tissue disorder like Lupus. Ugh! I'm so worried this will cast doubt when my application is reviewed. Grrrrr - I do not want to be back at square 1! And I'm terrified that I will be without benefits and still unable to work! Has anyone else experienced this "lupus suspicion"?  Thanks gang. XSoccergal
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Female, 44 years old. Several concussions over the years - the first was most severe (kicked by horse), recovered well. Last 2 concussions Oct, 2009 and were two weeks apart. I attempted to return to working 12 hrs/wk (working from home), but was unsuccessful. Currently applying for medical disability. Primary Symptoms: dizziness, light & sound sensitivity, confusion, difficulty focusing attention, headaches, depression, exteme fatigue, some insomnia and occassional speach problems - stammer, halted speach as I try to find the word or thought and using incorrect words. Trouble focusing on conversation if there is other noise around - especially other conversations. . |
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| "Thanks for this!" says: | Theta Z (10-17-2012) |
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10-17-2012, 02:15 AM
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Just refuse the tests. Tell your neurologist that you will only go ahead with them if you get a second agreeing opinion from an MD doctor. Your GP at least would have picked up any sign of lupus or connective tissue disorder (auto-immune disease affecting your whole body, not just your brain) if it was present and already ordered tests. You don't want to undergo unnecessary testing. You have a right to disagree.
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10-17-2012, 02:51 AM
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Legendary
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Soccer,
The neuro is dead wrong when she said "she says that there is no way I have PCS/MTBI because I would no longer have symptoms" There is not valid medical support for such a statement. I am 12 years since my last head injury. Three NeuroPsych Assessments show that my symptoms are unchanged. Have you had a NeuroPsych Assessment? You might get some help by contacting the Ontario NeuroTrauma Foundation. They have established sound medical science about prolonged concussion/mTBI issues. Check out www.onf.org and http://www.mybrainmatters.ca/organis...uma-foundation Please don't let this get you down. As luduplo said, ask for a second consult with a neuro. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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3 years and now Neuro thinks maybe Lupus?!!!
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