Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-16-2012, 05:38 PM #1
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Default Do anyone else have symptoms that change?

Last week I had headaches in the lower back of my skull. This week it looks like that is starting to fade but the fog is coming back. It seems that every week or 2 my symptoms change. I have read quite a lot here but it seems everyone else has symptoms that are consistent.
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Old 11-16-2012, 06:16 PM #2
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Over the long term experience for me, head aches/pains will change/shift location. Nothing predictable of the cause(s) or the timing, in my own experience.

While the fatigue , the brain fog, and the cognitive dysfunctions remained pretty much 'consistent' for me.

As concussedlawyer has said it: "PCS is a marathon not a sprint."
Settle yourself in for the long haul and be patient with yourself and your symptoms.

As Mark has reiterated again & again here, "If you've seen one head injury, you've seen one head injury."
Try not to compare yourself and your symptoms too much to others' --- there is wide degree of variance.
It seems that this can be expected.

Good luck to you, Chris, and I do hope for you a speedy and full recovery.

Sincerely,
Theta
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Old 11-16-2012, 09:19 PM #3
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My symptoms are rarely the same day to day. The headaches vary, as does the back pain, memory like Swiss cheese. What I have found is over the long run I can count on roughly the same symptoms. The best way to tell and figure out triggers is a health journal.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

To see the divine in the moment.
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Old 11-17-2012, 01:28 PM #4
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Please tell us a bit more about your PCS and how you got it, then we can give you more feedback.
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I am a 36 yr old female who has played football, as a hobby, for 13 yrs. In July 2012, during a game I was slammed to the floor by two angry guys who hit into me so hard that one of them broke their ribs.
This knocked me back onto hard ground leaving me unconscious. I awoke to chronic head and neck pain, sickness and the inability to see or balance.
The paramedics made me walk to the ambulance, instead of placing me on a spinal board, where I was taken to the ER. I was hospitalised with suspected brain hemorrhage for 1 week, then on complete bed rest for 1 month, in a wheelchair for 2 months.

I have been left with PCS, moderate constant head pain, little short term memory, no memory of the accident, balance and sight problems, depression and exhaustion.
The worst problem is collapsing regularly. This has finally been diagnosed as Hemiplegic Migraines , these cause my brain to regularly shut down when I am tired and I then feel the full effects of a stroke (without the bleed on the brain!!) of which the symptoms last 2-4 days.
I have had 6 CT's, 2 MRI's and am under 3 specialists.

I believe everyday is one more towards improvement. Mainly I believe in the power of acceptance not the weakness of complacency or resignation.
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Old 11-27-2012, 12:43 AM #5
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Mine change about every 3-4 months. Nothing disappears, but some become more or less prevalent. And every time I get another concussion some symptoms go away but everything that stays gets worse and I usually get something new.
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Fell off a horse in late winter of 2009 blacked out for a couple seconds, had amnesia for 10 hours (still don't remember this time), had 2 CT scans, 2 MRI's, 1 MRA all negative. Since the first concussion I have continually knocked my head into different things purely by accident or from being stupid. These many concussions over a short period of time have caused
constant migraines, nausea, and dizziness/lack of balance.
Migraine triggers are:
light sensitivity (especially to florescent or bright lights)
sound sensitivity (especially to high pitched or loud sounds)
temperature sensitivity (especially to cold or extreme heat)
activity (especially if breathing increases or head is jostled)
pressure on head (sinuses, hats, headbands, sunglasses, pony-tails)
lacks or quality (food, sleep, water)
tension (stress, tight muscles, tired eyes, sickness)
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