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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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11-16-2012, 04:09 AM
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So I saw a neuro otologist who diagnosed me with inner ear damage and explained I needed to learn exercises to compensate my dizziness and vision problems. The exercises make me sick and give terrible head pain.
I saw a spinal surgeon who said I do not need any operation but she feels my symptoms are that of TIA's. So has referred me to a neurologist again for an MRI with dye to check my arteries and any existence of clots. I have collapsed 6 times in 3 weeks. When it happens I am unable to speak for between 15 and 90 minutes. I also have to sleep immediately. My sight becomes blurred and I cannot respond to anything even though I can hear. I read the notes the spinal surgeon made and was angry to see the words : "This patient is displaying very unusual symptoms but a deep psychological exam explained all these as symptoms of stress and depression". The deep exam she refers to was a questionnaire I was asked to submit 2 mins before seeing her!! So if so called pro's know nothing about PCS and TBI what hope is there of help??
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I am a 36 yr old female who has played football, as a hobby, for 13 yrs. In July 2012, during a game I was slammed to the floor by two angry guys who hit into me so hard that one of them broke their ribs. This knocked me back onto hard ground leaving me unconscious. I awoke to chronic head and neck pain, sickness and the inability to see or balance. The paramedics made me walk to the ambulance, instead of placing me on a spinal board, where I was taken to the ER. I was hospitalised with suspected brain hemorrhage for 1 week, then on complete bed rest for 1 month, in a wheelchair for 2 months. I have been left with PCS, moderate constant head pain, little short term memory, no memory of the accident, balance and sight problems, depression and exhaustion. The worst problem is collapsing regularly. This has finally been diagnosed as Hemiplegic Migraines , these cause my brain to regularly shut down when I am tired and I then feel the full effects of a stroke (without the bleed on the brain!!) of which the symptoms last 2-4 days. I have had 6 CT's, 2 MRI's and am under 3 specialists. I believe everyday is one more towards improvement. Mainly I believe in the power of acceptance not the weakness of complacency or resignation. Last edited by peacheysncream; 11-16-2012 at 04:10 AM. Reason: forgot punctuation |
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| "Thanks for this!" says: | Theta Z (11-16-2012) |
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11-16-2012, 05:30 AM
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Oh no, Peachy. That sounds horrible. Those questionnaires are so annoying - yes of COURSE I feel stressed, of course I feel anxious, of course I am not sleeping normally. Dr's can be very quick to pull them out and overlook the underlying issues.
I don't know what to say except wait to see what the neuro says, if you haven't already? It's horrible waiting for the opinion but there's nothing you can do about it in the meantime. Are you on the NHS? How long have you to wait? I hope you have lots of support and help around you, especially when you are collapsing like you are. Have you considered a medic alert bracelet? |
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| "Thanks for this!" says: | peacheysncream (11-17-2012), Theta Z (11-16-2012) |
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11-16-2012, 10:35 AM
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peacheysncream wrote: I read the notes the spinal surgeon made and was angry to see the words : "This patient is displaying very unusual symptoms but a deep psychological exam explained all these as symptoms of stress and depression".
The deep exam she refers to was a questionnaire I was asked to submit 2 mins before seeing her!! So if so called pros know nothing about PCS and TBI what hope is there of help?? _________________________________________________ How unfortunate an experience for you peacheysncream, with the dismissive note by the spinal surgeon. Fortunately for you that she in fact did not find anything that would have indicated an opportunity for surgery!  "What hope is there of help??" --- Perhaps like many here, you may find that our own good conscientious selfcare is often our best hope of help over time. If otherwise, I hope that you will find the capable, competent, truly helpful professionals consults. It's such a hit-&-miss business, finding the right medical care consultants. My neurologist whom I saw ~3 weeks post-collision, was of typical no-help; and wrote a similar disregarding "observation note" that was in my case not only untrue, but as well harmful. Because I was at the time of the appt. both scared & frightened by what I was experiencing, and afraid for "how long" I might yet remain "dysoperational" in regard to being capable to do a highly-demanding job which I loved --- he made a ridiculous note to the effect of: "Patient seems highly-focused on disability."  Idiot. |
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| "Thanks for this!" says: | peacheysncream (11-17-2012) |
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11-16-2012, 10:52 AM
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Thanks to Klaus whom pointed to some links on TBI and vision problems - I found Visual Midline Shift syndrome which could explain my blurred vision, tracking problems, balance and a rather strange forward lean.
When I asked a retired Neuro guy about this, I was told to stop trying to find out what was wrong with me and leave it to the professionals. I explained that I haven't been examined yet and not likely to be for another 6 months - who else was going to get me better - he was not swayed
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ? |
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| "Thanks for this!" says: | Theta Z (11-16-2012) |
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11-16-2012, 08:50 PM
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So sorry for your bad Dr. visit. I had similar where nuero made note that I was obsessed with worst case scenarios of return to work. I work on LARGE powerful manufacturing equipment. My concern was with making a mistake that caused someone else to be hurt.
Modern medicine does not do well if you don't have an obvious traumatic injury or disease. Since Mtbi or concussion is neither I guess we must be strong self advocates.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
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| "Thanks for this!" says: | Theta Z (11-17-2012) |
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11-17-2012, 01:09 AM
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A neurosurgeon is not usually very good with symptoms that do not require surgery. Good you don't need surgery. I would not trust this surgeon.
When you have these collapse episodes, have you tried to be examined at the E&A or whatever you Brits call it while you still can't speak? It might be best to be seen while you are symptomatic. Write a note for your wallet about this situation and figure a way to communicate that you need an ambulance to get to the E&A. I had my second collapse on Sunday morning after one last spring. I was walking out of the bedroom and went down and hit the back of my head into a hollow core door. My wife found me on the floor in a fetal position. Not knowing the cause can be troubling.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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