Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-13-2012, 07:50 PM #1
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Cool today..

Today.

Normally I wake up and feel like absolute sh**, irritable/shaking etc…. I didn’t feel 100% but today I woke up feeling better, no shakes, not irritable . Normally my headache starts after about 10-15 mins of waking up. But today Ive been up for an hour and it hasn’t really hit yet. It normally hits hard after being at work for about an hour. But I’m holding out hope that today it is milder. It’s funny because last night I had a terrible headache, and I don’t normally get them at night.

I am just hoping that this is a sign that my symptoms are subsiding. Does anyone else want to share their experience today?
Another question. I’ve never had ringing in the ears, but the last few days I have noticed it. I almost 4 months PCS. Is this normally a late symptom; is it a good or bad sign?
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Old 12-13-2012, 08:43 PM #2
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Default careful with short term "feeling better!"

Interesting that I woke up today and started out with very mild symptoms except louder ear ringing. My night symptoms have gotten worse though. I'm in Ontario. Wonder if there's a weather connection?

As I've said in my other posts, I have a bad habit of thinking I'm getting better with short periods of lessened symptoms and it just leads to a bit of disappointment when they come back full strength.

Even worse than that would be if you overdid it thinking you were feeling better. I'm obviously no expert though so hopefully you are getting better!

Wishing you a good day tomorrow too!

CC
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 12-13-2012, 08:54 PM #3
Peter11 Peter11 is offline
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Quote:
Originally Posted by cyclecrash View Post
Interesting that I woke up today and started out with very mild symptoms except louder ear ringing. My night symptoms have gotten worse though. I'm in Ontario. Wonder if there's a weather connection?

As I've said in my other posts, I have a bad habit of thinking I'm getting better with short periods of lessened symptoms and it just leads to a bit of disappointment when they come back full strength.

Even worse than that would be if you overdid it thinking you were feeling better. I'm obviously no expert though so hopefully you are getting better!

Wishing you a good day tomorrow too!

CC


cyclecrash! I had my accident only afew days before you!! and I am starting to notice some improevents aswell..... it has been a very very slow process. And yes I can completyely agree, 3 or 4 good days in a row followed by a bad day and it seems like im back to square 1. But Im having less bad days and when I have a bad day the severity is not as bad. I didnt notice my symptoms until about 4 weeks after my accident. What has your experience been like? do you have ringing in your ears. I have found it odd that I only have experienced it the last few days?

Are you holding out hope for a complete recovery? How far off do you think you are??
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Old 12-14-2012, 11:01 AM #4
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Hi Peter,
My math may be off but you are saying you are almost 4 months since your accident and I'm 5 1/2 months since mine. Sorry for the nit picking!

I have never had 3 or 4 good days in a row. I think I had 2 once tops. More like 3 or 4 good hours! My headaches are the first thing improving. They are not as strong. I have had to take less medication for them. I'm sure that's a good, healing sign.

I have had the ringing in my ears since the accident. I'm not exactly sure when I first noticed it though. I was pretty out of it the first couple months.

My biggest complaint is the dizziness and blurred vision because I cannot walk without getting worse. Makes it hard to do anything. Once I can get that figured out (ENT or neuro-ophthalmologist) then I will begin to feel on the road to recovery.

I am hoping for a complete recovery but I might have to settle for accepting a new normal and moving forward. Only time will tell. I'm not worrying about it now because worrying will not help and the brain is trying to heal itself I just have to let it and wait!

I am certainly looking forward to a return to work and also to running, although from what I've read here running may be the hardest one to get back to. I do not think I will be able to do either for at least another 4-6 months judging by my recovery to date and advise from my neuro psych.

You are a lot younger than me though and I'm sure you will have far better success! I hope today is another good day for you. I'm not so lucky today but will be taking it easy.

CC

Quote:
Originally Posted by Peter11 View Post
cyclecrash! I had my accident only afew days before you!! and I am starting to notice some improevents aswell..... it has been a very very slow process. And yes I can completyely agree, 3 or 4 good days in a row followed by a bad day and it seems like im back to square 1. But Im having less bad days and when I have a bad day the severity is not as bad. I didnt notice my symptoms until about 4 weeks after my accident. What has your experience been like? do you have ringing in your ears. I have found it odd that I only have experienced it the last few days?

Are you holding out hope for a complete recovery? How far off do you think you are??
__________________
I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 02-03-2013, 08:08 AM #5
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Angry Brain injury cycle crash

I had a cycle crash 04/17/2010 Suffered a TBI and have been trying to recover ever since! I suffer extreme temerature sensitivity to my arms and hands, I have had bouts with PBA which makes you look like a complete emotional crash in public. ( uncontrolled crying and instant switch to uncontrolled laughter and then back and forth for no reason.) Its been almost 3 years now and intitially my neurologist tried to get me to apply for permanent disability. I am 3 years out from retirement 30 yrs. so I refused to apply and forced him to let me return to work on lite duty! In retrospect I wish I had taken his advice because I cannot function without large amounts of medication for the injuries which makes it unsafe for me to do my job. I would advise you guys to listen carefully to your health care professionals and take their advice to heart even if its not what you want to hear! I have been through so many drugs such a phentinol patches, oxycodone, oxycontin, Xannax, Valium, Lyrica etc., I am at wits end as to what to do to be able to complete my employment and retire asap. I no longer own a bike despite getting back on it breifly just to prove to myself I was unafraid to get back on the horse. However, riding the last few times I noticed no matter how careful I was there was always some dumb aZZ either on a cell phone or just not paying attention that almost wrecked me again! I decided its just too dangerous to be on a bike in traffic anymore with distracted drivers texting, talking, or playing games on a damned phone! I have been through severe depression, suicidal at times. Burning hands and arms as if I had fibromialga, loss of self, my sleep patterns is 2-3 hours a night no matter what meds I take to sleep, I feel like I am in HELL and am being punished for some misdeed I may have done in the past. I ask God daily WHY didnt he take me the day of the wreck rather than to have to go through so much pain and adversity. I dunno about you but its a long hard road to recovery and I'm no where near there yet after 3 years! I wish you both better luck than I am having.



Quote:
Originally Posted by cyclecrash View Post
Hi Peter,
My math may be off but you are saying you are almost 4 months since your accident and I'm 5 1/2 months since mine. Sorry for the nit picking!

I have never had 3 or 4 good days in a row. I think I had 2 once tops. More like 3 or 4 good hours! My headaches are the first thing improving. They are not as strong. I have had to take less medication for them. I'm sure that's a good, healing sign.

I have had the ringing in my ears since the accident. I'm not exactly sure when I first noticed it though. I was pretty out of it the first couple months.

My biggest complaint is the dizziness and blurred vision because I cannot walk without getting worse. Makes it hard to do anything. Once I can get that figured out (ENT or neuro-ophthalmologist) then I will begin to feel on the road to recovery.

I am hoping for a complete recovery but I might have to settle for accepting a new normal and moving forward. Only time will tell. I'm not worrying about it now because worrying will not help and the brain is trying to heal itself I just have to let it and wait!

I am certainly looking forward to a return to work and also to running, although from what I've read here running may be the hardest one to get back to. I do not think I will be able to do either for at least another 4-6 months judging by my recovery to date and advise from my neuro psych.

You are a lot younger than me though and I'm sure you will have far better success! I hope today is another good day for you. I'm not so lucky today but will be taking it easy.

CC
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Old 02-03-2013, 02:35 PM #6
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Re tinnitis...i had it from the beginning but it got way louder at about four months (i am now 17 months post accident). It is constant and really shrieks if I have done too much or been in a noisy chaotic environment. interesting that yours seem to be gearing up to!

Hang in there!
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Old 02-03-2013, 05:57 PM #7
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Heart Rainbows in today

Lol... Ok maybe not rainbows exactly. But today has some bright spots since the original poster asked how today was...

This flu is finally tapering off. Slowly. This is awesome.

I had a good sleep last night. I cannot believe how much difference this makes.

I've washed dishes today. This is progress! My poor husband has been doing EVERYTHING. For three months and counting....

I was able to listen to worship music while doing dishes. Ahhh... does my heart good.

My son and I baked peanut butter cookies. He does my heart good.

I have so much to be thankful for and I will not let this pain steal these moments today. I will be present.

That's my day so far....
__________________
About it: October 26, 2012 I fell backward on an icy parking lot at work. I was on Workers Comp for 9 months. My PCS : everyday headaches became once in a while headaches, and neck pain became manageable. Still have occasional mild dizziness, sometimes fullness in the ears, convergence insufficiency, sequencing struggles, short term memory struggles, verbal processing delays. CT neg, MRI neg. Therapies: prism glasses, acupuncture, icing neck, resting, supplementing, Elavil 20mg at bedtime.

NEW: Completed 12 weeks of physical therapy and returned to work full time.

About me: I'm a marketing manager, a mom with a blended family and wife to a heart attack survivor. I believe my brain injury taught me more than it cost me. I'm grateful to still be me!
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Old 02-03-2013, 06:00 PM #8
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Sounds great! Careful you don't over do it! I hope tomorrow is just as good for you!
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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"Thanks for this!" says:
MsRriO (02-03-2013)
Old 02-04-2013, 06:58 PM #9
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Good for you!!
__________________
49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors.

To see the divine in the moment.
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Old 02-04-2013, 10:51 PM #10
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Default 5th feb

Thanks Guys,
I am wondering how everyone is doing today?
I am hoping my good streak continues. I have been doing overall better since Saturday the 25th of Jan. A few slight ups and downs, but they have all been ‘good days’. I still am taking it relatively easy….at least for the next month hoping that my pain dissipates each day. I am finally seeing some light at the end of the tunnel.
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